Lynnwood, Co-Moderator: Lupus ForumSLE(’00), Sjogren's Syndrome, Raynaud's Syndrome, SAD, Depression, Herpes Simplex 1Piroxicam, Plaquenil, Prednisone(was 15mg, now 8mg), Cellcept, Xanax, Trazodone, Boniva(3mth shot), Wellbrutrin SR, ValtrexLinks: DIAGNOSING LUPUS (4 of 11), LUPUS INFORMATION, LUPUS RESOURCES, Donate to HealingWell, Drug Interactions
I live in Arizona so it is really hot here. We also have a pool but we have a nice palm tree behind it so we get shade. Also when it is really hot we put up umbrellas on stands so that there is shade for me to get under. I have a hard time just with the heat, it is enough to make me exhausted when I am out in it and the sun just adds to it. I usually only go swimming in the early morning or night time to avoid the heat.
Thanks for the info...I'm just SO tired of this. This was sort of the straw that broke the camel's back this week... Stupid, I know, but I'm having a hard time doing the glass half full thing right at the moment. But - I'll get myself straightened out.
I should probably call my doc tomorrow (as I sit here - my shoulder is just throbbing). But - I don't want to because I know he will up my prednisone again. I was trying so hard to get off of it and had a set back in March when I went in for bloodwork and everything is still elevated. So - have to stay on 5mg until I see him in July. Had high hopes of being off of it and trying to get some of the 30 pounds off that I put on. Instead - I just broke down and bought bigger clothes yesterday. He upped my methotrexate at the same time - so I'm on 20 mg now...and that seems like it is making my skin...like, really thin...it seems to tear easy. Hard to explain. And, I really don't want that upped again.
Just a lose - lose at this point.
Of course - it isn't helping that I was supposed to leave on a mission trip yesterday to Vancleave, Mississippi for Huricane Katrina Rebuilding. I was going to work in the kitchen this year because, obviously, I am not able to do the actual construction. But, the team made a decision to drive straight through - and I am not up to that. So - I had to bow out. And, I know - that is my decision, but I've been so upset about it. I've been on mission trips for probably the last eight years...it's just what I do...and, the past two have been down south for Hurricane Katrina recovery. Grrrrrrrrrrrrrrr! I'm just SO angry!
Enough complaining...doesn't help anyway.
Thanks again for everything...