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smokeyswife
Regular Member


Date Joined Oct 2006
Total Posts : 281
   Posted 6/25/2008 5:03 AM (GMT -7)   
Does anyone else's hands hurt during the day or night?

I wake up in the middle of the night, my fingers feel like they weigh ten pounds each and hurt so bad, to open them or close them. Once I get them moving then it is better, but it soon wakes me up at night again. Or if I have been typing for to long, or holding the mouse in my right hand. It isn't like tingling or sleeping, it just hurts, and bad.

My toes and feet feel swollen and sore during the night too but not like my fingers and hands. My family doctor was going to send me for hot oil therapy but hasn't as of yet.

Just wondering if anyone else has had this happen to them.

Connie
 
 
 
 
diagnosed with RSD in March of /03, diagnosed with Lupus in Sept./06.Thyroid Disease ,RA
Taking Methotrexate, Plaquenell, Folic Acid, Synthroid,Prednisone, Pantoloc, Singulair, Tramadol, OxyCodeine and extra Strength tylenol when needed,and Zytram.


emma222
New Member


Date Joined Jun 2008
Total Posts : 5
   Posted 6/25/2008 5:56 AM (GMT -7)   
hi i am new to this site and sorry to say i dont have this problem just didnt want to run without saying anything xxxxxxxxxhuggss

smokeyswife
Regular Member


Date Joined Oct 2006
Total Posts : 281
   Posted 6/25/2008 8:43 AM (GMT -7)   
HI Emma and welcome to the site. I don't post alot but everyone who belongs here are amazing people. I know you will feel right at home in no time.
 
Connie
 
 
 
 
diagnosed with RSD in March of /03, diagnosed with Lupus in Sept./06.Thyroid Disease ,RA
Taking Methotrexate, Plaquenell, Folic Acid, Synthroid,Prednisone, Pantoloc, Singulair, Tramadol, OxyCodeine and extra Strength tylenol when needed,and Zytram.


mawmaw66
Regular Member


Date Joined Feb 2007
Total Posts : 102
   Posted 6/25/2008 9:48 AM (GMT -7)   
Hi Connie, the joints in my fingers and feet hurt like that most of the time but its worse in the mornings.
Lupus, RA, OA, Raynard diseases, Hypothyroidism and a Breast cancer survior.
 Linda


smokeyswife
Regular Member


Date Joined Oct 2006
Total Posts : 281
   Posted 6/25/2008 10:09 AM (GMT -7)   

Hi Linda, I am sorry your fingers hurt like too, but I am glad to know that it isn't just me who hurts the same way. Not that it changes things, but at least I know its a symptom of Lupus and RA, which I pretty much figured it was.

 

 

Connie
 
 
 
 
diagnosed with RSD in March of /03, diagnosed with Lupus in Sept./06.Thyroid Disease ,RA
Taking Methotrexate, Plaquenell, Folic Acid, Synthroid,Prednisone, Pantoloc, Singulair, Tramadol, OxyCodeine and extra Strength tylenol when needed,and Zytram.


bigsanfer
Regular Member


Date Joined May 2008
Total Posts : 57
   Posted 6/25/2008 10:24 AM (GMT -7)   
Hello, I just wanted to let you know that I to get lots of pain in my hands, ecspecially during the nights and in the mornings from lupus. If I have time I try to take a bath everynight to help the pain.. Ive learned that taking a bath usually does it for me.. but then the day starts over and the pain comes back. Hope all is well!
Medications: Prednisone 7.5mg. Plaquenil 300mg. Naproxen (for pain). Multivitamin. Calcium. Fish Oil. Vitamin D.
15 years old. Lupus, Raynauds, and Hashimotos.


TiBoBi
Regular Member


Date Joined Mar 2008
Total Posts : 89
   Posted 6/25/2008 11:26 AM (GMT -7)   
I wouldn't say I have pain, but I do have stiffness that seems to be worse upon waking. In my hands and in my feet primarily. As you said, once I get moving it seems to ease up a bit, but that dull, throbbing is the worst isn't it?

doodlebee
Regular Member


Date Joined Mar 2008
Total Posts : 60
   Posted 6/25/2008 3:02 PM (GMT -7)   
I'm not having it so much now (thankfully!), but during the fall and winter, I had a lot of hand pain, mainly just achiness and some stiffness. Sometimes I would run hot water over them, and it would help temporarily, and the baths at night helped a little too. Sure hope it will ease up and you'll get some relief soon.
~ Bee

God is the strength of my heart! - Psalm 73:26


mawmaw66
Regular Member


Date Joined Feb 2007
Total Posts : 102
   Posted 6/25/2008 3:51 PM (GMT -7)   
I keep a heating pad next to my chair in the winter and when my hands and feet hurt I put the pad on them to get relief.
Lupus, RA, OA, Raynard diseases, Hypothyroidism and a Breast cancer survior.
 Linda


jhmom
Veteran Member


Date Joined Oct 2004
Total Posts : 2244
   Posted 6/25/2008 4:23 PM (GMT -7)   
Hi Connie, I have the same pain in my hands during the day, at work on the computer, etc. I also get it in my feet too, when I cross my legs I get this tingling / pain, it's weird. The MTX has worked wonders for my hip / lower back pain but I not much for my feet and hands. Hang in there
Stacie

Trust in the Lord with all thine heart, and lean not unto thine own understanding ~ Proverbs 3:5 ~

DX: Hashimoto's, Celiac Disease, Raynaud's, Lupus and Sjogrens
RX: Imuran, Plaquenil, Methotrexate, Flexeril, Piroxicam, Levoxyl, Folic Acid, Lortab (as needed) and magic mouthwash (for mouth sores)


mawmaw66
Regular Member


Date Joined Feb 2007
Total Posts : 102
   Posted 6/25/2008 4:32 PM (GMT -7)   
I have a lot of pain in my hips at night and my dr. said she could put shots in them to help that but I haven't tried it yet.
Lupus, RA, OA, Raynard diseases, Hypothyroidism and a Breast cancer survior.
 Linda


Audrey Ann
Veteran Member


Date Joined Jul 2005
Total Posts : 815
   Posted 6/25/2008 10:42 PM (GMT -7)   
Greetings Connie! I have similar pain in my hands and wrists and my rhuemy says it is from the inflammation. Do you wear wrist splints all night? This really helps keep the inflammation down throughout the night and, as long as I wear them every night, I am not awakened throughout the night with the painful tingling. My feet and ankles do this sometimes, too, but I just change sleeping position and try to deal with it. I have found the least expensive wrist splints at WalMart. This is the only place that I have found who carry the slimmer wrist splints for women. I will keep you in my prayers!
Prayers,
Audrey Ann
 
Lupus and RA and LOTS of Medications!
 


 


smokeyswife
Regular Member


Date Joined Oct 2006
Total Posts : 281
   Posted 6/26/2008 6:06 AM (GMT -7)   
HI Bigsanfar.
 
I have a hot tub that I should use more then I do. But most nights when I am hurting like that I don't have the energy to get up and get into it. I know it would help but I just can't drag myself outside to use it. I will try to make more of an effort to get the energy up and get out side into the hot tub, I know my body would appreciate it.
 
I should start and end my day in the hot tub and I think I may just make a rule here now,lol.
 
Hope you are well too.
 
 
 
 
diagnosed with RSD in March of /03, diagnosed with Lupus in Sept./06.Thyroid Disease ,RA
Taking Methotrexate, Plaquenell, Folic Acid, Synthroid,Prednisone, Pantoloc, Singulair, Tramadol, OxyCodeine and extra Strength tylenol when needed,and Zytram.


smokeyswife
Regular Member


Date Joined Oct 2006
Total Posts : 281
   Posted 6/26/2008 6:12 AM (GMT -7)   
Hi Tibobi
 
Yes that dull aching throb is the worst. I hate it. But that seems to be the joys of having Lupus eh?
 
Hope you are well.
 
Connie
 
 
 
 
diagnosed with RSD in March of /03, diagnosed with Lupus in Sept./06.Thyroid Disease ,RA
Taking Methotrexate, Plaquenell, Folic Acid, Synthroid,Prednisone, Pantoloc, Singulair, Tramadol, OxyCodeine and extra Strength tylenol when needed,and Zytram.


smokeyswife
Regular Member


Date Joined Oct 2006
Total Posts : 281
   Posted 6/26/2008 6:15 AM (GMT -7)   
Thanks Doodlebee.
 
I have used the hot water on my hands too when they get really bad and it does help, but not long enough.
 
I am glad you are having relief now, winter here lasts forever and makes the pain that much worse.
 
Have a good day.
 
Connie
 
 
 
 
diagnosed with RSD in March of /03, diagnosed with Lupus in Sept./06.Thyroid Disease ,RA
Taking Methotrexate, Plaquenell, Folic Acid, Synthroid,Prednisone, Pantoloc, Singulair, Tramadol, OxyCodeine and extra Strength tylenol when needed,and Zytram.


smokeyswife
Regular Member


Date Joined Oct 2006
Total Posts : 281
   Posted 6/26/2008 6:21 AM (GMT -7)   
Hi mawma
 
I'm sorry your hips are hurting. I have tried the shots in my shoulder and I didn't notice a difference but some people do right away. Good luck, I hope it works for you if you try it.
 
 
 
 
diagnosed with RSD in March of /03, diagnosed with Lupus in Sept./06.Thyroid Disease ,RA
Taking Methotrexate, Plaquenell, Folic Acid, Synthroid,Prednisone, Pantoloc, Singulair, Tramadol, OxyCodeine and extra Strength tylenol when needed,and Zytram.


smokeyswife
Regular Member


Date Joined Oct 2006
Total Posts : 281
   Posted 6/26/2008 6:36 AM (GMT -7)   
HI Stacie, I have noticed the rest of me that hurt before isn't hurting as bad now since I have been on the meth as well. But my fingers and toes, hands and wrists and my feet still hurt the same way.
 
Oh well I guess we can't be pain free. I hope you get some relief soon.
 
Connie
 
 
 
 
diagnosed with RSD in March of /03, diagnosed with Lupus in Sept./06.Thyroid Disease ,RA
Taking Methotrexate, Plaquenell, Folic Acid, Synthroid,Prednisone, Pantoloc, Singulair, Tramadol, OxyCodeine and extra Strength tylenol when needed,and Zytram.


smokeyswife
Regular Member


Date Joined Oct 2006
Total Posts : 281
   Posted 6/26/2008 6:45 AM (GMT -7)   
Hi Audrey Ann.
 
I haven't tried the wrist splints but I do have one here from before when I had carpel tunnel. I will have to give it a try.
 
Thanks for the idea.
 
Connie
 
 
 
 
diagnosed with RSD in March of /03, diagnosed with Lupus in Sept./06.Thyroid Disease ,RA
Taking Methotrexate, Plaquenell, Folic Acid, Synthroid,Prednisone, Pantoloc, Singulair, Tramadol, OxyCodeine and extra Strength tylenol when needed,and Zytram.


Lynnwood
Forum Moderator


Date Joined May 2005
Total Posts : 5844
   Posted 6/26/2008 7:09 AM (GMT -7)   
Several people have reported some minor neuropathy due to lupus inflammation. This is often manifest in stinging, tingling, itching, or "sleeping"/numb feelings in hands and feet, arms & legs. For me, it's numbness and tingling, but comes more at the end of the day when I am tired and doesn't seem to be related to sleeping posture.

I would suggest that you initially make sure you are not sleeping on top of your shoulders, arms, or hands, and don't bend the wrists while sleeping; those do often contribute to impingements in nerves to the extremities.

It is definitely something to mention to your rheumatologist as soon as you can. Sometimes it can be easily controlled by a simple OTC medication, but it is important that the doctors know about it so they can ensure it doesn't indicate something else entirely.

Glad you found us, hope this helps!

Lynnwood, Co-Moderator: Lupus Forum
SLE(’00), Sjogren's Syndrome, Raynaud's Syndrome, SAD, Depression, Herpes Simplex 1
Piroxicam, Plaquenil, Prednisone(was 15mg, now 8mg), Cellcept, Xanax, Trazodone, Boniva(3mth shot), Wellbrutrin SR, Valtrex
Links: DIAGNOSING LUPUS (4 of 11), LUPUS INFORMATION, LUPUS RESOURCES, Donate to HealingWell, Drug Interactions


smokeyswife
Regular Member


Date Joined Oct 2006
Total Posts : 281
   Posted 6/26/2008 7:37 AM (GMT -7)   
Thanks Lynwood.
I have been a member here for quite a while, I just haven't had much time to stop and post. I drop in when I can.
 
I see my rheumie July 9th and will mention it to him then. It has gotten worse in the last couple of weeks, not sure what is going on with it, but will for sure mention it to him.
 
 
 
 
 
 
diagnosed with RSD in March of /03, diagnosed with Lupus in Sept./06.Thyroid Disease ,RA
Taking Methotrexate, Plaquenell, Folic Acid, Synthroid,Prednisone, Pantoloc, Singulair, Tramadol, OxyCodeine and extra Strength tylenol when needed,and Zytram.


hippimom2
Veteran Member


Date Joined Jul 2005
Total Posts : 5403
   Posted 6/26/2008 9:24 AM (GMT -7)   
The joints in my hands and feet were the first things that stared hurting and they are still the places that hurt the worst. Mornings and nights seem to be the worst time for me pain. I ahve noticed that heat helps, but it's hard to put a heating pad around your hands or feet. Holding a nice cup of coffee or tea feels good and I have some heated slippers that also have a massage setting too. I am thinking about getting one of those parafin (sp?) wax things to keep at home. I tried one at a friend's house and it felt so good.

I have the neuropathy that Lynnwood talked about - it's like a burning pain in my hands and feet. The neurontin I take helps to take the edge off of the burning pain. I hope you get some relief soon.
Diagnosis:  UCTD (lupus) 2006; Raynauds 2006; Sjogren's 2006; lupus symptoms began 2003; UC 2008; CFS 1991; Mono 1985
Meds:  Plaquenil 400mg; Prednisone 5-10mg; Tramadol 100mg 3-4x daily; Doxepin 25-50mg; Prevacid; Evoxac; Steriod Cream and Mouth Rinse for tongue and mouth ulcers; Hydrocodone 5/500 prn for severe pain; Artificial tears

 

Clickable:  LUPUS INFORMATION & LUPUS RESOURCES.

Please allow HealingWell to continue helping others by donating: http://www.healingwell.com/donate/

 

Co-Moderator: Lupus and CFS Forums



cured4real?
Veteran Member


Date Joined Dec 2005
Total Posts : 1942
   Posted 6/27/2008 8:59 PM (GMT -7)   
I don't know if this is the problem, but you might talk to your rheumie to find out if it is muscle related or not. My hands and arms and calves are tight and tense all the time. my rheumie has had me try a new product, a topical gel form of Voltaren, a muscle relaxer. It has given me great relief in my arms and hands, though I don't have a lot of joint pain, mostly muscle stiffness and hardness, not being able to open my hands up all the way and stuff. Even if the Voltaren gel isn't the right thing, they are coming out with lots of meds topically that we normally take in pill form and there may be something topical like a topical form of a stronger prescription antiinflammatory that might get the medicine right where it's needed and save you some stomach trouble! The new topical stuff is great. I can't take Voltaren because of my liver but can use the gel, and it works better, in my opinion, because it goes right where you need it. It actually did work on my knees, which have nondamaging form of AI arthritis and the voltaren gel worked. I use it at night and don't wake up from knee pain anymore.

I hope you feel better and find out. Maybe you can call your doc and talk to the nurse and mention what's going on and they can help you. I also use a lot of bengay, and Absorbine horse linament for joint pain.
Love, Marji
--Sometimes I think the surest sign that intelligent life exists elsewhere in the universe is that none of it has tried to contact us. Bill Watterson (1958-) cartoonist "Calvin and Hobbes"
Ills--Sjogrens-Lupus-like AI Disease, Hashis, Vitiligo, spinal stenosis/fusion with plate, salivary/lymphectomies, Diabetes, NAFLD, COPD, RLS, neuropathy, trigonitis, hystero, diffuse brain atrophy, GI nightmare
Meds--Plaquenil, Evoxac, Metformin, Synthroid, HCTZ, Estradiol patch, Prosed, Detrol, Klonopin, Ultram, Vicodin, Restasis, Albuterol, steroid injections and pred prn


mamamuse
Regular Member


Date Joined Dec 2006
Total Posts : 102
   Posted 6/27/2008 10:32 PM (GMT -7)   
My hands hurt all the time, despite having a normal MRI of them last year. I don't know what that's about, but I definitely plan to use some of the tips shared in this thread. THANKS!
Kari
Wife, writer, artist, homeschooling mom to 2 wonderful boys
Lupus (dx May '04), arthritis, PCOS, being tested for vasculitis and Behcet's
Now taking: plaquenil, limbrel, metformin XR, ibuprofen and the occasional percoset for pain


puccini914
Regular Member


Date Joined Jun 2008
Total Posts : 363
   Posted 7/1/2008 3:55 PM (GMT -7)   
Hello all, I suffer from the strangest combination of sensations in my hands and it has now begun in my feet as well. My hands feel tight and stiff sometimes like now, which is taking the most darvocet the docs will let me. This is actually tolerable. Sometimes they get really crampy, sometimes pins and needle tingling, sometimes swollen and super hot to the touch. It seems like such a crazymix. Sometimes they hurt so bad I can't sleep or find a comfortable position, my x-rays were completely normal. Now my feet are affected. I get up in the morning and feel like I'm walking on naked bone. I don't have any suggestions to add, only my prayers for everyone else who is suffering with me. I'm new here and I finally don't feel so alone and misunderstood.

By the way, mamamuse, How on earth are you able to homeschool? I was planning on homeschooling my 5 year old but I've got his one year old brother to care for and I don't even have the energy for that. I'm hoping that by the time the baby is old enough to be a bit more independent in his play that I'll be on top of this disease to the point where I can yank him out of public school. Right now, I need the break.

Jennifer

Diagnostic Limbo: Seeing Rheumy since November 07, Taking plaquenil, Imuran, Neurontin, Claritin, Zantac, vitamin D, Darvocet.

 

 


Sister Sister
Regular Member


Date Joined Jun 2008
Total Posts : 46
   Posted 7/1/2008 6:30 PM (GMT -7)   
Ask your doctors before doing this, but has anyone who gets relief from heat tried the ThermaCare Heat Wraps? I see they have new ones now for arthritis relief in particular--such as hand and wrist--but I'm guessing some of the varieties--maybe the smaller ones like for necks--could maybe be used for other areas like feet. I have used these myself for back and neck pain and they provide warmth for about eight hours (they warn NOT to use for longer than that). I repeat--ASK YOUR DOCTORS FIRST!--but they worked great for what I needed and you're not tied down with an electric cord, no medicinal smell, no greasy goo, etc., etc. If the adhesive is a problem, that part could be clipped off and they could be loosely wrapped with the self-adhering colorful strips they often use when blood is drawn and they slap on some gauze or cotton. A 3M product maybe? Am I rambling or what? lol Anyway, any questions please ask and I'll try and be more articulate. And do get the name brand because I think some of the imitations have had some kind of consumer problems. And no, I don't own stock in the company or anything. : ) They sell them just about anywhere--drug stores, Wal-Mart, etc. Just a thought and me hoping I can help.
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