hi new member here...

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tiamaria40
New Member


Date Joined Jun 2008
Total Posts : 2
   Posted 6/5/2008 12:38 AM (GMT -7)   
glad i found this sight as i feel like im at the end of my tether, i had blood tests done around 2nd a half months ago as my gp thinks i have lupus...im already living with hashimotos and showing signs and problems even though my thyroid is stable at mo...
im still awaiting the lupus results...and pulling my hair out in the process...i have several symptoms and hoping some1 can shed some light on how im feeling and why...symptoms are...
 
sores up my nose and back of throat...
my face goes hot and itchy and slight rash appears over bridge of nose...
i have a raised red blister like rash under my belly button that comes and goes..had this about 18 months...no creams cure it...
my muscles feel heavy and hurt when my arms are raised to long..
all my joints ache and hurt...knees ankles wrists..
dry mouth and itchy eyes..
constant water infections...
hot and cold sweats....
my legs go into spasms when in bed...cant get comfortable..keeping kicking out and moving them...
dry itchy skin
hair falling out.....
and mood swings from hell...
 
crickey i feel like  hypocondriac!!!!!
any feedback at all would so appreciated as im really starting to loose the plot....lol...thankyou
tia......

AlwaysRosie
Veteran Member


Date Joined Jan 2005
Total Posts : 8616
   Posted 6/5/2008 5:44 AM (GMT -7)   
Hi Tia,

Welcome to the forum! I hope your GP refers you to a rheumatologist to continue your testing. The rheumatologist is most informed about the tricky diagnosing and the treatment of lupus and some other autoimmune diseases.

You are playing the waiting game and it really does play on your nerves. I would push for a referral.

My doctors (gp, dermatologist, ortho, spine doc, pain management) . . . NONE of them referred me to a rheumy and I didn't realize that's where I should have been going. When I finally got a rheumy involved . . . I was actually angry that none of the others had referred me.

There are some links at the end of my signature that may be helpful. I guess I'm not sure if you have a specific questions . . . except "Do I have Lupus?". At this point, the rheumy will need to put the puzzle together for you.

Actually there is some relief in getting a diagnosis. After the initial shock and anxiety wears off . . and you learn more about your disease . . . you'll have something to aim at and can get a new sense of what you are actually dealing with.

If it is Lupus, we are each VERY different. . . so don't worry that you will be dealing with all of the symptoms of the folks on this board. We are each affected differently. But we do get a lot of help from each other in dealing with specific problems. So make sure to ask if you have any questions.

How old are you? Are you taking any meds?? Any specific questions?

Blessings!

In His Grip

AlwaysRosie           "We can't control the waves, but we can learn how to surf!!"

Psalms 139

Co-Moderator - Lupus Forum

UCTD, Inflammatory Arthritis, Diverticulosis, (recent dx - Sjogrens, Crohn’s 4/08)

Clickable Links:  Lupus Resources    Lupous.Org   Lupus Criteria (4 of 11)   Lupus Chapter Locator


hippimom2
Veteran Member


Date Joined Jul 2005
Total Posts : 5403
   Posted 6/5/2008 7:43 AM (GMT -7)   
Hi Tia and welcome. I don't have a lot to add to the great information that Rosie gave you. A lot of your symptoms are present in lupus and hopefully it won't take too long for your doc to figure things out so that you can get a diagnosis. Even if you don't get a diagnosis for a while, it's important that your symptoms get treated. It took me several years to get a diagnosis, but during that time I was still being treated with lupus meds to help keep my symptoms under control.

You are not a hypochondriac, but I do know what you mean about feeling like one. It's almost embarassing when I rattle off my list of symptoms, but docs need to know absolutely every symptom even the ones that seem silly or not related.

Hang in there - I know all of this can be overwhelming. Please ask any questions you have - we're here to try to help. I'm glad you found our forum - we have a great group of people here.
Diagnosis:  UCTD (lupus) 2006; Raynauds 2006; Sjogren's 2006; lupus symptoms began 2003; CFS 1991; Mono 1985
Meds:  Plaquenil 400mg; Prednisone 5-10mg; Tramadol 100mg 3-4x daily; Doxepin 25-50mg; Prevacid; Evoxac; Steriod Cream and Mouth Rinse for tongue and mouth ulcers; Hydrocodone 5/500 prn for severe pain; Artificial tears

 

Clickable:  LUPUS INFORMATION & LUPUS RESOURCES.

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Co-Moderator: Lupus and CFS Forums



Ginny
Veteran Member


Date Joined Feb 2003
Total Posts : 5514
   Posted 6/5/2008 8:09 AM (GMT -7)   
Hello Tia,
 
I don't have much to offer as well.  Rosie is very thorough!
 
Like they said, you're not a hypochondriac.  These symptoms are real, and they do sound like lupus, or a lupus-like condition.  Get that referal to a rheumatologist as soon as possible.  The wait can be a while.  In the meantime, keep a diary of all your symptoms from day to day, take pictures of any rashes.  Comes in handy when you see a doctor.  You have the proof if the rash disappears.
 
Glad you found us too!
Ginny
I can do anything through Jesus Christ who strengthens me. I have learned in whatever state I am in,to be content. Phillipians 4:11-13

34 years old. Diagnosed with lupus in 2000. Fibromyalgia, anti-phospholipid syndrome(APS)(stroke),Sjogren's, Raynaud's, seizure disorder-(miraclulously disappeared!), Libman Sach's Endocarditis, vasculitis, sacroiliitis, arthritis (neck) . Prednisone, Imuran, Coumadin, Clobazam, Amitriptyline, didrocal, Cozaar, calcium, Cykolokapron, multi-vitamin, vitamin D, Magnesium, vitamin B6, Acidophilus


DQueen
Regular Member


Date Joined Jun 2008
Total Posts : 88
   Posted 6/5/2008 10:28 AM (GMT -7)   
Hi Tia! Welcome to the forum. I am new here as well, but I already feel a little better talking to these guys. Everyone here is very helpful & supportive. You are definitely not a hypochondriac, but I know what you mean. I feel that way too. Anyway, good luck with your tests. and if you aren't happy with the way your doc does things, remember you have the right to get a second opinion. It's your body, and you need to feel comfortable with your doctors. my advice is to write down any thoughts or questions you might have, and ask them ALL! when u get in the doc's office, you might forget them if u don't. Remember - no  question is a dumb question, especially when it comes to your body and health!

Lots of Love!
DQueen
 
 
 
Lupus, Rheumatoid Arthritis, High Blood Pressure, Anemia, Congestive Heart Failure, Kidney Failure


tiamaria40
New Member


Date Joined Jun 2008
Total Posts : 2
   Posted 6/5/2008 11:52 PM (GMT -7)   
awwww thankyou all so uch for yr replys.....im 40 from england and hve not been started on any meds at the moment...my fp is very good and is getting extremley frustrated at the moment as he has been trying to refer me to see a rhuemy and after 5 attempts at trying to get an appointment we are still waiting...hes now taking it further....
each day with me is different...each day new pain or ache...no 2 days seem to be the same...im sat here typing this at the mo and im sweating like mad...arms ache as i try to hold them up as i type...shoulders so painful and hands full of pins an needles....feel like going to bed and staying there...i get so fed up of hearing myself moan!!!
but luckily have a very supportive hubby....

AlwaysRosie
Veteran Member


Date Joined Jan 2005
Total Posts : 8616
   Posted 6/6/2008 2:17 PM (GMT -7)   
Hi again tiamaria,

There is a condition called myositis that causes trouble with the shoulder and pelvic girdle. There are a coup of members here affected with this. The doctor can do a blood test to see if this is a problem for you. He may have already done this, since it sounds like an obvious problem to "rule out".

Of course other conditions can cause this kind of trouble too . . . just throwing out an idea.

Its good that your doctor is so involved. An appointment with a good rheumy can take many months. Thats ok . . . just so your primary care doc is involving a specialist.

Blessings!

In His Grip

AlwaysRosie           "We can't control the waves, but we can learn how to surf!!"

Psalms 139

Co-Moderator - Lupus Forum

UCTD, Inflammatory Arthritis, Diverticulosis, (recent dx - Sjogrens, Crohn’s 4/08)

Clickable Links:  Lupus Resources    Lupous.Org   Lupus Criteria (4 of 11)   Lupus Chapter Locator


joinery
Regular Member


Date Joined Oct 2007
Total Posts : 323
   Posted 6/6/2008 5:40 PM (GMT -7)   
Welcome Tiamaria, Glad you found us too. Just wanted to say hello, can't think of anything that wasn't aready said.. I do have the mask also the dry skin, muclespain.Derm. put me on this cream called elidel for rash and rhumey has been giving me shots for pain in shoulders, she put me on amlactin that seems to be working for my dry skin. she also told me to go to water therpy to work you arms even though your in pain it might help if you have myositis helps with muclse so you don't loss to much mucle mass. Hpoe this helps a little. Debbie
Asthma,Lupus,H.B.P.,Dermatomyostis,Gastrparsis,Acid Reflux   
                Panic Attacks,Osteopenia,Thyroid  
  Reglan,Protonix,Synthroid,Plaquenil,Quinacrine,Flexeril,Zetia,Zoloft,Xnanx,Celebrex,Abuterol,  
  Advair,Diovan,Actonel,Prednisone on and off Eye Drops,VitaminD.     
 
 
 
 

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