The Lupus Meet up....

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mom46
Veteran Member


Date Joined Dec 2004
Total Posts : 8198
   Posted 6/24/2008 5:06 PM (GMT -7)   
Hi Everyone,
    I had a nice weekend in Atlanta and met a few of you..... yeah . We only had 6 out of 12 show up for the meeting, but I think it went well.
    Now I can say I have met Barb, Lynn, Linda and Donna!! Karen and I had already met and been on camping together.... scool . All of you ladies are awesome!! It was so nice to put a face to the names on the forum. Donna's boyfriend and Linda's husband were awesome as well.
   The place we had lunch was nice. It was a little hard to hear everyone, but we did get alot of talking in....lol. Linda's wonderful husband slipped away and paid the waiter for all of our meals behind our backs which was so very nice of him...... yeah . I was in shock when the waiter said our tab had been taken care of! 
    We got some pics so I hope someone that went can put together a little slide show or something for everyone to see. I will post more about the meeting later, sorry my brain isn't working right now.... confused .
   Hopefully, the others will come along soon and tell about it also. Just wanted to drop a quick note. Take care all and I would love to met alot more of you in the future.
                                                Love, Babs
 
Dx: Lupus,RLS,RA,Asthma,Fibro,Sjogren's,Raynaud's,Divertic, Stroke,Atherosclerosis,Seizures,Neuropathy,CAD
Meds:arava,prednisone,plavix,aspirin,protonix,,zanaflex,xanax,
mirapex,advair,foxamax,Vytorin,folicacid,lunesta,Tramadol
 
JOB 5:18 For he wounds, but he also binds up; he injures, but his hands also heal.


mawmaw66
Regular Member


Date Joined Feb 2007
Total Posts : 102
   Posted 6/24/2008 5:30 PM (GMT -7)   
Hi folks, babs is right we did have a good time Sat. and we must plan another one in the future.
Lupus, RA, OA, Raynard diseases, Hypothyroidism and a Breast cancer survior.
 Linda


doodlebee
Regular Member


Date Joined Mar 2008
Total Posts : 60
   Posted 6/24/2008 9:35 PM (GMT -7)   
That sounds like so much fun! Wish I could've been there. I'd love to see the pictures!!
~ Bee

God is the strength of my heart! - Psalm 73:26


Lynnwood
Forum Moderator


Date Joined May 2005
Total Posts : 7018
   Posted 6/25/2008 2:11 PM (GMT -7)   
If you guys can email me the pictures I can put them up on my web site for everyone to get a chance to view & download them. If we only want attendees to see them, I can do that, too.

Hope everyone is recovering well from the trip -- traveling is such an extra pain when you have lupus !!!

My vertigo seems to be about gone today -- YAY!

Lynnwood, Co-Moderator: Lupus Forum
SLE(’00), Sjogren's Syndrome, Raynaud's Syndrome, SAD, Depression, Herpes Simplex 1
Piroxicam, Plaquenil, Prednisone(was 15mg, now 8mg), Cellcept, Xanax, Trazodone, Boniva(3mth shot), Wellbrutrin SR, Valtrex
Links: DIAGNOSING LUPUS (4 of 11), LUPUS INFORMATION, LUPUS RESOURCES, Donate to HealingWell, Drug Interactions


mawmaw66
Regular Member


Date Joined Feb 2007
Total Posts : 102
   Posted 6/25/2008 2:46 PM (GMT -7)   
Glad your feeling a little better I knew you didn't feel good Sat. but it was so nice to meet you. I would love to see the pictures.
Lupus, RA, OA, Raynard diseases, Hypothyroidism and a Breast cancer survior.
 Linda


jhmom
Veteran Member


Date Joined Oct 2004
Total Posts : 2244
   Posted 6/25/2008 3:12 PM (GMT -7)   
I am so bummed that I didn't make it to meet all of you. Maybe we can schedule another one soon ???? I am glad to hear you all had a great time and how nice it was for Linda's hubby to pay for the meal, that was very thoughtful.
Stacie

Trust in the Lord with all thine heart, and lean not unto thine own understanding ~ Proverbs 3:5 ~

DX: Hashimoto's, Celiac Disease, Raynaud's, Lupus and Sjogrens
RX: Imuran, Plaquenil, Methotrexate, Flexeril, Piroxicam, Levoxyl, Folic Acid, Lortab (as needed) and magic mouthwash (for mouth sores)


Lynnwood
Forum Moderator


Date Joined May 2005
Total Posts : 7018
   Posted 6/25/2008 6:58 PM (GMT -7)   
I don't know about "soon". At least 4 of the 6 of us that attended have had some disease issues flaring due to the simple stresses of traveling and meeting.

Lupus just doesn't lend itself well to travel!!! Sigh.

Lynnwood, Co-Moderator: Lupus Forum
SLE(’00), Sjogren's Syndrome, Raynaud's Syndrome, SAD, Depression, Herpes Simplex 1
Piroxicam, Plaquenil, Prednisone(was 15mg, now 8mg), Cellcept, Xanax, Trazodone, Boniva(3mth shot), Wellbrutrin SR, Valtrex
Links: DIAGNOSING LUPUS (4 of 11), LUPUS INFORMATION, LUPUS RESOURCES, Donate to HealingWell, Drug Interactions


AlwaysRosie
Veteran Member


Date Joined Jan 2005
Total Posts : 8616
   Posted 6/25/2008 7:27 PM (GMT -7)   
Would have LOVED to join you all!! I'm looking forward to seeing pics if they can be parked somewhere to view.

So glad that a few of you could get together . . . . but SO sorry you are paying a price. I don't travel well either. Even a 1-2 hour drive is likely to cause some trouble.

I hope you are all feeling better fast.

Blessings!

In His Grip

AlwaysRosie           "We can't control the waves, but we can learn how to surf!!"

Psalms 139

Co-Moderator - Lupus Forum

UCTD, Inflammatory Arthritis, Diverticulosis, (recent dx - Sjogrens, Crohn’s 4/08)

Clickable Links:  Lupus Resources    Lupous.Org   Lupus Criteria (4 of 11)   Lupus Chapter Locator


hippimom2
Veteran Member


Date Joined Jul 2005
Total Posts : 5403
   Posted 6/26/2008 8:35 AM (GMT -7)   
The meeting sounds great. I'd love to be able to meet some of you someday. I have the same problem everyone else does with travel though which makes it hard to travel any long distances. Maybe someday we can try a midwest meeting, although I think us midwesterners are pretty spread out.
Diagnosis:  UCTD (lupus) 2006; Raynauds 2006; Sjogren's 2006; lupus symptoms began 2003; UC 2008; CFS 1991; Mono 1985
Meds:  Plaquenil 400mg; Prednisone 5-10mg; Tramadol 100mg 3-4x daily; Doxepin 25-50mg; Prevacid; Evoxac; Steriod Cream and Mouth Rinse for tongue and mouth ulcers; Hydrocodone 5/500 prn for severe pain; Artificial tears

 

Clickable:  LUPUS INFORMATION & LUPUS RESOURCES.

Please allow HealingWell to continue helping others by donating: http://www.healingwell.com/donate/

 

Co-Moderator: Lupus and CFS Forums



tink 2
Regular Member


Date Joined Jan 2007
Total Posts : 371
   Posted 6/26/2008 10:44 AM (GMT -7)   
I really wanted to make it but it was 7 hours for me to be in a car. My hips hurt after about 1 hour of sitting. Sounds like you all had fun. I know we can not have it in a spot to please everyone. Maybe one time we can make it more south. I know everyone wants it closer to them. 
 
                 love and health to all 
Lupus since 2005, Fiberomyalgia since 2006,  sjogren's syndrome since 2005,  diabetes since 2006, Depression since 2004. who would not be with all of this.
 
       I just try to make it threw every day as best I can.
        God please remember I am on the diet platter.
                  So many beads so little time.....
 
                   Have a great Lupie Day Denise 


mom46
Veteran Member


Date Joined Dec 2004
Total Posts : 8198
   Posted 6/26/2008 5:55 PM (GMT -7)   
Lynn,
  I'm glad to hear the vertigo is better. I know you were feeling pretty bad over the weekend. I'm going to get my pics developed on saturday and will email them to you soon to post for everyone to see. Maybe Barb and Karen can send you theirs too if they are up to it, so there will be more to choose from.
 
Tink and Stacie,
   We understand that you ladies couldn't make it, but it would have been nice to meet you. You both take care and hope you feel better soon.
 
Everyone, 
   We did have a good time and I wish I could have met everyone from the forum. Maybe groups from different areas can meet up within close range to each other. You are all in my thoughts and prayers.
                                                    Love, Babs
 
Dx: Lupus,RLS,RA,Asthma,Fibro,Sjogren's,Raynaud's,Divertic, Stroke,Atherosclerosis,Seizures,Neuropathy,CAD
Meds:arava,prednisone,plavix,aspirin,protonix,,zanaflex,xanax,
mirapex,advair,foxamax,Vytorin,folicacid,lunesta,Tramadol
 
JOB 5:18 For he wounds, but he also binds up; he injures, but his hands also heal.


joinery
Regular Member


Date Joined Oct 2007
Total Posts : 323
   Posted 6/27/2008 6:37 AM (GMT -7)   
It sounds like you's had a wounderfull time. I hope someday we all can meet up with each other. Debbie
Asthma,Lupus,H.B.P.,Dermatomyostis,Gastrparsis,Acid Reflux   
                Panic Attacks,Osteopenia,Thyroid  
  Reglan,Protonix,Synthroid,Plaquenil,Quinacrine,Flexeril,Zetia,Zoloft,Xnanx,Celebrex,Abuterol,  
  Advair,Diovan,Actonel,Prednisone on and off Eye Drops,VitaminD.     
 
 
 
 


mamamuse
Regular Member


Date Joined Dec 2006
Total Posts : 102
   Posted 6/27/2008 9:30 PM (GMT -7)   
I know I'm very late in sending my apologies for not coming...please forgive me for that!
 
I ended up having car trouble that weekend, and only got my car back last week. DH had other committments that day and so I just didn't have a way of coming.
 
But please, if another gathering is planned, let me know! I'd still love to meet some of you in person, even if I'm not one of the most active members of the board!
 
Glad to hear you all had fun!
Kari
Wife, writer, artist, homeschooling mom to 2 wonderful boys
Lupus (dx May '04), arthritis, PCOS, being tested for vasculitis and Behcet's
Now taking: plaquenil, limbrel, metformin XR, ibuprofen and the occasional percoset for pain

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