Kidney Biopsy....Is there anything I can do to avoid this procedure?

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meeks
Regular Member


Date Joined Dec 2007
Total Posts : 27
   Posted 6/18/2008 3:36 PM (GMT -7)   
Bad news guys...the lupus had begun to attack my kidneys, so according the Nepherologist the best thing for me is to have a biopsy. I really, really, really, really don't want to have a hole poked in me for nothing...I'm not in the mood for another piercing nono tongue
 
anyway I was hoping that there are alternatives as far as by passing the biopsy or is it a must to get this thing under some control.
 
- Meeks
 

PS- I'm going to my first Rhumy visit on Fri. is there anything I should let him/her know about this upcoming procedure, do I spill the beans on EVERYTHING I've experienced w/ the lupus since dx, do I tell him/her only what's been happening as of recently???


Diagnosis :Lupus (SLE)- Feb.2005.
Meds: Prednisone - 20mg-5mg (taper down since April)
Tramadol 50mg
Furosemide 40 mg
Benadryl 25mg
*I've been prescribed other drugs, but I don't like how they make me feel..Sulfalalazine especially!!!
Vitamins:  Vitamin C, E and "Hair, skin & nails" vitamins.

Usual mood: exhausted w/ a side of irratation. >:-p

Outlook: keep everything in prespective, take the day as it comes. God won't give you more than you can handle

 


 


sjkly
Veteran Member


Date Joined Dec 2007
Total Posts : 2113
   Posted 6/18/2008 3:51 PM (GMT -7)   
Oh, you must tell your rhuemy everything. In chronological order if you can manage-I would write it down and hand it to the doc rather than try to tell the story. I don't know of anyway out of the kidney biopsy but maybe someone else will.
Sj

AlwaysRosie
Veteran Member


Date Joined Jan 2005
Total Posts : 8616
   Posted 6/18/2008 3:52 PM (GMT -7)   
(((((((((( Meeks ))))))))))))

Sorry Meeks . . . I bet that is really scary. There will be some others along who can tell you what to expect. I think the information provided by the biopsy is really important for your treatment. There are different types of kidney disease and the biopsy declares what type.

At your rheumy visit . .. tell ALL. Make a list of all the symptoms, meds, proceedures, doctors from the past and a second list of current symptoms. I even provide a list of doctors, addresses and phone numbers. Bring in all your copies of blood work and tests to avoid retesting some of them. The rheumy WILL order tons of blood work, but some of it can be used from former results or it may be helpful to compare the old/ongoing results. There is more info on preparing for a doctor appointment in a post in "Lupus Resources" link is at the end of my signature.

Keep us posted.

Blessings!

In His Grip

AlwaysRosie           "We can't control the waves, but we can learn how to surf!!"

Psalms 139

Co-Moderator - Lupus Forum

UCTD, Inflammatory Arthritis, Diverticulosis, (recent dx - Sjogrens, Crohn’s 4/08)

Clickable Links:  Lupus Resources    Lupous.Org   Lupus Criteria (4 of 11)   Lupus Chapter Locator


momofltlbrat
Regular Member


Date Joined Apr 2007
Total Posts : 164
   Posted 6/18/2008 4:18 PM (GMT -7)   
Meeks,
 
I normally post on the MS site, but my dx is in limbo again, leaning towards lupus.  I have been reading this site for a few weeks.
 
Anyway, part of my dx has been a kidney biopsy.  While I was scared going in, it really was nothing.  They do a CAT scan to see where the kidney is, numb the spot, give you something that makes you so relaxed you don't remember a thing.  Then they keep you on your back for awhile, send you home to rest on your back for the day.  I wasn't really sore or anything.  The only problem I had was a moved 3 days later and I lifted boxes I shouldn't have, and that made me a little sore.  They told me some people pass blood when urinating after the procedure, I didn't even do that.  It really was a simple procedure, easier than the lumbar puncture I did.
 
As for the rheumy, don't hold back any info, tell him/her the symptoms, meds and any other pertinent info.  I keep a small notebook of symptoms between visits and summarize it for the doc.  It saves time if they just read it over, and I don't forget anything.
 
Good luck.  Let us know how the appt goes.
 
Hugs,
Debbie

sweetcheekione
New Member


Date Joined Jun 2008
Total Posts : 14
   Posted 6/18/2008 4:34 PM (GMT -7)   
   meeks
 
     As frightening as it is to have yet another test.....another proceedure, the biopsy is really nothing to worry about...........I had one done last week.  Just as Debbie said it s really not to invasive and recovery isn't to long and drawn out.  I was in and out within 4 hours.......The actual spot they used felt no worse then a mosquito bite.........(Coming from Canada they can be huge)..........haha.
 
   But I do know how you feel.........And I wish you the best......hang in there.  Will be thinking about you and would love to hear back from you after it is all over.  My results are not in yet but apparently won't take to long.
 
Best of Luck
Cheeki tongue
     ~*Cheeki*~


meeks
Regular Member


Date Joined Dec 2007
Total Posts : 27
   Posted 6/18/2008 5:44 PM (GMT -7)   
thank you guys for being a beacon of information.........ya'll are AWESOME.
Diagnosis :Lupus (SLE)- Feb.2005.
Meds: Prednisone - 20mg-5mg (taper down since April)
Tramadol 50mg
Furosemide 40 mg
Benadryl 25mg
*I've been prescribed other drugs, but I don't like how they make me feel..Sulfalalazine especially!!!
Vitamins:  Vitamin C, E and "Hair, skin & nails" vitamins.

Usual mood: exhausted w/ a side of irratation. >:-p

Outlook: keep everything in prespective, take the day as it comes. God won't give you more than you can handle

 


 


MJLD
Veteran Member


Date Joined Jul 2007
Total Posts : 1048
   Posted 6/18/2008 7:09 PM (GMT -7)   
I just wanted to reassure you about the kidney biopsy.  I've had 3 of them and they're really not that bad.  They are soooo necessary!  THey give a definitive diagnosis that labs alone wont and give a more clear cut course (and therefore effective) treatment.  Please try not to stress about it.  They will give you something that will relax you and make you not care!  Good luck, keep us posted.  Judy

meeks
Regular Member


Date Joined Dec 2007
Total Posts : 27
   Posted 6/20/2008 1:45 PM (GMT -7)   
Update: the Rhuemy was awesome. very informative, throrough and concerned
Diagnosis :Lupus (SLE)- Feb.2005.
Meds: Prednisone - 20mg-5mg (taper down since April)
Tramadol 50mg
Furosemide 40 mg
Benadryl 25mg
*I've been prescribed other drugs, but I don't like how they make me feel..Sulfalalazine especially!!!
Vitamins:  Vitamin C, E and "Hair, skin & nails" vitamins.

Usual mood: exhausted w/ a side of irratation. >:-p

Outlook: keep everything in prespective, take the day as it comes. God won't give you more than you can handle

 


 


DQueen
Regular Member


Date Joined Jun 2008
Total Posts : 90
   Posted 6/25/2008 3:18 PM (GMT -7)   
I had a biopsy a little over a year ago, and believe me, I wanted it about as bad as a hole in the head! I was SO scared! But honestly it is not nearly as bad as you are imagining. The worst part is the novacaine shots before, and having to lay flat for several hours after. I know it is scary, but anticipation is the worst. Good luck!
Lots of Love!
DQueen
 
 
 
Lupus, Rheumatoid Arthritis, High Blood Pressure, Anemia, Congestive Heart Failure, Kidney Failure


AlwaysRosie
Veteran Member


Date Joined Jan 2005
Total Posts : 8616
   Posted 6/25/2008 4:46 PM (GMT -7)   
Hi Meeks!!! GREAT!! Its such a blessing to have a doc that you feel confidence in.

Let us know how the biopsy goes!

Blessings!

In His Grip

AlwaysRosie           "We can't control the waves, but we can learn how to surf!!"

Psalms 139

Co-Moderator - Lupus Forum

UCTD, Inflammatory Arthritis, Diverticulosis, (recent dx - Sjogrens, Crohn’s 4/08)

Clickable Links:  Lupus Resources    Lupous.Org   Lupus Criteria (4 of 11)   Lupus Chapter Locator

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