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New Member

Date Joined Jun 2008
Total Posts : 2
   Posted 6/18/2008 10:43 AM (GMT -6)   
I was just told on Thursday that I have lupus...and thank god! I have been sick for a little over two years and been in the hospital about 11 times I think is the count now, so it is nice for them to at least tell me something. I have seen almost every "specialist" in the medical field except the one I needed. It has been so nice to read all your stories and realize I am not the only one that has all these crazy things happening to me. I am so glad I found this site thank you all for being here.

Regular Member

Date Joined Oct 2007
Total Posts : 323
   Posted 6/18/2008 11:07 AM (GMT -6)   
ColdBlue, Welcome to the forum... It does take awhile to figure out what is going on and so many docs. I think alot of us go through that, well at least you have the diagnoses hopefully the meds. will help you. I'm glad you found this sight you will find alot of nice people on here that will answer any question that you may have. Debbie
Asthma,Lupus,H.B.P.,Dermatomyostis,Gastrparsis,Acid Reflux   
                Panic Attacks,Osteopenia,Thyroid  
  Advair,Diovan,Actonel,Prednisone on and off Eye Drops,VitaminD.     

Veteran Member

Date Joined Jan 2005
Total Posts : 8616
   Posted 6/18/2008 12:54 PM (GMT -6)   
Welcome Blue!!

Glad you found us!! I can appreciate your reaction to your dx. Its nice to have something to aim at and its nice to have a name for your problems. I hope your treatment plan is giving you some relief.


In His Grip

AlwaysRosie           "We can't control the waves, but we can learn how to surf!!"

Psalms 139

Co-Moderator - Lupus Forum

UCTD, Inflammatory Arthritis, Diverticulosis, (recent dx - Sjogrens, Crohn’s 4/08)

Clickable Links:  Lupus Resources    Lupous.Org   Lupus Criteria (4 of 11)   Lupus Chapter Locator

New Member

Date Joined Jun 2008
Total Posts : 2
   Posted 6/19/2008 10:23 AM (GMT -6)   
Thank you so much for your reply. I am so glad I found this place.

Forum Moderator

Date Joined May 2005
Total Posts : 6923
   Posted 6/19/2008 8:07 PM (GMT -6)   
Welcome to Healing Well -

Any questions you have, someone here probably has experienced the same thing and has some ideas, so ask away...


Lynnwood, Co-Moderator: Lupus Forum
SLE(’00), Sjogren's Syndrome, Raynaud's Syndrome, SAD, Depression, Herpes Simplex 1
Piroxicam, Plaquenil, Prednisone(was 15mg, now 8mg), Cellcept, Xanax, Trazodone, Boniva(3mth shot), Wellbrutrin SR, Valtrex
Links: DIAGNOSING LUPUS (4 of 11), LUPUS INFORMATION, LUPUS RESOURCES, Donate to HealingWell, Drug Interactions

New Member

Date Joined Jun 2008
Total Posts : 7
   Posted 6/22/2008 4:33 PM (GMT -6)   
Blue, I'm also a newbee. I remember when I was first dx. I have had one symptom or another for about 25 years. I was still overwelmed when I was told. I had friends and family who even though I looked fine knew I was sick and understood. It can be tough but you can do it too. Good health to all uni-corn

Veteran Member

Date Joined Feb 2003
Total Posts : 5514
   Posted 6/22/2008 6:06 PM (GMT -6)   
Hi ColdBlue,
Welcome to the forum. We're all here to help answer questions and provide support.  I'm glad you feel at home here!  Take good care,
I can do anything through Jesus Christ who strengthens me. I have learned in whatever state I am in,to be content. Phillipians 4:11-13

34 years old. Diagnosed with lupus in 2000. Fibromyalgia, anti-phospholipid syndrome(APS)(stroke),Sjogren's, Raynaud's, seizure disorder-(miraclulously disappeared!), Libman Sach's Endocarditis, vasculitis, sacroiliitis, arthritis (neck) . Prednisone, Imuran, Coumadin, Clobazam, Amitriptyline, didrocal, Cozaar, calcium, Cykolokapron, multi-vitamin, vitamin D, Magnesium, vitamin B6, Acidophilus

Regular Member

Date Joined Oct 2007
Total Posts : 184
   Posted 6/24/2008 2:50 PM (GMT -6)   
Welcome ColdBlue...
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