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Veteran Member

Date Joined Jul 2007
Total Posts : 1048
   Posted 6/18/2008 9:15 PM (GMT -6)   
Well, when I saw my nephrologist on last Wednesday, she sent me straight to the hospital and I just got home a couple of hours ago.  I was in a massive flare and had to have 2 units of blood.  I was sooooo short of breath because my hemaglobin was really low.  I had several factors contributing.  I had bleeding ulcers, bone marrow suppression from the lupus and of course meds contributing.  Then I had hemmorhaged.  THey took off 25 pounds of fluid in 7 days!  Needless to say, I am a little weak.
I have to say, I received the most awesome care!  I was so impressed and pleased with the standard of care.  My kidney function dropped to 16%,  but it came back up to 34%, so we're just watching and waiting.  I am very thankful to be home.  I hope you all are doing well.  Love and prayers, Judy

Audrey Ann
Veteran Member

Date Joined Jul 2005
Total Posts : 815
   Posted 6/18/2008 10:42 PM (GMT -6)   

I am so happy that they caught your fluid build-up so quickly! You have some great doctors, and, it sounds, a great hospital, too! Please be careful and take good care!
Audrey Ann
Lupus and RA and LOTS of Medications!


Veteran Member

Date Joined Jan 2005
Total Posts : 8616
   Posted 6/20/2008 2:42 AM (GMT -6)   
((((((((((( Judy )))))))))

I hope you are feeling better soon. It sounds like you've had a rough time of it!!

Keep us posted sis!


In His Grip

AlwaysRosie           "We can't control the waves, but we can learn how to surf!!"

Psalms 139

Co-Moderator - Lupus Forum

UCTD, Inflammatory Arthritis, Diverticulosis, (recent dx - Sjogrens, Crohn’s 4/08)

Clickable Links:  Lupus Resources    Lupous.Org   Lupus Criteria (4 of 11)   Lupus Chapter Locator

Veteran Member

Date Joined Feb 2003
Total Posts : 5514
   Posted 6/20/2008 10:17 AM (GMT -6)   
Judy, oh my goodness...  I'm glad you're home and doing okay.  That sounds like an awful thing you went through.  Good thing your doctor sent you to the hospital asap.
Have a restful weekend and take care,
I can do anything through Jesus Christ who strengthens me. I have learned in whatever state I am in,to be content. Phillipians 4:11-13

34 years old. Diagnosed with lupus in 2000. Fibromyalgia, anti-phospholipid syndrome(APS)(stroke),Sjogren's, Raynaud's, seizure disorder-(miraclulously disappeared!), Libman Sach's Endocarditis, vasculitis, sacroiliitis, arthritis (neck) . Prednisone, Imuran, Coumadin, Clobazam, Amitriptyline, didrocal, Cozaar, calcium, Cykolokapron, multi-vitamin, vitamin D, Magnesium, vitamin B6, Acidophilus

Veteran Member

Date Joined Jul 2007
Total Posts : 1048
   Posted 6/20/2008 2:35 PM (GMT -6)   
I'm much better, except, I now how cellulitis in my left leg. Has anyone ever had this? It is painful. It feels like a sunburn. It is covering most of my left lower leg. I had to have a venous doppler yesterday to rule out dvt, thankfully, it isn't, now i'm on antibiotics. I'm soooo weak! Hope you all are well. Judy

Regular Member

Date Joined Aug 2007
Total Posts : 206
   Posted 6/20/2008 6:59 PM (GMT -6)   
Wow, that is really scairy, but I'm so glad to hear you are doing better.  I learn things everyday on here that I had no idea that Lupus could do to us.  Hope you continue to get better.
"Challenges make you discover things about yourself you never really knew."
SLE and Class II Lupus Nephritis

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