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misscali
Regular Member


Date Joined Feb 2007
Total Posts : 154
   Posted 6/15/2008 2:09 PM (GMT -7)   
hey everyone,

for those of you that have fibromyalgia, does it just suddenly appear or is it a gradual buildup of pain?
i went to the gym about 3 days ago and the next day I thought I was just experiencing some muscle soreness but it has not gone away since and it seems to be getting worse. I wonder if I am being a hypochondriac but it seems like my eyes are hot and burning kind of, headache and my whole body feels stiff, weak and sore.

I thought maybe my INR might be too high because i have been bruising a lot more easily but it seems that my whole body just hurts to the touch and even getting up and sitting down seems like a huge effort.

Is this what fibromyalgia feels like and would it just appear over night or could it be something else?? i would really appreciate some insight or something I am feeling so horrible!!!

Ginny
Veteran Member


Date Joined Feb 2003
Total Posts : 5514
   Posted 6/15/2008 6:15 PM (GMT -7)   
Hi Misscali,
 
You've touched on a good topic.  I have fibro and lupus.  For me, the fibro did seem to come on very suddenly.  I had my diagnosis of lupus first, and then about 4 months later, the fibro dx came.  Like you are experiencing, I had a lot of soft tissue pain. Just the slightest bump, or poke KILLS!!!!  It's like I am one huge bruise.  My arms, thighs, and ribs are the worst for pain if I get poked or bumped into. 
 
Often, fibro and lupus are so much alike that it's really difficult to determine what is flaring.  They present almost the exact same symptoms of pain, fatigue, etc.  For me, the only way to know if it's fibro is if I increase my prednisone, and I feel worse, then it's fibro.  If I increase my prednisone and I feel better, then it was lupus.  Fibro and prednisone don't like each other. Fibro isn't an inflammatory disorder.  So prednisone doesn't work on helping it.  It makes it worse actually.  Are you on prednisone?
 
Your symptoms certainly could be fibro.  The only way to know is to see your rheumy about it.  They'll do a pressure point test and record your symptoms.  There is no blood test for it, unfortunately.  Fibro IS horrible!!  I loathe it...... It almost gives me more problems than my lupus most of time.
 
I sure hope you get some answers.  A warm or hot bath is always a good idea if you're in quite a bit of discomfort.  Baths really help me. 
I can do anything through Jesus Christ who strengthens me. I have learned in whatever state I am in,to be content. Phillipians 4:11-13

34 years old. Diagnosed with lupus in 2000. Fibromyalgia, anti-phospholipid syndrome(APS)(stroke),Sjogren's, Raynaud's, seizure disorder-(miraclulously disappeared!), Libman Sach's Endocarditis, vasculitis, sacroiliitis, arthritis (neck) . Prednisone, Imuran, Coumadin, Clobazam, Amitriptyline, didrocal, Cozaar, calcium, Cykolokapron, multi-vitamin, vitamin D, Magnesium, vitamin B6, Acidophilus


AlwaysRosie
Veteran Member


Date Joined Jan 2005
Total Posts : 8616
   Posted 6/15/2008 6:21 PM (GMT -7)   
((((((( Miss Cali )))))))))))

I'm glad Ginny posted some helpful info. I don't know much about fibro . . . but wanted to send you a big cyber hug and tell you I'm sorry you are having such a hard time.

Blessings!

In His Grip

AlwaysRosie           "We can't control the waves, but we can learn how to surf!!"

Psalms 139

Co-Moderator - Lupus Forum

UCTD, Inflammatory Arthritis, Diverticulosis, (recent dx - Sjogrens, Crohn’s 4/08)

Clickable Links:  Lupus Resources    Lupous.Org   Lupus Criteria (4 of 11)   Lupus Chapter Locator


Lynnwood
Forum Moderator


Date Joined May 2005
Total Posts : 7019
   Posted 6/15/2008 6:33 PM (GMT -7)   
You might want to pop over to the HW fibro board
www.healingwell.com/community/default.aspx?f=24 and ask there....I don't really understand the fibro stuff -- it all seems like mystery & magic to me.

Sorry you are feeling bad...

Cheers,

Lynnwood, Co-Moderator: Lupus Forum
SLE(’00), Sjogren's Syndrome, Raynaud's Syndrome, SAD, Depression, Herpes Simplex 1
Piroxicam, Plaquenil, Prednisone(was 15mg, now 8mg), Cellcept, Xanax, Trazodone, Boniva(3mth shot), Wellbrutrin SR, Valtrex
Links: DIAGNOSING LUPUS (4 of 11), LUPUS INFORMATION, LUPUS RESOURCES, Donate to HealingWell, Drug Interactions


misscali
Regular Member


Date Joined Feb 2007
Total Posts : 154
   Posted 6/15/2008 9:37 PM (GMT -7)   
hey guys,

thank you so much for the support and advice i really appreciate it!

I called my rheumy so hopefully she'll be getting back to me soon. I am taking predisone right now so I'll see if it either helps or hurts my symptoms...describing yourself as one giant bruise is exactly right! thats how i feel right now...
i have read that fibro and sleep disorders are related and I have been having a terrible time sleeping so it might make sense that this syndrome is appearing now. However, I did take some pain meds and it helped a bit with the soreness (but made me soo drowsy). I also read somewhere that pain meds dont really help fibromyalgia usually so does this also mean that it might be a flare?
I'm still new to the flaring so I dont really know how my body feels when I'm flaring...

one last question..does anyone have any advice for sleeping!! i feel like an insomniac..i have such a terrible time sleeping!! i either cant fall asleep or cant stay asleep...and totally exhausted during the day, but still toss and turn at night!! does anyone have any advice...i feel like ive tried everything!

PattyLatty
Veteran Member


Date Joined Mar 2006
Total Posts : 2570
   Posted 6/15/2008 9:46 PM (GMT -7)   
Misscali, I had insomnia so bad when I was on a high dose of prednisone that I finally succumbed to taking lunesta. I recently got off of it because I didn't want to become dependent on it. What does help is a long, warm bubble bath, soft music, and then a cup of hot decaffinated tea. Your doctor may have some other suggestions for you.
Lupus, Sjogren's, osteoarthritis, fibro, renauds, restless leg, hiatal hernia, double vision, migraines, costocondritis.
cellcept, neurontin, prednisone, plaquenil, synthroid, triamterene, tramadol, actonel, tri-est, imitrex, cymbalta, lunesta, multivitamin, calcium w vit D, fish oil, aspirin


PattyLatty
Veteran Member


Date Joined Mar 2006
Total Posts : 2570
   Posted 6/15/2008 9:47 PM (GMT -7)   
I neglected to mention that I take 1200 mg of neurontin before bedtime for restless leg. It also works to control some of my pain and helps me get relaxed by bedtime.
Lupus, Sjogren's, osteoarthritis, fibro, renauds, restless leg, hiatal hernia, double vision, migraines, costocondritis.
cellcept, neurontin, prednisone, plaquenil, synthroid, triamterene, tramadol, actonel, tri-est, imitrex, cymbalta, lunesta, multivitamin, calcium w vit D, fish oil, aspirin


Ginny
Veteran Member


Date Joined Feb 2003
Total Posts : 5514
   Posted 6/18/2008 7:53 AM (GMT -7)   
Hi Misscali,
 
Oh, I know what it's like to have those sleep issues.  One medication you can talk to your rheumy about is called Amytriptyline.  It's mainly used as an anti depressant in higher doses, but at a low dose (20mg), it's used as a sleep aid and a pain med!!  I've been on it for 6 years now to help manage the sleeping and pain with my fibro and it has worked like a dream (pun intended!)  It doesn't work for everyone, but it's worth asking about
 
I hope you start coming out of this flare soon.  It is so hard to live with.  I can relate totally.
I can do anything through Jesus Christ who strengthens me. I have learned in whatever state I am in,to be content. Phillipians 4:11-13

34 years old. Diagnosed with lupus in 2000. Fibromyalgia, anti-phospholipid syndrome(APS)(stroke),Sjogren's, Raynaud's, seizure disorder-(miraclulously disappeared!), Libman Sach's Endocarditis, vasculitis, sacroiliitis, arthritis (neck) . Prednisone, Imuran, Coumadin, Clobazam, Amitriptyline, didrocal, Cozaar, calcium, Cykolokapron, multi-vitamin, vitamin D, Magnesium, vitamin B6, Acidophilus


AlwaysRosie
Veteran Member


Date Joined Jan 2005
Total Posts : 8616
   Posted 6/18/2008 10:59 AM (GMT -7)   
Hey Cali,

There was a recent sleep/insomnia topic. I'll find it and bump it up for you.

Some sleepy dust for you sis!! Just sprinkle a pinch in each eye before bed. Once you are given sleepy dust, you will always have an endless supply. Share it freely!! LOL . . . I used to toss pretend "sleepy dust" at my kids at night!! They would throw their hands in front of their face and block it!!, then they'd laugh and go to sleep!

Blessings!

In His Grip

AlwaysRosie           "We can't control the waves, but we can learn how to surf!!"

Psalms 139

Co-Moderator - Lupus Forum

UCTD, Inflammatory Arthritis, Diverticulosis, (recent dx - Sjogrens, Crohn’s 4/08)

Clickable Links:  Lupus Resources    Lupous.Org   Lupus Criteria (4 of 11)   Lupus Chapter Locator

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