Neuropsychological Exam?

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mom46
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Date Joined Dec 2004
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   Posted 6/10/2008 6:12 PM (GMT -7)   
Hi Everyone,
   I was wondering if any of you have ever had a Neuropsychological exam done and if so what was involved in the process? I have been reading what I can find but, would love to hear from someone that has actually done this.
   My rheumy is sending me for this exam on Friday morning. She and my Internal Medicine doc say I have Autonomic Dysfunction causing all kinds of problems. My rheumy actually told me I had this back in 2005 when I was having seizures.
   I'm just frustrated right now. You all know how it is when you wait and wait for the answers and for them to do something about the problem.... eyes .
   Anyway tks in advance and hope you are all doing okay. Thoughts and prayers to all. Take care.
                                                        Love, Babs
 
Dx: Lupus,RLS,RA,Asthma,Fibro,Sjogren's,Raynaud's,Divertic, Stroke,Atherosclerosis,Seizures,Neuropathy,CAD
Meds:arava,prednisone,plavix,aspirin,protonix,,zanaflex,xanax,
mirapex,advair,foxamax,Vytorin,folicacid,lunesta,Tramadol
 
JOB 5:18 For he wounds, but he also binds up; he injures, but his hands also heal.


joinery
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Total Posts : 323
   Posted 6/10/2008 7:13 PM (GMT -7)   
Babs.. I don;t know anything about the exam, I hope they find the answer for you soon I know about the waiting game that is the worst. Good Luck Hope things go well. Debbie
Asthma,Lupus,H.B.P.,Dermatomyostis,Gastrparsis,Acid Reflux   
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MJLD
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   Posted 6/10/2008 7:41 PM (GMT -7)   
Babs,
I saw a neurologist and had the spinal tap, ecg and ct scan. I was diagnosed with Cerebritis, but I drew the line a neuropsychological exam. I told my nephrologist, who acts as my primary that I did not want to know some things and did not want to subject myself to that. I was treated several times for the cerebritis. I still have some memory issues and occasionally speech problems. Other than that it's the usual 'fog'. God Bless you and good luck! Judy

AlwaysRosie
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   Posted 6/10/2008 8:54 PM (GMT -7)   
((((((((( Babs )))))))))))

I'll be watching this topic. I'd like to know what it involves too. (Just curious)

I think my brother had this done and tested everything from his IQ to a psych eval. It was actually quite interesting. But I could see where some people might feel like Judy. If it is like my brother's exam it is a great asset when the need to see if you have lost any ground later. It was helpful to him in determining his disability too. But it also helped determine what issues were from a stroke and what were from PTS (Vietnam).

I hope you get some informative responses to this because I'm only guessing. (Lynnwood????)

Blessings!

In His Grip

AlwaysRosie           "We can't control the waves, but we can learn how to surf!!"

Psalms 139

Co-Moderator - Lupus Forum

UCTD, Inflammatory Arthritis, Diverticulosis, (recent dx - Sjogrens, Crohn’s 4/08)

Clickable Links:  Lupus Resources    Lupous.Org   Lupus Criteria (4 of 11)   Lupus Chapter Locator


Lynnwood
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Date Joined May 2005
Total Posts : 7019
   Posted 6/11/2008 7:39 AM (GMT -7)   
Hey - I have my first visit w/the neuropsych guy today at 3:30 -- I think this visit is for about an hour mainly to determine which tests I need.

My tests will be to determine and qualify the extent of my cognitive dysfunction due to Lupus. If there is measurable dysfunction, it means I'm stupider than I used to be & can't work & get disability, otherwise I'm still a smart ass so need to go back to work.

No winning answers for me! Will let you know more as I see how it goes.

Lynnwood, Co-Moderator: Lupus Forum
SLE(’00), Sjogren's Syndrome, Raynaud's Syndrome, SAD, Depression, Herpes Simplex 1
Piroxicam, Plaquenil, Prednisone(was 15mg, now 8mg), Cellcept, Xanax, Trazodone, Boniva(3mth shot), Wellbrutrin SR, Valtrex
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Post Edited (Lynnwood) : 6/11/2008 8:15:36 PM (GMT-6)


Audrey Ann
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Date Joined Jul 2005
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   Posted 6/11/2008 6:49 PM (GMT -7)   
Lynnwood, I hope your neuropsych went well today!

Babs, I am sorry but I have no helpful information for you on this right now. I will be watching closely to see how it goes for you, though, so please keep us updated. I remember being very scared about my problems cognitively at the beginning of my major symptoms. I still have trouble processing, at times, but I can tell I am much better. Thank goodness for meds!

Blessings to all!
Prayers,
Audrey Ann
 
Lupus and RA and LOTS of Medications!
 


 


Lynnwood
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Date Joined May 2005
Total Posts : 7019
   Posted 6/11/2008 7:14 PM (GMT -7)   
Today they did a basic background/history interview -- education, jobs you've worked, that sort of thing. Apparently they take that and the dr's goals (in my case my disability attorney's goals) and work up a series of applicable tests. Once they have a plan, they take that to your health insurance for approval before the tests are actually scheduled.

It may, of course, be different when it's used for diagnostic purposes. They said it's several hours of testing, but that you can take frequent breaks between tests....I think there are several dozen tests they pick from depending on what they are trying to determine....forensic cognitive functions for me, ie comparing cognition now w/cognition in the past. (Don't ask me, sounds a lot like magic tea reading....)

That's all I know so far, will try and keep you posted....so far it's given me a huge headache (or maybe that's the weather?! :-))

Later gaters,

Lynnwood, Co-Moderator: Lupus Forum
SLE(’00), Sjogren's Syndrome, Raynaud's Syndrome, SAD, Depression, Herpes Simplex 1
Piroxicam, Plaquenil, Prednisone(was 15mg, now 8mg), Cellcept, Xanax, Trazodone, Boniva(3mth shot), Wellbrutrin SR, Valtrex
Links: DIAGNOSING LUPUS (4 of 11), LUPUS INFORMATION, LUPUS RESOURCES, Donate to HealingWell, Drug Interactions

Post Edited (Lynnwood) : 6/11/2008 8:17:47 PM (GMT-6)


mom46
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Date Joined Dec 2004
Total Posts : 8198
   Posted 6/12/2008 4:53 AM (GMT -7)   
Tks everyone,
    I appreciate the replies! Lynn tks for the info so far on your appt. I hope they come up with a good plan for the future testing to help with your disability. I will let you all know how my appt goes tomorrow as well. Take care all and tks again.
                                                                                    Babs
 
Dx: Lupus,RLS,RA,Asthma,Fibro,Sjogren's,Raynaud's,Divertic, Stroke,Atherosclerosis,Seizures,Neuropathy,CAD
Meds:arava,prednisone,plavix,aspirin,protonix,,zanaflex,xanax,
mirapex,advair,foxamax,Vytorin,folicacid,lunesta,Tramadol
 
JOB 5:18 For he wounds, but he also binds up; he injures, but his hands also heal.


mom46
Veteran Member


Date Joined Dec 2004
Total Posts : 8198
   Posted 6/14/2008 1:01 PM (GMT -7)   
Hi Everyone,
   I had my first evualation on Friday. I started off with a written questionaire of about 500 true/false questions...... confused . Alot of them were off the wall questions and I had to laugh at some..... tongue .
   After that he called me in his office and got the background history...work/school/medical of me and family. Then he told me to remember 3 words he gave me and started asking all kinds of other things. After that torture he ask me what the 3 words were.....LOL, like I would remember...I did get one out of three.... yeah .
   He said I would probably have 2 or 3 more sessions for about an hour. The next one is on Wednesday. I asked him the reason my rheumy sent me to him and he said it was for cognitive function evualation. Hopefully, after all this he will be able to determine something.
   I will let you all know how it goes on wednesday. Take care!
                                                               Love, Babs
 
Dx: Lupus,RLS,RA,Asthma,Fibro,Sjogren's,Raynaud's,Divertic, Stroke,Atherosclerosis,Seizures,Neuropathy,CAD
Meds:arava,prednisone,plavix,aspirin,protonix,,zanaflex,xanax,
mirapex,advair,foxamax,Vytorin,folicacid,lunesta,Tramadol
 
JOB 5:18 For he wounds, but he also binds up; he injures, but his hands also heal.


Lynnwood
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Date Joined May 2005
Total Posts : 7019
   Posted 6/14/2008 6:31 PM (GMT -7)   
Yup, that's basically what I'm being evaluated for....be interesting to see how similar or different our tests turn out to be!

Lynnwood, Co-Moderator: Lupus Forum
SLE(’00), Sjogren's Syndrome, Raynaud's Syndrome, SAD, Depression, Herpes Simplex 1
Piroxicam, Plaquenil, Prednisone(was 15mg, now 8mg), Cellcept, Xanax, Trazodone, Boniva(3mth shot), Wellbrutrin SR, Valtrex
Links: DIAGNOSING LUPUS (4 of 11), LUPUS INFORMATION, LUPUS RESOURCES, Donate to HealingWell, Drug Interactions


AlwaysRosie
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Date Joined Jan 2005
Total Posts : 8616
   Posted 6/15/2008 12:05 AM (GMT -7)   
This is extremely interesting. I'm watching this topic and curious to see how things go for each of you.

I've been too chicken to bring up the cognitive issues with my docs. Thinking it will be a wild goose chase and I'll have more doctor visits, tests and no conclusion.

I hope you both benefit from this evaluation. It sounds like an exhausting affair.

Blessings!

In His Grip

AlwaysRosie           "We can't control the waves, but we can learn how to surf!!"

Psalms 139

Co-Moderator - Lupus Forum

UCTD, Inflammatory Arthritis, Diverticulosis, (recent dx - Sjogrens, Crohn’s 4/08)

Clickable Links:  Lupus Resources    Lupous.Org   Lupus Criteria (4 of 11)   Lupus Chapter Locator


hippimom2
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   Posted 6/15/2008 7:47 AM (GMT -7)   
My brain hurts just reading about both of your first appointments, lol. I'll also be interested to hear about the follow up appointments and how they go.
Diagnosis:  UCTD (lupus) 2006; Raynauds 2006; Sjogren's 2006; lupus symptoms began 2003; UC 2008; CFS 1991; Mono 1985
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PattyLatty
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Date Joined Mar 2006
Total Posts : 2570
   Posted 6/15/2008 9:41 PM (GMT -7)   
Babs and Lynnwood, I'm wishing both of you all the best and pray that all of your tests come back normal. I've been worried about my memory and scheduled a neuropsych work-up but before they would see me they sent me to my neurologist. After he tested me he said my memory was normal and he didn't recommend the neuropsych workup but it was a nightmare going through all the worry. So I kind of understand what you guys are going through and I'll say a prayer for each of you. Please keep us informed of the results.

Love,

Pat
Lupus, Sjogren's, osteoarthritis, fibro, renauds, restless leg, hiatal hernia, double vision, migraines, costocondritis.
cellcept, neurontin, prednisone, plaquenil, synthroid, triamterene, tramadol, actonel, tri-est, imitrex, cymbalta, lunesta, multivitamin, calcium w vit D, fish oil, aspirin


AlwaysRosie
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Date Joined Jan 2005
Total Posts : 8616
   Posted 7/1/2008 1:20 AM (GMT -7)   
Hey Babs and Lynnwood . . . ..

Just wondering how the tests are going ??????

Blessings!

In His Grip

AlwaysRosie           "We can't control the waves, but we can learn how to surf!!"

Psalms 139

Co-Moderator - Lupus Forum

UCTD, Inflammatory Arthritis, Diverticulosis, (recent dx - Sjogrens, Crohn’s 4/08)

Clickable Links:  Lupus Resources    Lupous.Org   Lupus Criteria (4 of 11)   Lupus Chapter Locator


Lynnwood
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Date Joined May 2005
Total Posts : 7019
   Posted 7/1/2008 10:02 AM (GMT -7)   
My tests didn't seem to be at all directed toward the question my attorney who sent me there wanted resolved, which was " determine what functional capability is possible in a 4-hour work period." I spent from 9:30-4 doing the testing, on a day when I had some mild vertigo going on - just enough to have to get a ride to the drs office.

They sat me directly under an air conditioning vent, beside a 7th story open window, with a giggly tester who laughed when I asked about turning off the a/c saying "at least you brought a jacket, lots of people come in with nothing to bundle in" -- how are they qualified to test anyone when they can't even figure out the a/c is at too low a temp? And a 7th story window when you have vertigo, trees blowing & moving beneath you? ARG

Bunch of normal tests, plus a couple of bizarre ones; "why do we have child labor laws?", "who was the president during the civil war?" Personality tests, logic, math, reading comprehension, etc.

And then, after hurrying to get the testing done in June for insurance reasons -- the doctor is going on vacation and can't talk to you about these until July 17th!!!! So at least another month till any progress can be made on challenging my disability insurance company!!!!

Babs, have you gotten any results from your tests yet? Hope it's more helpful than mine have been so far.

Lynnwood, Co-Moderator: Lupus Forum
SLE(’00), Sjogren's Syndrome, Raynaud's Syndrome, SAD, Depression, Herpes Simplex 1
Piroxicam, Plaquenil, Prednisone(was 15mg, now 8mg), Cellcept, Xanax, Trazodone, Boniva(3mth shot), Wellbrutrin SR, Valtrex
Links: DIAGNOSING LUPUS (4 of 11), LUPUS INFORMATION, LUPUS RESOURCES, Donate to HealingWell, Drug Interactions


AlwaysRosie
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   Posted 7/1/2008 10:38 AM (GMT -7)   
AKKKKKKK!!! Lynnwood . . . that sounds SO frustrating . . . but after all that, I hope there is some blessing in the testing and the outcome to help you get closer to some helpful results.

Will be waiting for updates as you progress with this nightmare.

Blessings!

In His Grip

AlwaysRosie           "We can't control the waves, but we can learn how to surf!!"

Psalms 139

Co-Moderator - Lupus Forum

UCTD, Inflammatory Arthritis, Diverticulosis, (recent dx - Sjogrens, Crohn’s 4/08)

Clickable Links:  Lupus Resources    Lupous.Org   Lupus Criteria (4 of 11)   Lupus Chapter Locator


mom46
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Date Joined Dec 2004
Total Posts : 8198
   Posted 7/1/2008 6:02 PM (GMT -7)   
Lynn,
   My testing is basically on the same lines as yours except mine is drawn out. I have already been in 3 times and was suppose to go today but have some swollen glands in my neck. It seems like each time I go the worse my memory is...... confused . I hope this next visit will be my last.
   Let us know what you find out.
                                                                                 Babs
 
Dx: Lupus,RLS,RA,Asthma,Fibro,Sjogren's,Raynaud's,Divertic, Stroke,Atherosclerosis,Seizures,Neuropathy,CAD
Meds:arava,prednisone,plavix,aspirin,protonix,,zanaflex,xanax,
mirapex,advair,foxamax,Vytorin,folicacid,lunesta,Tramadol
 
JOB 5:18 For he wounds, but he also binds up; he injures, but his hands also heal.


mom46
Veteran Member


Date Joined Dec 2004
Total Posts : 8198
   Posted 7/21/2008 1:49 PM (GMT -7)   
Hi Everyone!
    I just wanted to let you know I got my results on the neuropsych exam. He says I'm stressed, depressed and in denial. Well, I knew I was stressed, didn't know I was depressed or in denial...lol. He wants to see me on a regular basis and thinks I should be taking anti-depressants.
    Anyway thats the results. I sure miss you all!! Hope everyone is doing as well as can be expected. Take care all and know that you are all in my thoughts and prayers always.
                                                                          Love, Babs
 
Dx: Lupus,RLS,RA,Asthma,Fibro,Sjogren's,Raynaud's,Divertic, Stroke,Atherosclerosis,Seizures,Neuropathy,CAD
Meds:arava,prednisone,plavix,aspirin,protonix,,zanaflex,xanax,
mirapex,advair,foxamax,Vytorin,folicacid,lunesta,Tramadol
 
JOB 5:18 For he wounds, but he also binds up; he injures, but his hands also heal.


Lynnwood
Forum Moderator


Date Joined May 2005
Total Posts : 7019
   Posted 7/21/2008 2:26 PM (GMT -7)   
I forgot to post here - my tests said I do have significant cognitive dysfunction, particularly in the learning, memory, and motor response areas. And also that I'm depressed and need therapy and anti-depressants.

I think the "need therapy and antidepressants" is standard so they can keep getting paid!!!! I can't imagine anyone with Lupus NOT being depressed, esp. if they have active symptoms.

My neuropsych also went further and said my "emotional state" may be worsening any symptoms I might have...I think that's based on the fact that stress aggravates my symptoms, so I am hyper alert to stress...seems pretty darn normal to me!

Crazy, isn't it? Babs, Will your insurance let you get the care the neuropsych is recommending?

Lynnwood, Co-Moderator: Lupus Forum
SLE(’00), Sjogren's Syndrome, Raynaud's Syndrome, SAD, Depression, Herpes Simplex 1
Piroxicam, Plaquenil, Prednisone(was 15mg, now 8mg), Cellcept, Xanax, Trazodone, Boniva(3mth shot), Wellbrutrin SR, Valtrex
Links: DIAGNOSING LUPUS (4 of 11), LUPUS INFORMATION, LUPUS RESOURCES, Donate to HealingWell, Drug Interactions


jhmom
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Date Joined Oct 2004
Total Posts : 2244
   Posted 7/21/2008 2:27 PM (GMT -7)   
(((( Babs )))) you don't sound depressed or in denial.... he just wants to see you again, lol!!!!! Maybe the meds will help you somehow.

We miss you too sis, love ya, take care
Stacie

Trust in the Lord with all thine heart, and lean not unto thine own understanding ~ Proverbs 3:5 ~

DX: Hashimoto's, Celiac Disease, Raynaud's, Lupus and Sjogrens
RX: Imuran, Plaquenil, Methotrexate, Flexeril, Piroxicam, Levoxyl, Folic Acid, Lortab (as needed) and magic mouthwash (for mouth sores)

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