anyone have any problems with their gallbladder due to lupus?

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bella4
Regular Member


Date Joined Jun 2005
Total Posts : 260
   Posted 6/28/2008 8:58 PM (GMT -6)   
hi...

just had my gallbladder removed and waiting on pathology (found lesions). i have no history of gallstones, just generalized upper quadrant pain for years and diarrhea but recently had a hida scan that revealed an ejection fraction of 16 percent. i understand that lupus rarely affects the gallbladder, so was wondering if anyone here has had an experience of lupus affecting their gallbladder.

thank you for your help.

Post Edited By Moderator (Lynnwood) : 6/29/2008 9:05:58 AM (GMT-6)


Ginny
Veteran Member


Date Joined Feb 2003
Total Posts : 5511
   Posted 6/28/2008 10:00 PM (GMT -6)   
Hi Bella,
 
Yes, the gallbladder has been known to cause problems.  I think it's probably related to the fact that it's part of the whole function of the liver, which is affected by lupus in many people.
 
Often when our liver enzyme tests come back elevated, the gallbladder is the first thing that is checked.  I had that experience last summer.  My gallbladder wasn't what was causing the issues, but it was suspected in the beginning. 
 
Maybe someone else wil have more information for you too.  I hope you start feeling better quickly now that yours is gone!
 
 
I can do anything through Jesus Christ who strengthens me. I have learned in whatever state I am in,to be content. Phillipians 4:11-13

34 years old. Diagnosed with lupus in 2000. Fibromyalgia, anti-phospholipid syndrome(APS)(stroke),Sjogren's, Raynaud's, seizure disorder-(miraclulously disappeared!), Libman Sach's Endocarditis, vasculitis, sacroiliitis, arthritis (neck) . Prednisone, Imuran, Coumadin, Clobazam, Amitriptyline, didrocal, Cozaar, calcium, Cykolokapron, multi-vitamin, vitamin D, Magnesium, vitamin B6, Acidophilus


mom46
Veteran Member


Date Joined Dec 2004
Total Posts : 8198
   Posted 6/29/2008 12:48 PM (GMT -6)   
Hi Bella,
   I had my gallbladder removed in 2002 due to gall stones. I really don't know if lupus contributed to this or not.
                                                          Babs
 
Dx: Lupus,RLS,RA,Asthma,Fibro,Sjogren's,Raynaud's,Divertic, Stroke,Atherosclerosis,Seizures,Neuropathy,CAD
Meds:arava,prednisone,plavix,aspirin,protonix,,zanaflex,xanax,
mirapex,advair,foxamax,Vytorin,folicacid,lunesta,Tramadol
 
JOB 5:18 For he wounds, but he also binds up; he injures, but his hands also heal.


redrose77
Veteran Member


Date Joined Sep 2005
Total Posts : 2573
   Posted 6/29/2008 2:31 PM (GMT -6)   
I lost my gallbladder in 2005 from inflammation that made it basically stop functioning at all. I had been suffering pain for 15 years when they finally took it out. It was such a relief. But I have to be careful about the fat content of anything I eat now.
Dx:fibromyalgia 2002, systematic lupus 2005- definate CNS involvement dxed late 2005, psoriasis 2006, rheumatoid arthritis 2006, PTSD 2007, multiple allergies 2005, migraine, compression fractures T11 & T12, Sjögren's, damaged periphrial nerves 2007,
Tx: plaquenil, Enbrel, Darvocet, Singulair, Flexeril, Baby Asprin, Imuran, Procardia, Prilosec


bella4
Regular Member


Date Joined Jun 2005
Total Posts : 260
   Posted 7/1/2008 3:51 AM (GMT -6)   

Hi everyone,

   Thanks for all the replies:

     Red Rose, Do you know if your gall bladder needing to be removed was caused by lupus inflamation or some other cause? Did they find any lesions? They found lesions that lead from my gall bladder into my small intestins.  I find out Wednesday what the Pathology is. Im scared. Worried it could be cancer. Any info would be much appreciated. Thanks, Bella


dx jan 06:
sle, leukopenia, neuropathy, interstitial cystitis, raynaud's, dermatomyositis may 07


redrose77
Veteran Member


Date Joined Sep 2005
Total Posts : 2573
   Posted 7/1/2008 6:21 AM (GMT -6)   
I wasn't told much about the condition of my gallbladder but they strongly suspect it was the lupus since when I go off Imuran my liver function tests start to be abnormal and going back on normalizes them in a month of less.
Dx:fibromyalgia 2002, systematic lupus 2005- definate CNS involvement dxed late 2005, psoriasis 2006, rheumatoid arthritis 2006, PTSD 2007, multiple allergies 2005, migraine, compression fractures T11 & T12, Sjögren's, damaged periphrial nerves 2007,
Tx: plaquenil, Enbrel, Darvocet, Singulair, Flexeril, Baby Asprin, Imuran, Procardia, Prilosec


LadyTsuguri
New Member


Date Joined Jan 2009
Total Posts : 17
   Posted 4/12/2009 9:48 AM (GMT -6)   
Hey there,
 
I just had my gallbladder removed due to it only functioning at 21% and causing me a whole lot of pain. I was diagnosed with Lupus not too long before that, and I had NO reason to suspect Lupus as the cause.
 
But, recently I went to the official Lupus website, Lupus Foundation of America, and found out Lupus CAN affect your gallbladder and Bile duct. My surgeon said my Gallbladder was chronically inflamed and he said I have fibrous tissue in my bile duct. He also said my insides were sticky and he had a hard time getting my gb out. And he suspected it to be due to my Lupus. So, yes you can have a bad gallbladder from lupus.

purplerose652
Regular Member


Date Joined Mar 2006
Total Posts : 124
   Posted 4/14/2009 11:54 PM (GMT -6)   
When I was 23 I had my gall bladder removed and was told at that time that alot of the symptoms I was having was from the diseased gallblader. But now that I have found out 20 years later that I have Lupus I believe (as does my Rheumy) that I had Lupus 20 years ago. My Rheumy has said that there may be a link between Lupus and Gallbladder disease.
Take Care,
 
Renee
 
"Grace by which I stand."
 
Fibromyalgia, IBS,Gerd, Scoliosis, & Costochondritis, Lupus
 
 


okie
Veteran Member


Date Joined Dec 2006
Total Posts : 2818
   Posted 4/15/2009 9:48 AM (GMT -6)   
I had problems 4 months after my son was born. The dr. said that was normal because everything gets shifted around. I spent a week in pain in the hospital. They think I pased a stone because the pain went away. 20 years later I had it out because it was completely clogged with stones. The size of marbles. He gave them to me. YUCK! He said in order for them to be that big they must have been growing for 20 years. which means they were a problem since I was pregnant.
let us know how it turns out. Try not to worry I know it's not easy but I'll be thinking good thoughts along with ya!
hugs
 CAROL
Possible scleroderma.  stage 4 COPD, sleep apnea, Osteoporosis,osteoarthritis
Prednisone,plaquanil400mg,azythromyacin,vicodin 4x5mg,Evista60mg, Effexor 150mg,Xanax 1.0 x3,Singular,nitro spray, provigil 200mg spirivia,aciphex,lasix ,pot.chlor.,B12 ,iNDEROL
 
Bear ye one another's burdens
Galatians 6:2 KJV

 
 


puccini914
Regular Member


Date Joined Jun 2008
Total Posts : 363
   Posted 4/18/2009 5:13 PM (GMT -6)   
Had mine yanked in 1996. I had had gallbladder like pain that they just couldn't diagnose. Nothing showed up on anything, I even had a hydascan with cck, which made me horribly ill but still showed nothing. I finally saw a specialist at a diagnostic center in Clearwater, FL. He did an endoscope and took samples from my gall bladder. Turns out that instead of forming visible stones, mine was producing tiny crystal shards that would cut up the inside of my gall bladder everytime it would contract. He took it out laproscopically(which was pretty new back then) and after a weeks bed rest, I was fine. I haven't had any abdominal or shoulder pain since. Who knows if it was Lupus way back then, I guess we'll never reallly know for sure.

Jennifer

PCP pretty convinced- Lupus , Taking plaquenil,Propranolol,  Flexeril,Claritin, Zantac,Ambien,vitamin B-12, multi- vitamin, Lortab.   Mom of 2 boys 1 and 6.  Symptoms: Fatigue, joint pain, heat/sun sensitivity, mouth and nose sores, malar rash, migranes, awful hives, positive ANA, and RF.

 

 


LarryB
New Member


Date Joined May 2009
Total Posts : 1
   Posted 5/2/2009 10:24 PM (GMT -6)   
I had mine removed 4 years ago. Doctor said that it was just inflamed,no  stones. She was surprised. few days after going home i ended back in the ER. Blood clot to the lungs. My surgen was beside herself and wanted to find out why this happened....well she found out that i had lupus-anticoagulant.More test came back positive for lupus. Was put on blood thinners for life. Now i have RA of all my joints. Have to learn to deal with the pain.

Sam in Louisiana
New Member


Date Joined Apr 2010
Total Posts : 1
   Posted 4/12/2010 9:30 PM (GMT -6)   
I realize it has been some time since you made this post.  I am new to this site and have never done or shared information regarding my DX of Lupus, or shall I say Connective Tissue Diffuse.  I do believe that Lupus can cause gallbladder problems.  I was DX with CTD/Lupus 2003.  It took several months and hospitalization before the DX was made as my symptoms varied so.  In 2005 they ran a CAT scan of my mid-section and found that I had 2 cyst on my pancrease, thicking of the wall in my gallbladder, fibroids inner and outer of the urterus, and a dropped bladder.  Needless to say, my number of specialist increased after that.  Just last week, I had my gallbladder removed.  I've been unable to work for about 2 months now.  As usual, my symptoms aren't consistent.  When I started out, I thought I had a 24 hour stomach virus that was going around.  After two and a-half days of throwing up, none stop, I went to see a doctor.  My white blood cell count had dropped to 3 and I tested positive for the H-polyri bacteria.  Neither of these are consistent with gallbladder problems.  I had an upper GI and biopsy done that came out ok.  Then they started looking at the gallbladder.  I had an ultrasound done and they only found sludge in the gallbladder, no stones.  I then had a Hydia scan done. My ejection fraction rate was 14%. Because of the lupus and inconsistent symtoms, it took an additional 3 weeks and more test before they removed my gallbladder.  I go back for my post-op follow-up tomorrow.  I can't wait to hear what they found in the pathology report. 
 
I hope that everything turned out alright for you.
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