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aimsgirl16
Forum Moderator


Date Joined Jun 2008
Total Posts : 1434
   Posted 6/25/2008 7:10 PM (GMT -7)   
Most mornings when I wake up and sometimes it will wake me up in the middle of the night, the tips of my fingers are numb. I can not close my hand and when I try to, I  have horrible pain. Is this associated with Lupus or does anyone know what this could be. It has been happening for about a month now and i am starting to get really worried about it. Sometimes during the day, my fingers will go numb again but I don't have the pain in my wrist. Also, when I have the pain in my wrist I also have a ache in my elbow and shoulder. When this happens, I have limited flexabity in my arm movements. Advice please...

AlwaysRosie
Veteran Member


Date Joined Jan 2005
Total Posts : 8616
   Posted 6/25/2008 7:33 PM (GMT -7)   
Hi Aims,

Welcome to the forum. This 'can' be a lupus thing. Do you have lupus? connective tissue disease?

Inflammation can trap nerves and cause or act like carpel tunnel. The inflammation can be so bad that it also blocks blood flow. I get the numbness and pain too. I've had my entire arm go stone dead on me. I know its really scary.

We were talking in another topic about wearing wrist braces to bed. It really helps me a lot. It doesn't always eliminate the problem, but it help a LOT. I also depend on anti-inflammatories too.

Are you on any rx meds? OTC meds??

You'll meet some great folks here and I hope you enjoy the forum.

Blessings!

In His Grip

AlwaysRosie           "We can't control the waves, but we can learn how to surf!!"

Psalms 139

Co-Moderator - Lupus Forum

UCTD, Inflammatory Arthritis, Diverticulosis, (recent dx - Sjogrens, Crohn’s 4/08)

Clickable Links:  Lupus Resources    Lupous.Org   Lupus Criteria (4 of 11)   Lupus Chapter Locator


Lynnwood
Forum Moderator


Date Joined May 2005
Total Posts : 5791
   Posted 6/25/2008 8:06 PM (GMT -7)   
Several people have reported some minor neuropathy due to lupus inflammation. This is often manifest in stinging, tingling, itching, or "sleeping"/numb feelings in hands and feet, arms & legs. For me, it's numbness and tingling, but comes more at the end of the day when I am tired and doesn't seem to be related to sleeping posture.

I would suggest that you initially make sure you are not sleeping on top of your shoulders, arms, or hands, and don't bend the wrists while sleeping; those do often contribute to impingements in nerves to the extremities.

It is definitely something to mention to your rheumatologist as soon as you can. Sometimes it can be easily controlled by a simple OTC medication, but it is important that the doctors know about it so they can ensure it doesn't indicate something else entirely.

Glad you found us, hope this helps!

Lynnwood, Co-Moderator: Lupus Forum
SLE(’00), Sjogren's Syndrome, Raynaud's Syndrome, SAD, Depression, Herpes Simplex 1
Piroxicam, Plaquenil, Prednisone(was 15mg, now 8mg), Cellcept, Xanax, Trazodone, Boniva(3mth shot), Wellbrutrin SR, Valtrex
Links: DIAGNOSING LUPUS (4 of 11), LUPUS INFORMATION, LUPUS RESOURCES, Donate to HealingWell, Drug Interactions


aimsgirl16
Forum Moderator


Date Joined Jun 2008
Total Posts : 1434
   Posted 6/26/2008 11:34 AM (GMT -7)   
Yes I do have Lupus. I am taking Plaquenil, Day-Pro, and Tramadol! As far as I know, I do not have a connective tissue disease. What exaclty is a OTC medication?

Post Edited (aimsgirl16) : 6/26/2008 12:10:10 PM (GMT-6)


Lynnwood
Forum Moderator


Date Joined May 2005
Total Posts : 5791
   Posted 6/26/2008 11:56 AM (GMT -7)   
OTC = Over The Counter

Abbreviation meaning "non-prescription drug"

Lynnwood, Co-Moderator: Lupus Forum
SLE(’00), Sjogren's Syndrome, Raynaud's Syndrome, SAD, Depression, Herpes Simplex 1
Piroxicam, Plaquenil, Prednisone(was 15mg, now 8mg), Cellcept, Xanax, Trazodone, Boniva(3mth shot), Wellbrutrin SR, Valtrex
Links: DIAGNOSING LUPUS (4 of 11), LUPUS INFORMATION, LUPUS RESOURCES, Donate to HealingWell, Drug Interactions


AlwaysRosie
Veteran Member


Date Joined Jan 2005
Total Posts : 8616
   Posted 6/26/2008 4:13 PM (GMT -7)   
Hi Aimsgirl,

Connective tissue diseases include Lupus, Sjogrens, Hashimoto's Thyroiditis, Rheumatoid Arthritis, and several more. Sometimes the doctors can't pinpoint which disease is causing the problems, so they call it "Undifferentiated Connective Tissue Disease" Many of us here fall into that category.

Are you taking your Day-pro as directed?? The only reason I ask . . . is because I used to take anti-inflammatories only when I had pain that was really bad. I didn't realize that I needed to take it as directed (some are once a day and some are 2 or 3 times a day) . . . to keep the inflammation to a minimum. When I started taking the anti-inflams regularly, things got quite a bit better. But there are still times when the prescribed meds don't work and you need to call your rheumatologist and let him/her know that you are having problems that aren't relieved by the meds he/she prescribed. (But the Tramadol is likely an "as needed" med for bad pain.) These are good questions to ask your doctor because it isn't always clear.

The plaquenil can take 6 months to fully build in your system. But many get some relief even after a few weeks. Just in case you didn't know that it can take a while to get full benefits from it.

If you have any other questions . . . feel free to ask.

In His Grip

AlwaysRosie           "We can't control the waves, but we can learn how to surf!!"

Psalms 139

Co-Moderator - Lupus Forum

UCTD, Inflammatory Arthritis, Diverticulosis, (recent dx - Sjogrens, Crohn’s 4/08)

Clickable Links:  Lupus Resources    Lupous.Org   Lupus Criteria (4 of 11)   Lupus Chapter Locator


cured4real?
Veteran Member


Date Joined Dec 2005
Total Posts : 1942
   Posted 6/27/2008 8:49 PM (GMT -7)   
What Lynnwood said about sleeping on shoulder is very true. I have several pillows, and there are some body pillows that may help you get comfortable and ease pressure on the shoulders. I have been diagnosed with some type of AI related tendonitis that comes and goes. It bothers me really bad sometimes and now it has completely gone away. Swimming helped I think, even just floating and taking the pressure off my back and joints. I hope you feel better. I've had my arm stay numb for a few days and it was really scary. You might ask your doc if there is anything new that is topical that you might be able to use on it. They keep coming out with new products all the time and I'm using something for muscle stiffness in my arms and hands and legs that is working really well.
Love, Marji
--Sometimes I think the surest sign that intelligent life exists elsewhere in the universe is that none of it has tried to contact us. Bill Watterson (1958-) cartoonist "Calvin and Hobbes"
Ills--Sjogrens-Lupus-like AI Disease, Hashis, Vitiligo, spinal stenosis/fusion with plate, salivary/lymphectomies, Diabetes, NAFLD, COPD, RLS, neuropathy, trigonitis, hystero, diffuse brain atrophy, GI nightmare
Meds--Plaquenil, Evoxac, Metformin, Synthroid, HCTZ, Estradiol patch, Prosed, Detrol, Klonopin, Ultram, Vicodin, Restasis, Albuterol, steroid injections and pred prn


aimsgirl16
Forum Moderator


Date Joined Jun 2008
Total Posts : 1434
   Posted 7/15/2008 11:56 AM (GMT -7)   
Well, I have gone to the Doctor for my 3 month check up and it turns out that I have carpal Tunnel. Also, my Lupus is getting worse so the Doctor has put me on Imuran. That was on July 2nd and it seems to be helping with the pain. I also have started sleeping with more pillows and propping the under my shoulders when I am sleeping on my stomach. It seems to be helping.

Aimsgirl16
Lupus, Raynaud's Syndrome
Day Pro, Tramadol, and Azathioprine
 

 
 


AlwaysRosie
Veteran Member


Date Joined Jan 2005
Total Posts : 8616
   Posted 7/15/2008 3:59 PM (GMT -7)   
Thanks for the update Aimsgirl. Sorry you have carpel tunnel. Sometimes its from inflammation (from the lupus) and sometimes its everyday-carpel-tunnel like others get. I had carpel tunnel pretty bad in both wrists, including some permanent damage. I was supposed to have surgery to correct it and before I could do that, it suddenly disappeared with a lot of other issues including a two-year struggle with plantar fasciatis.

I still wear wrists splints most nights because the night-time numbness and tingling is still often an issue.

Blessings!

In His Grip

AlwaysRosie           "We can't control the waves, but we can learn how to surf!!"

Psalms 139

Co-Moderator - Lupus Forum

UCTD, Inflammatory Arthritis, Diverticulosis, (recent dx - Sjogrens, Crohn’s 4/08)

Clickable Links:  Lupus Resources    Lupous.Org   Lupus Criteria (4 of 11)   Lupus Chapter Locator


jewel11
New Member


Date Joined Jul 2008
Total Posts : 1
   Posted 7/19/2008 8:46 PM (GMT -7)   
My doctor is pretty sure I have Lupus, but I do not have a definite diagnosis.  I've been having joint pain (mostly tendonitis or bursitis) off and on for about 12 years.  Lately I've been having the same problem that you stated.  I wake up in the middle of the night with severe wrist pain that radiates up the lower part of my arm and my hands are numb and so stiff that I can't make a fist.  I sometimes wake up with both arms completely numb and I can't even move my arms.  I was wondering if this is caused by inflammation of tendons or some type of nerve problem. 
 
Any suggestions to prevent this? confused
Jewel11
 

kpeachy75
Regular Member


Date Joined Sep 2005
Total Posts : 250
   Posted 7/21/2008 2:23 PM (GMT -7)   

have you or your doctor looked into Raynauds Phenomenon? I have that and my fingers get numb and blue from time to time. They put me on a calcium blocker (amildopine) and it helped a lot. Before I was diagnosed with lupus I had to wear wrist braces to bed every night because I would sleep with my wrists cockeyed (so my fingers would rest on my inner arm and wrist) and I would always wake up in pain. Once lupus was diagnosed and they put me on meds I started feeling a lot better.

Hope this helps! Kathy


Take care, peachy
 
Diagnosed with lupus in May 2005. Daily Medications: Prednisone, 5 mg; Imuran, 50mg 2x a day; Warfarin, 5 mg / day; Zoloft, 100 mg / day; Plaquanil, 200 mg 2x a day; Nexium, 20 mg / day; Tramadol, 50 mg 2x a day (as needed) and Tylenol. Supplements: 1500mg calcium; 2000 IU of Vitamin D; 400mg magnesium; Centrum Silver (and I am 30!)

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