Ends of fingers turned white in hot sun/heat?

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cured4real?
Veteran Member


Date Joined Dec 2005
Total Posts : 1944
   Posted 6/9/2008 5:27 AM (GMT -7)   
Hi--
I've been having trouble with the sun again and went out for a short period about ten mins. even with spf 50 waterproof sport sunscreen and my face was bright red when I came in and I was sick and nauseaus and my hands were also red and puffy. When I extended the fingers, they were white. This was before I went in. Has anyone had this happen? Is this reynauds?
 
I'm so sick of being sick from the sun, and I'm sick OF the sun too. I wish it would rain here.
Love, Marji
--Sometimes I think the surest sign that intelligent life exists elsewhere in the universe is that none of it has tried to contact us. Bill Watterson (1958-) cartoonist "Calvin and Hobbes"
Ills--Sjogrens-Lupus-like AI Disease, Hashis, Vitiligo, spinal stenosis/fusion with plate, salivary/lymphectomies, Diabetes, NAFLD, COPD, RLS, neuropathy, trigonitis, hystero, diffuse brain atrophy, GI nightmare
Meds--Plaquenil, Evoxac, Metformin, Synthroid, HCTZ, Estradiol patch, Prosed, Detrol, Klonopin, Ultram, Vicodin, Restasis, Albuterol, steroid injections and pred prn


AlwaysRosie
Veteran Member


Date Joined Jan 2005
Total Posts : 8616
   Posted 6/9/2008 5:53 PM (GMT -7)   
Hi Marji,

I have had many summers where I could not do ANY sun . . even with heavy sunscreen. Sorry about that. I seem to have an easier time now that I've been on 600mg plaq for so long. I'm still very careful. But years past, I covered all the way over my finger tips even in the car.

Your white fingers could be Raynauds. It is a caused by constricted blood vessels, so it really could happen even in the heat. Here is a Raynauds link that might help. Sorry, you'll have to copy and paste it into your bowser: http://www.nhlbi.nih.gov/health/dci/Diseases/raynaud/ray_signs.html

*sigh* I know how awful it can be to feel like you have to hide from the sun all the time. I've made a real game out of enjoying sunrise, sunset and campfires!! Ha haaaaa!!!

Blessings!

In His Grip

AlwaysRosie           "We can't control the waves, but we can learn how to surf!!"

Psalms 139

Co-Moderator - Lupus Forum

UCTD, Inflammatory Arthritis, Diverticulosis, (recent dx - Sjogrens, Crohn’s 4/08)

Clickable Links:  Lupus Resources    Lupous.Org   Lupus Criteria (4 of 11)   Lupus Chapter Locator


cured4real?
Veteran Member


Date Joined Dec 2005
Total Posts : 1944
   Posted 6/9/2008 6:44 PM (GMT -7)   
Thanks Rosie.
It's the first time I've seen it, my hands haven't been exposed to cold in many years so I don't know what they do in cold. My feet are often blue and cold.

It was really weird, it was from the middle knuckle out to the tips on all the fingers and when I came in, the red on the hands calmed down and the color evened out. I just only thought it happened in cold. My fingers have been weird lately, off and on having stiff lumps on them , looking puffy and swollen but it is not soft but hard under the skin, though the skin is thick but pliable. Then it goes away. So does the stiffness.

This is the weirdest disease. I was sure I was getting scleroderma, I didn't see anyway that such a change could go away, but it did, now it comes and goes.

The sun is really killing me, my lips got burnt I think or they just feel funny like they are burnt but really are like sjogrens sore. My face was red red red and now it is normal. I've never seen my rash so bad. I thought for sure I was horribly burnt but it was just a temporary reaction thank God.

I'm so tanned and now getting mole like things--dark spots--from too much sun--freckles. I guess that's why I'm getting yelled at about it so much now.

I'm so bored inside. I need to get back to writing and other things. Take care. I hope it rains so I can go outside. I hope everything is okay where you are.
Love, Marji
--Sometimes I think the surest sign that intelligent life exists elsewhere in the universe is that none of it has tried to contact us. Bill Watterson (1958-) cartoonist "Calvin and Hobbes"
Ills--Sjogrens-Lupus-like AI Disease, Hashis, Vitiligo, spinal stenosis/fusion with plate, salivary/lymphectomies, Diabetes, NAFLD, COPD, RLS, neuropathy, trigonitis, hystero, diffuse brain atrophy, GI nightmare
Meds--Plaquenil, Evoxac, Metformin, Synthroid, HCTZ, Estradiol patch, Prosed, Detrol, Klonopin, Ultram, Vicodin, Restasis, Albuterol, steroid injections and pred prn


AlwaysRosie
Veteran Member


Date Joined Jan 2005
Total Posts : 8616
   Posted 6/10/2008 8:59 PM (GMT -7)   
((((((((( Marji )))))))))

Take a picture if/when this happens again and jot down some notes so you don't forget to tell the doc. Sclero is a possibility too. Make sure you keep a symptom diary so you don't forget to tell the doctor. I am surprised when I look back at older notes. I just forget about so many things that really need to be reported to the doc. Keep track of this stuff sis!!

Blessings!

In His Grip

AlwaysRosie           "We can't control the waves, but we can learn how to surf!!"

Psalms 139

Co-Moderator - Lupus Forum

UCTD, Inflammatory Arthritis, Diverticulosis, (recent dx - Sjogrens, Crohn’s 4/08)

Clickable Links:  Lupus Resources    Lupous.Org   Lupus Criteria (4 of 11)   Lupus Chapter Locator


emmi
Veteran Member


Date Joined Apr 2005
Total Posts : 1529
   Posted 6/10/2008 11:51 PM (GMT -7)   
Hi Marji,

emmie here, remember me? :-) Actually, I'm pretty sure that what usually provokes a Raynauds attack is either cold or emotional stress. Most of the time it is the cold. Rosie is right that it is caused by constricted blood vessels, but it is cold that makes things constrict; heat makes things swell.

Also, i think it was you that posted something aabout hashimoto's encephalopathy a while back. I can't remember exactly what it was but this is what I am under the impression is one of the current theories of what may be the process. One of the symptoms of the disease is very high thyroid antibodies. It is considered an autoimmune disease in that somehow the neurons in the brain are randomly attacked (the body turning on itself). If you google hashimotos encephalopathy you will find a few sites that give symptoms. Like most AI diseases most people have all of the symptoms. There are also some published papers on HE. The downside is that since there are so few people who have it (diagnosed anyway) that studies are nonexistent.

Sorry to hear you're still having trouble with the sun. So many of us do. Take care and I hope you find a way to get some fresh air--maybe early mornings and in the evening?

emmie
Limited scleroderma with lupus overlap, Sjogrens, Hashimoto's thyroiditis, Raynauds, GERD, Hashimoto's (or Autoimmune) Enchephalopathy, seizures due to encephalopathy, migraines, fibromyalgia


cured4real?
Veteran Member


Date Joined Dec 2005
Total Posts : 1944
   Posted 6/11/2008 2:59 AM (GMT -7)   
Thanks emmi and Rosie, I will take a picture if it happens again. I'm so afraid to go out in the sun now.

Emmi, I just got back from Mayo and saw an endo there, and I'm told the endos there are not very good from another thyroid site. Anyway, the endos there said that HE was not even a real disease like they thought, they call it something different now, and even though you have high tpos with it, the tpos don't do anything to hurt you, they are just a coincidence (which I find silly because the tpos DO destroy the thyroid). I can see why the disease doesn't get diagnosed more and taken very seriously when Mayo assumes this position on it. They also failed to diagnose my secondary adrenal insufficiency and treat it.

I'm so disgusted with endos right now. The rheumy I saw there wasn't very good either, my rheumie is much better.

On my hands, I was wonderng if I was having such an extreme swelling and reaction in the upper part of my hands that it actually cut off circulation to the fingers somehow.

I just can't take five minutes anymore. It's awful.
Love, Marji
--Sometimes I think the surest sign that intelligent life exists elsewhere in the universe is that none of it has tried to contact us. Bill Watterson (1958-) cartoonist "Calvin and Hobbes"
Ills--Sjogrens-Lupus-like AI Disease, Hashis, Vitiligo, spinal stenosis/fusion with plate, salivary/lymphectomies, Diabetes, NAFLD, COPD, RLS, neuropathy, trigonitis, hystero, diffuse brain atrophy, GI nightmare
Meds--Plaquenil, Evoxac, Metformin, Synthroid, HCTZ, Estradiol patch, Prosed, Detrol, Klonopin, Ultram, Vicodin, Restasis, Albuterol, steroid injections and pred prn


emmi
Veteran Member


Date Joined Apr 2005
Total Posts : 1529
   Posted 6/11/2008 9:13 PM (GMT -7)   
Marji,

there are lots of doctors who say that HE is not even a disease. This does not surprise me. I think the other name they are referring to is SREAT another acronym. It stands for steroid responsive encephalopathy----and now the rest of it is lost in brain space.

Have you googled HE? I'm sure you have. You will find some of the best information on the site by Beverly Seminara, about.com has a pretty good summary of HE, so does Suite 101. There are also a few papers to see.

gotta go I"m falling asleep as I type and since insomnia has been my unwelcome friend lately, I must listen to her and get myself to bed. I hope things start turning around for you. I'll be watching for a goooood post from you!

xoxo emmie
Limited scleroderma with lupus overlap, Sjogrens, Hashimoto's thyroiditis, Raynauds, GERD, Hashimoto's (or Autoimmune) Enchephalopathy, seizures due to encephalopathy, migraines, fibromyalgia

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