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cactusbunnies
New Member


Date Joined Jun 2008
Total Posts : 4
   Posted 6/10/2008 4:00 PM (GMT -7)   
Good Afternoon all :)
 
I have been reading this forum for a week or so and have learned so much from you all. Thank you.  I have not gotten a dx of Lupus, but plan on visiting my Dr. and having her look into the possiblity.  'I' think I have Lupus, it seems to match my issues perfectly. I have suffered with so many issues over the years. Fatigue being one of the biggest issues. Joint pain, headaches, mouth sores, and recently I realized the rash on my face isn't just my skin changing as I age. Ha, I am only 35, but feel 100. With in the last month I have started losing a handful of hair in the shower everyday. And my 'current' health issue is the loss of use of my right hand and an injury to my foot that won't heal.
 
I don't have any specific questions at the moment. I am sure I can think of some, but I just came in from running errands and am beat and am in a brain fog.
 
I just wanted to say HI and Thanks!
 
Kandi

mom46
Veteran Member


Date Joined Dec 2004
Total Posts : 8198
   Posted 6/10/2008 6:17 PM (GMT -7)   
Hi Kandi,
   Welcome to the forum. I'm glad you posted after reading for a few days. I'm sure you have already found this group to be awesome just from reading.
   It sounds like you have been having a hard time. I hope you get more definate answers soon and the right treatment plan to help you feel better. Are you seeing a Rheumatologist? They are the best doctors to diagnose and treat lupus.
  Please ask all the questions you want and share anything with us. We will help you in anyway we can. Take care and hope to hear from you again soon. You will be in my thoughts and prayers.
                                                            Babs
 
Dx: Lupus,RLS,RA,Asthma,Fibro,Sjogren's,Raynaud's,Divertic, Stroke,Atherosclerosis,Seizures,Neuropathy,CAD
Meds:arava,prednisone,plavix,aspirin,protonix,,zanaflex,xanax,
mirapex,advair,foxamax,Vytorin,folicacid,lunesta,Tramadol
 
JOB 5:18 For he wounds, but he also binds up; he injures, but his hands also heal.


joinery
Regular Member


Date Joined Oct 2007
Total Posts : 323
   Posted 6/10/2008 7:03 PM (GMT -7)   
Hello Kandi, Just want to welcome to the forum. Let us know the out come of your doc. app. there are alot of people on here that may help you with any question you may have. Good Luck with your app. Debbie
Asthma,Lupus,H.B.P.,Dermatomyostis,Gastrparsis,Acid Reflux   
                Panic Attacks,Osteopenia,Thyroid  
  Reglan,Protonix,Synthroid,Plaquenil,Quinacrine,Flexeril,Zetia,Zoloft,Xnanx,Celebrex,Abuterol,  
  Advair,Diovan,Actonel,Prednisone on and off Eye Drops,VitaminD.     
 
 
 
 


MJLD
Veteran Member


Date Joined Jul 2007
Total Posts : 1048
   Posted 6/10/2008 7:54 PM (GMT -7)   
Kandi,
I'm glad you are seeking help. I pray that you are able to get the medical attention you need. Let us know how it goes. Judy

AlwaysRosie
Veteran Member


Date Joined Jan 2005
Total Posts : 8616
   Posted 6/10/2008 8:47 PM (GMT -7)   
Welcome to the forum Kandi!!

I hope your doctor appointment goes well. Make sure to read the post in "Lupus Resources" about preparing for a doctor appointment (link in my signature). It would be great if he/she would give you a referral to a rheumatologist sooner rather than later. The rheumy is just more knowledgeable about lupus.

I hope you will keep us posted!! You certainly have something going on.

Blessings!

In His Grip

AlwaysRosie           "We can't control the waves, but we can learn how to surf!!"

Psalms 139

Co-Moderator - Lupus Forum

UCTD, Inflammatory Arthritis, Diverticulosis, (recent dx - Sjogrens, Crohn’s 4/08)

Clickable Links:  Lupus Resources    Lupous.Org   Lupus Criteria (4 of 11)   Lupus Chapter Locator


Audrey Ann
Veteran Member


Date Joined Jul 2005
Total Posts : 815
   Posted 6/11/2008 6:36 AM (GMT -7)   
Welcome Kandi! You have found a great place of support and friendship!

Like Rosie said, please be sure to check out the post about preparing for your doctor appointment. This will save you a lot of trouble and time. Getting a lupus diagnosis is very tricky for doctors and there are many different symptoms and tests to go through before coming to any conclusions. For some of us it has taken two to three years for a diagnosis and for others a diagnosis comes quickly.

Good luck to you and, please, stop by often. Almost any question you have can be answered by someone here who has experienced similar situations.
Prayers,
Audrey Ann
 
Lupus and RA and LOTS of Medications!
 


 


cactusbunnies
New Member


Date Joined Jun 2008
Total Posts : 4
   Posted 6/11/2008 12:26 PM (GMT -7)   
I just got back from the doctors. I called at 8:30 am for an appt and they had an opening at 10 am if I wanted it. I took it!! She hemmed and hawed about it being Lupus, but sent me for blood work. 5 vials yowzers! She did check my ANA and other stuff. She seems to think it is anemia eyes   whatever. I will wait to hear what the results are and then push for a rheumy appt.
 
She did decide to send me to get a sono of my uterus. Apparently when she asked about my cycles she didn't like my answer and thinks I might have fibroids.
 
I am anxious for my blood results!!
 
Thanks All!

joinery
Regular Member


Date Joined Oct 2007
Total Posts : 323
   Posted 6/11/2008 1:54 PM (GMT -7)   
kandi....Well that's good that you got to see your Doc. just don't stress out, the more you stress the lousier you will feel. Good Luck. Debbie
Asthma,Lupus,H.B.P.,Dermatomyostis,Gastrparsis,Acid Reflux   
                Panic Attacks,Osteopenia,Thyroid  
  Reglan,Protonix,Synthroid,Plaquenil,Quinacrine,Flexeril,Zetia,Zoloft,Xnanx,Celebrex,Abuterol,  
  Advair,Diovan,Actonel,Prednisone on and off Eye Drops,VitaminD.     
 
 
 
 


hippimom2
Veteran Member


Date Joined Jul 2005
Total Posts : 5403
   Posted 6/12/2008 4:44 PM (GMT -7)   
Welcome Kandi. I'm glad the doc ran all the bloodwork and I hope it gives you some answers. Some of the labs take a while to come back and the waiting can be hard. Please let us know what you find out.
Diagnosis:  UCTD (lupus) 2006; Raynauds 2006; Sjogren's 2006; lupus symptoms began 2003; UC 2008; CFS 1991; Mono 1985
Meds:  Plaquenil 400mg; Prednisone 5-10mg; Tramadol 100mg 3-4x daily; Doxepin 25-50mg; Prevacid; Evoxac; Steriod Cream and Mouth Rinse for tongue and mouth ulcers; Hydrocodone 5/500 prn for severe pain; Artificial tears

 

Clickable:  LUPUS INFORMATION & LUPUS RESOURCES.

Please allow HealingWell to continue helping others by donating: http://www.healingwell.com/donate/

 

Co-Moderator: Lupus and CFS Forums


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