Low Vitamin D levels?

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mamamuse
Regular Member


Date Joined Dec 2006
Total Posts : 102
   Posted 6/27/2008 9:55 PM (GMT -7)   
My rhuemy has started testing Vitamin D levels because of all the new research showing the link between deficiencies and autoimmune disease. (Actually, the research isn't that new. A naturopath told me YEARS ago that I should up my Vitamin D supplements...I did for a while, then forgot about it.)
 
A normal level was 35. Mine was 7. They said that wasn't just deficient, it was depleted. So once a week for the next eight weeks, I'm taking Drisdol, a mega-prescription dose of the vitamin. She also told me to make sure I'm getting enough calcium because that much D will zap it from my bones. So now I've added five horse-pills of calcium citrate to my pile of daily pills. But if it's going to make me feel better, I am NOT complaining!
 
I was intrigued to learn more about Vitamin D online. It appears to be linked to weight problems, PCOS, and high blood pressure, all things I have dealt with or am dealing with now. So it will be interesting to see if after eight weeks, I'm feeling better across the board.
 
Maybe it's worth asking your rheumy's to start testing for this, too? Especially since so many of us avoid the sun because of our sensitivity to it. I'm also not a big dairy person so it's really not surprising that my levels were so low.
Kari
Wife, writer, artist, homeschooling mom to 2 wonderful boys
Lupus (dx May '04), arthritis, PCOS, being tested for vasculitis and Behcet's
Now taking: plaquenil, limbrel, metformin XR, ibuprofen and the occasional percoset for pain


Audrey Ann
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Date Joined Jul 2005
Total Posts : 815
   Posted 6/28/2008 12:21 AM (GMT -7)   
Wow, Kari, thanks so much for sharing this! I see my rheumy next week and I will ask her to test my vitamin D levels. I am most interested in how it is linked to weight problems. Is it possible for you to share a bit about this vitamin D and weight issue link?

Thanks so much!
Prayers,
Audrey Ann
 
Lupus and RA and LOTS of Medications!
 


 


redrose77
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Date Joined Sep 2005
Total Posts : 2573
   Posted 6/28/2008 1:12 AM (GMT -7)   
I have to ask for me and hubby. I take C with D and magnesium but would be interested to know my D levels since I cannot do dairy and have always avoided the sun- even as a child it made me sick.
Dx:fibromyalgia 2002, systematic lupus 2005- definate CNS involvement dxed late 2005, psoriasis 2006, rheumatoid arthritis 2006, PTSD 2007, multiple allergies 2005, migraine, compression fractures T11 & T12, Sjögren's, damaged periphrial nerves 2007,
Tx: plaquenil, Enbrel, Darvocet, Singulair, Flexeril, Baby Asprin, Imuran, Procardia, Prilosec


mamamuse
Regular Member


Date Joined Dec 2006
Total Posts : 102
   Posted 6/28/2008 7:49 AM (GMT -7)   
Hi again! Here is a link to one of the articles I found: http://www.westonaprice.org/basicnutrition/vitamindmiracle.html

I didn't keep links to some of the others I read, but it's pretty easy to find by googling "Vitamin D" plus whatever condition you're seeking more information on.

Hope that helps!
Kari
Wife, writer, artist, homeschooling mom to 2 wonderful boys
Lupus (dx May '04), arthritis, PCOS, being tested for vasculitis and Behcet's
Now taking: plaquenil, limbrel, metformin XR, ibuprofen and the occasional percoset for pain


jhmom
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Date Joined Oct 2004
Total Posts : 2244
   Posted 6/28/2008 8:02 AM (GMT -7)   
Thank you for the reminder, I have been meaning to ask my rheumy or PCP to check all my vitamin levels. I pray you start feeling better soon! Let us know
Stacie

Trust in the Lord with all thine heart, and lean not unto thine own understanding ~ Proverbs 3:5 ~

DX: Hashimoto's, Celiac Disease, Raynaud's, Lupus and Sjogrens
RX: Imuran, Plaquenil, Methotrexate, Flexeril, Piroxicam, Levoxyl, Folic Acid, Lortab (as needed) and magic mouthwash (for mouth sores)


cured4real?
Veteran Member


Date Joined Dec 2005
Total Posts : 1944
   Posted 6/29/2008 10:09 AM (GMT -7)   
Don't you need sunlight to process vitamin D? I thought it didn't work without getting sunlight? I know some people go to the dermatologist or purchase lamps to get a special UV light that is supposed to not be so bad for the sun sensitive. Have they come out with something new?

I'm low in one vitamin D titre but the other one is high enough to create a normal score.
Love, Marji
--Sometimes I think the surest sign that intelligent life exists elsewhere in the universe is that none of it has tried to contact us. Bill Watterson (1958-) cartoonist "Calvin and Hobbes"
Ills--Sjogrens-Lupus-like AI Disease, Hashis, Vitiligo, spinal stenosis/fusion with plate, salivary/lymphectomies, Diabetes, NAFLD, COPD, RLS, neuropathy, trigonitis, hystero, diffuse brain atrophy, GI nightmare
Meds--Plaquenil, Evoxac, Metformin, Synthroid, HCTZ, Estradiol patch, Prosed, Detrol, Klonopin, Ultram, Vicodin, Restasis, Albuterol, steroid injections and pred prn


oldhippyrebel
Regular Member


Date Joined May 2008
Total Posts : 58
   Posted 6/29/2008 2:29 PM (GMT -7)   
I had to go several rounds of 50,000 units of Vit D once a week for a month at a time. I also was very very low on calcium They found it last year when they had to remove my Thyroid They couldn’t figure it out because my parathyroid was though the roof but no one had tested it till I was in the hospital after they took out the thyroid. They told me the calcium and parathyroid should with both be high or low not just the opposite like mine is. It has been a year and it still isn’t right yet. I’ll be retested next month. I also had a bone density done and I’ve lost a lot there in the last couple of years. So mega doses of calcium with extra Vit D every day.
Fibro since 97, Lupus since 99, neuropathy and other nerve damage.
On to many Meds to list, Finally got a date for SSA of July 1 after to many years of fighting for a hearing.


AlwaysRosie
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Date Joined Jan 2005
Total Posts : 8616
   Posted 6/29/2008 7:10 PM (GMT -7)   
Marji,

We DO get vitamin D from the sun. But you can also get it from vitamins. It is added to milk because it helps calcium enter your body. Many of us are low because we can't be out in the sun. Sun block also stops us from getting enough.

Blessings!

In His Grip

AlwaysRosie           "We can't control the waves, but we can learn how to surf!!"

Psalms 139

Co-Moderator - Lupus Forum

UCTD, Inflammatory Arthritis, Diverticulosis, (recent dx - Sjogrens, Crohn’s 4/08)

Clickable Links:  Lupus Resources    Lupous.Org   Lupus Criteria (4 of 11)   Lupus Chapter Locator


mamamuse
Regular Member


Date Joined Dec 2006
Total Posts : 102
   Posted 6/29/2008 9:27 PM (GMT -7)   
That's how I understood it too, Rosie. Our bodies can actually make enough Vit D through sun exposure, but the sun isn't needed to get the benefit from supplements taken orally.
Kari
Wife, writer, artist, homeschooling mom to 2 wonderful boys
Lupus (dx May '04), arthritis, PCOS, being tested for vasculitis and Behcet's
Now taking: plaquenil, limbrel, metformin XR, ibuprofen and the occasional percoset for pain


Trying2BFree
Regular Member


Date Joined Oct 2005
Total Posts : 251
   Posted 6/30/2008 2:53 PM (GMT -7)   
My Rheumy tested my Vit. D when he was running all the other tests several years ago trying to figure out the cause of my joint pain.  Low Vit. D levels can cause joint pain.  Mine was perfectly normal though.

Jeannie 
SLE diagnosis 10/05 now changed to RA 3/06, Endometriosis 5/05, PCOS 1990
Meds: Metformin ER 1500mg (PCOS); Loestrin BCPs (Endo); Methotrexate 15mg (RA); Metanx 5mg (RA); Orencia 750mgs (RA); Lunesta 2mg (as needed); Prevacid


cured4real?
Veteran Member


Date Joined Dec 2005
Total Posts : 1944
   Posted 6/30/2008 7:30 PM (GMT -7)   
Thanks, Rosie. Gosh there are like five different forms of vitamin D! But check out this article on mushrooms. No wonder I craved them on interferon (an immune booster that caused me to have really severe lupus like flares and I never went outside because I was nuts and bedridden). I was probably completely vitamin D deficient at that time too! I kept telling them the mushrooms made me better. My liver didn't go normal until I ate them and I ate a lot of them. Check this out!

Mushrooms article on vitamin D
http://www.msnbc.msn.com/id/12370708
Love, Marji
--Sometimes I think the surest sign that intelligent life exists elsewhere in the universe is that none of it has tried to contact us. Bill Watterson (1958-) cartoonist "Calvin and Hobbes"
Ills--Sjogrens-Lupus-like AI Disease, Hashis, Vitiligo, spinal stenosis/fusion with plate, salivary/lymphectomies, Diabetes, NAFLD, COPD, RLS, neuropathy, trigonitis, hystero, diffuse brain atrophy, GI nightmare
Meds--Plaquenil, Evoxac, Metformin, Synthroid, HCTZ, Estradiol patch, Prosed, Detrol, Klonopin, Ultram, Vicodin, Restasis, Albuterol, steroid injections and pred prn


AlwaysRosie
Veteran Member


Date Joined Jan 2005
Total Posts : 8616
   Posted 7/1/2008 1:13 AM (GMT -7)   
Thanks Marji . . . interesting article. Notice one point though. They said that mushrooms "would" be a significant source of Vit D "if" they were exposed to sunlight for just 5 minutes after harvesting. But there was nothing indicating that they actually 'are' exposed to sun light. So harvesters would have to intentionally take this extra step. Doesn't sound like a big deal . . . but who knows. Hmmmmm, I wonder if we can still cause this benefit at home . . . by exposing them to sunlight before eating them. Sounds pretty simple . . . now my neighbors will have another reason to picture me in a foil hat!!! he he he

Blessings!

In His Grip

AlwaysRosie           "We can't control the waves, but we can learn how to surf!!"

Psalms 139

Co-Moderator - Lupus Forum

UCTD, Inflammatory Arthritis, Diverticulosis, (recent dx - Sjogrens, Crohn’s 4/08)

Clickable Links:  Lupus Resources    Lupous.Org   Lupus Criteria (4 of 11)   Lupus Chapter Locator

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