has anyone felt a differnce in 2.5mg of predisone

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jessierose
Regular Member


Date Joined Jan 2008
Total Posts : 102
   Posted 6/22/2008 12:39 PM (GMT -7)   
 Hello,
my doctor is starting to taper me down of predisone even though my blood work is not great. I wasn't having joint pain at the time but a week later im having some joint pain also having pain in my legs. She said that she is going to change my Imuran to cellcept because she fells that the Imuran is not working for me. Has anyone had this Im starting to get depressed again.. sad
JessieRose
 
 
SLE, APS, Food Allergies, Gerd, Migrains
Prilosec, zoloft, Plaquenil, asprin, predisone, Imuran, noratriplyine.


Lynnwood
Forum Moderator


Date Joined May 2005
Total Posts : 7018
   Posted 6/22/2008 3:00 PM (GMT -7)   
Yes, I feel a difference with just 1 mg change in prednisone -- part of that is because I am at a low dose (9 mg) to start with.

I didn't have any results with over a year on Imuran but have had MIRACLE results with Cellcept.

Everyone seems to react differently to lupus and differently to the medications.

Hang in there,

Lynnwood, Co-Moderator: Lupus Forum
SLE(’00), Sjogren's Syndrome, Raynaud's Syndrome, SAD, Depression, Herpes Simplex 1
Piroxicam, Plaquenil, Prednisone(was 15mg, now 8mg), Cellcept, Xanax, Trazodone, Boniva(3mth shot), Wellbrutrin SR, Valtrex
Links: DIAGNOSING LUPUS (4 of 11), LUPUS INFORMATION, LUPUS RESOURCES, Donate to HealingWell, Drug Interactions


jessierose
Regular Member


Date Joined Jan 2008
Total Posts : 102
   Posted 6/22/2008 3:20 PM (GMT -7)   
really well that is exicting about cellcept! How long have you been on it. and did exeperience alot of side effects? thank you for responding.
Jessie
JessieRose
 
 
SLE, APS, Food Allergies, Gerd, Migrains
Prilosec, zoloft, Plaquenil, asprin, predisone, Imuran, noratriplyine.


sjkly
Veteran Member


Date Joined Dec 2007
Total Posts : 2113
   Posted 6/22/2008 3:28 PM (GMT -7)   
When my doc wanted me to start mtx and I did not want to she told me to cut my pred from 5 mgs to 2.5 mgs. Six days later I called and begged for the mtx I went from feeling really good with only an occasional swollen joint but really high CRP to four swollen joints not able to sleep because of the pain in just two days at the lower pred dose. The other four days were just me convincing myself that mtx was better than being sick all the time. So yes, 2.5 mgs can make a huge difference.
Sj

jessierose
Regular Member


Date Joined Jan 2008
Total Posts : 102
   Posted 6/22/2008 3:51 PM (GMT -7)   
im sorry to hear that. I have to keep tapering down to 10mg i wonder how im gonna feel next week. This really sucks Im so tired of being tired. thank you for the info.

one more question did you find that you retained fluid when decreasing?
JessieRose
 
 
SLE, APS, Food Allergies, Gerd, Migrains
Prilosec, zoloft, Plaquenil, asprin, predisone, Imuran, noratriplyine.


Ginny
Veteran Member


Date Joined Feb 2003
Total Posts : 5514
   Posted 6/22/2008 4:03 PM (GMT -7)   
Hi JessieRose,
 
Prednisone is a very powerful drug.  I feel a difference on a 1/2mg change in my dose.  Like Lynnwood mentioned, she feels a change on 1mg.  That's why it's so important to taper down very, very slowly.  Even a small change in the dose will make your body react in a positive or negative way.  So go slow!! Especially when you're entering the "low dose" ranges of 10mg or less.  Small tapers of .5 or 1mg will make big differences to you.
 
Good luck on the Cellcept! I've heard really good things about it!!

I forgot to answer your last question... I find that I retain less water at the lower doses, not more.  It could be different for each person though.  The best way to combat water retention is to actually drink more water.


I can do anything through Jesus Christ who strengthens me. I have learned in whatever state I am in,to be content. Phillipians 4:11-13

34 years old. Diagnosed with lupus in 2000. Fibromyalgia, anti-phospholipid syndrome(APS)(stroke),Sjogren's, Raynaud's, seizure disorder-(miraclulously disappeared!), Libman Sach's Endocarditis, vasculitis, sacroiliitis, arthritis (neck) . Prednisone, Imuran, Coumadin, Clobazam, Amitriptyline, didrocal, Cozaar, calcium, Cykolokapron, multi-vitamin, vitamin D, Magnesium, vitamin B6, Acidophilus


bigsanfer
Regular Member


Date Joined May 2008
Total Posts : 57
   Posted 6/23/2008 5:00 PM (GMT -7)   
Im having the same problem right now... I am tapering to 7.5 from 10mg of pred. Not fun at all.. Within one day I gained 5lb. in swelling and had very bad joint pain. Now I have been alternating the two hoping I can get off of this drug. The only thing different is Im starting mtx. Good luck with your tapering!

Medications: Prednisone 7.5mg. Plaquenil 300mg. Naproxen (for pain). Multivitamin. Calcium. Fish Oil.
15 years old. Lupus, Raynauds, and Hashimotos.


sjkly
Veteran Member


Date Joined Dec 2007
Total Posts : 2113
   Posted 6/23/2008 6:07 PM (GMT -7)   
bigsanfer,
the mtx is what finally let me get off pred. I took mtx for 8 weeks before attempting to taper then tapered right on schedule with no problems at all and have now been off pred for about two weeks.

Audrey Ann
Veteran Member


Date Joined Jul 2005
Total Posts : 815
   Posted 6/24/2008 7:26 PM (GMT -7)   
Good luck with your taper, JessieRose! I , also, notice water retention when I am tapering down from pred. I am on a low dose of pred right now, too, and my rheumy wants me to try to taper off completely. I have not had much luck with this, however, because I immediately experience increased joint pain and increased inflammation as soon as I go below 7 or 8 mg.

Good luck, also, with cellcept. I have read many great stories from members here who have done well on cellcept. I pray this works for you, too!
Prayers,
Audrey Ann
 
Lupus and RA and LOTS of Medications!
 


 


DQueen
Regular Member


Date Joined Jun 2008
Total Posts : 88
   Posted 6/25/2008 3:08 PM (GMT -7)   
CellCept works awesome for me! I am also tapering off prednisone. I was scared at first to try it too, but I really do think it is the right med for me right now. I hope it works as well for you. Keep us updated.
Lots of Love!
DQueen
 
 
 
Lupus, Rheumatoid Arthritis, High Blood Pressure, Anemia, Congestive Heart Failure, Kidney Failure

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