EPIDURAL SHOTS

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cry
Regular Member


Date Joined Jun 2006
Total Posts : 58
   Posted 6/24/2008 4:52 PM (GMT -6)   
                            Hi everyone !!! Haven't been on in months , was working , but needless to say can't do that anymore . My question is , does anyone else get epidural shot's for the nerves , I take celebrex every day and sufazine twice daily . Rumey use to give me steriod pack when pain got bad, now he is sending me for shots. My worry is , was getting the bad pain in left leg , now for 2 days I can't move my neck it hurts so bad and it feels like nerve pain to and to top it off epidural is wearing off for leg . My rumey is on vacation , so I 'm gone to have a ruff week ahead.
Oh I also need to know if anyone sees nurologist , and should I . I've been with my rumey for 2 and a half years and still don't have complete dx . Fibro , connective tissure , lupus ect . We bonce back and forth . Well would appreciate some advice . Also take 400 mg plaquenil , 100 mg trazodone , flexeril , zantadc , darvocet , tramadol , ect . PS sorry about spelling ,can't think to stright when in pain .

AlwaysRosie
Veteran Member


Date Joined Jan 2005
Total Posts : 8616
   Posted 6/24/2008 7:49 PM (GMT -6)   
Hi Cry,

Sorry you are having nerve pain. It is just aweful, isn't it?? Mine started like a hot knife down my leg. I had some physical therapy, traction and some spinal injections. I would have the injections and then have to lay flat for several hours. I had these once a week for three weeks. But they sure didn't block the pain. The pain got less intense but over the years it is still very much there in my hip and down my leg.

I'm so sorry you are dealing with this too. Lots of us have questionable dx. The important thing is that they are treating your symptoms. Sometimes these diseases are hard to differentiate because several can cause similar symptoms.

I did find that it is really important for me to position myself very carefully for sleep. I never liked sleeping on my back, but that is the only way to get away from the pain sometimes. I put one long pillow almost under my hip and my leg is bent and supported by the pillow. Another pillow, similar on the other side. Smaller one under each arm and splints on both wrists. *sigh* I don't always need to do this, but often its the only way to escape the pain. Is your pain worst at night???

Blessings!

In His Grip

AlwaysRosie           "We can't control the waves, but we can learn how to surf!!"

Psalms 139

Co-Moderator - Lupus Forum

UCTD, Inflammatory Arthritis, Diverticulosis, (recent dx - Sjogrens, Crohn’s 4/08)

Clickable Links:  Lupus Resources    Lupous.Org   Lupus Criteria (4 of 11)   Lupus Chapter Locator


Audrey Ann
Veteran Member


Date Joined Jul 2005
Total Posts : 815
   Posted 6/24/2008 9:35 PM (GMT -6)   
(((Cry)))) So sorry you are having such nerve pain problems.

I, too, have some issues but they do not sound as severe as your issues sound. Rosie has great suggestions for how to sleep. I have found that I have to position myself this way each night if I want to be able to move in the morning. If I try to skip a night, I am awakened often throughout the night with tingling in my arms and lower legs. The wrist splints are absolutely necessary, too. They really keep the inflammation down so I can get ready in the morning without waiting for my hands to move through the inflammation. It sounds and looks weird but it certainly works!

My prayers are with you! Many blessings...
Prayers,
Audrey Ann
 
Lupus and RA and LOTS of Medications!
 


 


cry
Regular Member


Date Joined Jun 2006
Total Posts : 58
   Posted 6/24/2008 10:58 PM (GMT -6)   

 Thank you Rosie and Audrey for your prayers and advice , the funny thing is about a year ago I bought to wrist splints from Wall Mart and slep with them for about a month , My thought was my wrist won't hurt so much if I don't move them as much, Guess beautiful minds think alike lol. And I do sleep with my pillow under my legs , that is the only was I can get to sleep . I've been investigating all night about my neck pain think it might be lymph nodes , but it runs down the back of my neck to on both sides . It started on Sunday  only on left side and mainly in back of neck running down shoulder .Then on Monday it was on both sides , now today it's in front but not as strong pain .Collar bone is really sore to . And I was just saying to my self I should get out my wrist splints my fingers are really hurting to , in the middle of a flare I guess. Well ty again tc

                                                        Crystal


AlwaysRosie
Veteran Member


Date Joined Jan 2005
Total Posts : 8616
   Posted 6/25/2008 7:06 PM (GMT -6)   
Cry . . . have you talked to your rheumy recently?? or your spine/pain management doc?? There is a condition called Ankylosing Spondylitis . . . I am NOT saying you have it . . . but the neck pain along with the back pain etc warrants a doctor visit and ruling out disk degeneration. I'm sure not trying to scare you . . but don't let this go too long, ok??

If your nights are cool enough, an electric blanket can be very therapeutic too.

Keep us posted!

Blessings!

In His Grip

AlwaysRosie           "We can't control the waves, but we can learn how to surf!!"

Psalms 139

Co-Moderator - Lupus Forum

UCTD, Inflammatory Arthritis, Diverticulosis, (recent dx - Sjogrens, Crohn’s 4/08)

Clickable Links:  Lupus Resources    Lupous.Org   Lupus Criteria (4 of 11)   Lupus Chapter Locator


cured4real?
Veteran Member


Date Joined Dec 2005
Total Posts : 1942
   Posted 6/27/2008 10:17 PM (GMT -6)   
Cry,
I would definitely seek a pain management specialist and get a reevaluation of your spine and joints. I can tell you that celebrex made my pain worse, as does GABA drugs like lyrica and neurontin. This is because some drugs are anticholinergenic like celebrex and many antiinflammatories, and the GABA drugs block GABA. Apparenty, my pain problems respond better to drugs that are not anticholinergenic and that allow me to have more GABA. So having a pain management doctor that understand how the drugs work and can make good calls is important. Also, when you get those blocks, you need to be careful, as you know, about infection. Do you have a fever? If so, you need to see a doctor. Also, if you have a curved or crooked or caving in spine with degeneration, taking muscle relaxers all the time can cause it to get worse since you don't have any support for your spine when the muscles are relaxed. When I take them rarely, I have to stay in bed, one false move and I can be really really hurt.

I using Lidocaine patches right now, which are working well, though you can only use them 12 hours at a time. Maybe your primary care doc could help you out. Other medicines that you wouldn't expect can cause back pain and other pain as a side effect, and that is easy enough for you to check out. You can even ask your pharmacist. Also, all my MRIs came back normal until I had a myelogram and if you haven't had one, I would suggest you try to get one. MRIs can be misread and the myelogram is the gold standard for spinal nerve compression. And if you have a problem like that, it might be good to see a good pain management doc or even orthopedic person to get you diagnosed and refered to a neurosurgeon if something like that is needed.

I have been to neurologists and, besides horribly painful tests that show little, I havent gotten any help, dx, or relief. This is my experience, but they are more involved with brain problems, epilepsy and the demyelinating diseases. I have very bad degenerative osteoarthritis and spodylitis, and stenosis. My pain management doctor ordered all the tests, physical therapy, meds, myelogram on my request--which was a good thing, and referred me to a good neurosurgeon. There is new microsurgery with lasers for the back now and lots of new things. Pain management helps.
Love, Marji
--Sometimes I think the surest sign that intelligent life exists elsewhere in the universe is that none of it has tried to contact us. Bill Watterson (1958-) cartoonist "Calvin and Hobbes"
Ills--Sjogrens-Lupus-like AI Disease, Hashis, Vitiligo, spinal stenosis/fusion with plate, salivary/lymphectomies, Diabetes, NAFLD, COPD, RLS, neuropathy, trigonitis, hystero, diffuse brain atrophy, GI nightmare
Meds--Plaquenil, Evoxac, Metformin, Synthroid, HCTZ, Estradiol patch, Prosed, Detrol, Klonopin, Ultram, Vicodin, Restasis, Albuterol, steroid injections and pred prn


redrose77
Veteran Member


Date Joined Sep 2005
Total Posts : 2573
   Posted 6/28/2008 1:38 AM (GMT -6)   
Cry, I get nerve block injections to 3 nerves at the hip/groin juncture for severe pain in my hip and leg, the kind of pain that makes you want to curl in a ball and die. It made my leg weak and give out under me because it was so bad shooting down it. I tried PT and it did nothing for the pain though I did get some strength back. Epidural injection did nothing but make my back pain worse but the nerve blocks at those 3 nerves does wonders. It took 2 before the pain relief lasted any length of time but now I get months at a time from a block. I need to get another done actually because my block is wearing off. Unfortunately it takes 2-3 injections be it nerve blocks or epidurals before you see the full results. Usually after a referal the doc who does the injections can do them for other areas of severe pain. You also might want to ask if you could get something stronger for bad days as far as pain pills goes. I wish I could offer more advice but that is what I have. I hope you are feeling better.

Dx:fibromyalgia 2002, systematic lupus 2005- definate CNS involvement dxed late 2005, psoriasis 2006, rheumatoid arthritis 2006, PTSD 2007, multiple allergies 2005, migraine, compression fractures T11 & T12, Sjögren's, damaged periphrial nerves 2007,
Tx: plaquenil, Enbrel, Darvocet, Singulair, Flexeril, Baby Asprin, Imuran, Procardia, Prilosec


cry
Regular Member


Date Joined Jun 2006
Total Posts : 58
   Posted 6/28/2008 1:07 PM (GMT -6)   
Hi everybody ,ty for your help . Went to rumey yesturday on friday. My lympe nodes are all swallon . was told I am having a rumatic flare , he took all the blood work ,we all know about so well . I am back on steroids . If they don't work he wants to switch me from celebrex to indocine . then he said I could take this other med that's starts with a m , but I"d have to come in every 6 weeks just for blood work , trying to keep that as last resort . My leg is feeling beter , he gave me anthor script for shot . The last one lasted about 3 weeks I hope this one will last a few months . Ty for all your advice again , I really appricate it , can't spell again , Oh and am thinking about finally going to pain management .
TC And Hagd
Crystal
PS was told to take it easy , like I have choice in that matter lol!

cured4real?
Veteran Member


Date Joined Dec 2005
Total Posts : 1942
   Posted 6/29/2008 12:28 PM (GMT -6)   
Have you been tested for infection by your pc? have you had a TB test? I'm just asking because I have a whopper of an infection in kidney/pelvis and my back is flaring up and had just been going to the rheumie for this stuff, thinking the aches and pains were all AI disease related. I don't have a fever either because my normal temp is so low. I now have canal stenosis of the spine around the area of the infection. My pain meds must have masked it.
Love, Marji
--Sometimes I think the surest sign that intelligent life exists elsewhere in the universe is that none of it has tried to contact us. Bill Watterson (1958-) cartoonist "Calvin and Hobbes"
Ills--Sjogrens-Lupus-like AI Disease, Hashis, Vitiligo, spinal stenosis/fusion with plate, salivary/lymphectomies, Diabetes, NAFLD, COPD, RLS, neuropathy, trigonitis, hystero, diffuse brain atrophy, GI nightmare
Meds--Plaquenil, Evoxac, Metformin, Synthroid, HCTZ, Estradiol patch, Prosed, Detrol, Klonopin, Ultram, Vicodin, Restasis, Albuterol, steroid injections and pred prn

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