Leave it to me.....

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jhmom
Veteran Member


Date Joined Oct 2004
Total Posts : 2244
   Posted 6/30/2008 6:52 PM (GMT -7)   
Ok, so my rheumy wanted me to try to come off NSAIDS (piroxicam) thinking that hopefully the Mtx & plaq are working on my joint pain. Instead of taking them daily like I had been she wanted me to take them as needed.

Over the last couple of weeks I have not been feeling well and Saturday morning I woke up with these weird pains on the right side of my head. Over the course of the day it turned into an earache. I saw my PCP today and guess what????? My ear was clear... no infection..... so what's causing my pain?????? YEP you got it..... LUPUS!!!! She thinks it's inflammation in the cartilage and/or joint near my ear.

It's really true.... lupus can wreck havoc on any part of your body!!!!! mad

Thanks for listening to my whine/vent. I hope everyone is having a wonderful pain free week! Hugs to all
Stacie

Trust in the Lord with all thine heart, and lean not unto thine own understanding ~ Proverbs 3:5 ~

DX: Hashimoto's, Celiac Disease, Raynaud's, Lupus and Sjogrens
RX: Imuran, Plaquenil, Methotrexate, Flexeril, Piroxicam, Levoxyl, Folic Acid, Lortab (as needed) and magic mouthwash (for mouth sores)

Post Edited (jhmom) : 6/30/2008 8:07:33 PM (GMT-6)


cured4real?
Veteran Member


Date Joined Dec 2005
Total Posts : 1944
   Posted 6/30/2008 7:02 PM (GMT -7)   
(((((Stacie)))))) Sorry about your ear. That kind of ear pain hurts, I had an infection that got bad from a pierced earring and I thought that was bad. Luckily they found it soon. I stayed on my pain meds for five years and now I'm sick and hurting. It's always a surprise when we stop them. I hope they get you on the mend soon.
Love, Marji
--Sometimes I think the surest sign that intelligent life exists elsewhere in the universe is that none of it has tried to contact us. Bill Watterson (1958-) cartoonist "Calvin and Hobbes"
Ills--Sjogrens-Lupus-like AI Disease, Hashis, Vitiligo, spinal stenosis/fusion with plate, salivary/lymphectomies, Diabetes, NAFLD, COPD, RLS, neuropathy, trigonitis, hystero, diffuse brain atrophy, GI nightmare
Meds--Plaquenil, Evoxac, Metformin, Synthroid, HCTZ, Estradiol patch, Prosed, Detrol, Klonopin, Ultram, Vicodin, Restasis, Albuterol, steroid injections and pred prn


Lynnwood
Forum Moderator


Date Joined May 2005
Total Posts : 7019
   Posted 6/30/2008 7:10 PM (GMT -7)   
I've had vertigo for about 10 days, the last few added some awfully swollen & sore lymph nodes all over my head & neck. So today the dr gave me some antibiotics....guess what?

Now, now after 10 days, my ears start to hurt. Man, mix a wild lupus inflammation & a handful of meds and you never know what's going to happen next!

And, at least your dr thinks it's lupus related....my dr is sticking to the line "we don't know much about vertigo".........ARG!

Hope we all have calm, well functioning ears in the AM

Lynnwood, Co-Moderator: Lupus Forum
SLE(’00), Sjogren's Syndrome, Raynaud's Syndrome, SAD, Depression, Herpes Simplex 1
Piroxicam, Plaquenil, Prednisone(was 15mg, now 8mg), Cellcept, Xanax, Trazodone, Boniva(3mth shot), Wellbrutrin SR, Valtrex
Links: DIAGNOSING LUPUS (4 of 11), LUPUS INFORMATION, LUPUS RESOURCES, Donate to HealingWell, Drug Interactions


AlwaysRosie
Veteran Member


Date Joined Jan 2005
Total Posts : 8616
   Posted 6/30/2008 7:47 PM (GMT -7)   
*sigh*

((((((((( Stacie ))))))))))))) ((((((((( Marji ))))))))))) (((((((((((((Lynnwood )))))))))))


Blessings!

In His Grip

AlwaysRosie           "We can't control the waves, but we can learn how to surf!!"

Psalms 139

Co-Moderator - Lupus Forum

UCTD, Inflammatory Arthritis, Diverticulosis, (recent dx - Sjogrens, Crohn’s 4/08)

Clickable Links:  Lupus Resources    Lupous.Org   Lupus Criteria (4 of 11)   Lupus Chapter Locator


joinery
Regular Member


Date Joined Oct 2007
Total Posts : 323
   Posted 6/30/2008 8:21 PM (GMT -7)   
What next so far lupus affects just about every part of our body. Yuck!! Hope all of you feel better soon. Debbie
Asthma,Lupus,H.B.P.,Dermatomyostis,Gastrparsis,Acid Reflux   
                Panic Attacks,Osteopenia,Thyroid  
  Reglan,Protonix,Synthroid,Plaquenil,Quinacrine,Flexeril,Zetia,Zoloft,Xnanx,Celebrex,Abuterol,  
  Advair,Diovan,Actonel,Prednisone on and off Eye Drops,VitaminD.     
 
 
 
 


redrose77
Veteran Member


Date Joined Sep 2005
Total Posts : 2573
   Posted 7/1/2008 4:25 AM (GMT -7)   
Inflammation in the jaw joint can cause severe ear pain w/o jaw pain depending on how bad and the cause.
Dx:fibromyalgia 2002, systematic lupus 2005- definate CNS involvement dxed late 2005, psoriasis 2006, rheumatoid arthritis 2006, PTSD 2007, multiple allergies 2005, migraine, compression fractures T11 & T12, Sjögren's, damaged periphrial nerves 2007,
Tx: plaquenil, Enbrel, Darvocet, Singulair, Flexeril, Baby Asprin, Imuran, Procardia, Prilosec


hippimom2
Veteran Member


Date Joined Jul 2005
Total Posts : 5403
   Posted 7/1/2008 5:46 AM (GMT -7)   
Oh no, Stacie - that really stinks. I would never think of lupus causing ear problems, but after reading what happened to you and others that posted, I guess lupus can really attack any part of our bodies. I guess no part of our bodies are safe. I hope you get some relief soon.

Lynnwood, I think your doc needs a few lessons about lupus.
Diagnosis:  UCTD (lupus) 2006; Raynauds 2006; Sjogren's 2006; lupus symptoms began 2003; UC 2008; CFS 1991; Mono 1985
Meds:  Plaquenil 400mg; Prednisone 5-10mg; Tramadol 100mg 3-4x daily; Doxepin 25-50mg; Prevacid; Evoxac; Steriod Cream and Mouth Rinse for tongue and mouth ulcers; Hydrocodone 5/500 prn for severe pain; Artificial tears

 

Clickable:  LUPUS INFORMATION & LUPUS RESOURCES.

Please allow HealingWell to continue helping others by donating: http://www.healingwell.com/donate/

 

Co-Moderator: Lupus and CFS Forums



Trying2BFree
Regular Member


Date Joined Oct 2005
Total Posts : 251
   Posted 7/1/2008 8:15 AM (GMT -7)   
Hmmm, this is interesting. I've been having ear pain, no infection or redness. My GP thinks it's coming from my jaw....like redrose mentioned.

I hope you get to feeling better Stacie.


Jeannie 
SLE diagnosis 10/05 now changed to RA 3/06, Endometriosis 5/05, PCOS 1990
Meds: Metformin ER 1500mg (PCOS); Loestrin BCPs (Endo); Methotrexate 15mg (RA); Metanx 5mg (RA); Orencia 750mgs (RA); Lunesta 2mg (as needed); Prevacid


AlwaysRosie
Veteran Member


Date Joined Jan 2005
Total Posts : 8616
   Posted 7/1/2008 12:53 PM (GMT -7)   
The jaw issue is actually common in AI disease. Sorry to all who deal with it. I have it on occasion and I'm always glad it doesn't hang around long. It sometimes heralds a flare.

*sigh*

Blessings!

In His Grip

AlwaysRosie           "We can't control the waves, but we can learn how to surf!!"

Psalms 139

Co-Moderator - Lupus Forum

UCTD, Inflammatory Arthritis, Diverticulosis, (recent dx - Sjogrens, Crohn’s 4/08)

Clickable Links:  Lupus Resources    Lupous.Org   Lupus Criteria (4 of 11)   Lupus Chapter Locator


sjkly
Veteran Member


Date Joined Dec 2007
Total Posts : 2113
   Posted 7/1/2008 5:58 PM (GMT -7)   
I too have the jaw causeing ear aches thing going on intermittently.
I had to give up my NSAIDS and trust in just mtx and plaq because after ten days on mtxmy blood hematocrit level plumeted and doc said its the mtx interacting with the NSAID so no more sulindac for me.

mom46
Veteran Member


Date Joined Dec 2004
Total Posts : 8198
   Posted 7/1/2008 6:06 PM (GMT -7)   
Stacie,
   (((Hugs))), I'm sorry your having the ear pains on top of everything else right now. I'm sure you are very frustrated. I have alot of ear pain as well with no infection. I hope this clears up for you soon. Take care and keep us updated. You are in my thoughts and prayers.
                                                                   Love ya sis, Babs
 
Dx: Lupus,RLS,RA,Asthma,Fibro,Sjogren's,Raynaud's,Divertic, Stroke,Atherosclerosis,Seizures,Neuropathy,CAD
Meds:arava,prednisone,plavix,aspirin,protonix,,zanaflex,xanax,
mirapex,advair,foxamax,Vytorin,folicacid,lunesta,Tramadol
 
JOB 5:18 For he wounds, but he also binds up; he injures, but his hands also heal.


DQueen
Regular Member


Date Joined Jun 2008
Total Posts : 88
   Posted 7/2/2008 1:48 PM (GMT -7)   
I actually have been having ear pain too, as well as strange pains in my head. Mine is also accompanied by pain when I swallow sometimes. Anyone else have this? I have not seen a dr about any of this, because I didn't really think it was necessary. A friend suggested it may be a migraine, but it has lasted several days, and I'm also VERY tired. The weird thing is, I was just at the rhuematologist (didn't mantion it to them) and all of my labs looked ok.

Lots of Love!
DQueen
 
 
 
Lupus, Rheumatoid Arthritis, High Blood Pressure, Anemia, Congestive Heart Failure, Kidney Failure


jhmom
Veteran Member


Date Joined Oct 2004
Total Posts : 2244
   Posted 7/2/2008 6:42 PM (GMT -7)   
Thank you Marji, Lynn, Rosie, Debbie, Red, Hippi, Jeannie, sjkly, Babs & DQueen.... I never thought that Lupus would be behind this ear / head pain, I really thought it was an ear infection and the inflammation was pressing on a nerve and causing the weird head pain but it was clear as a bell.

Monday I started back on the NSAIDS (piroxicam) and I've only had a few twinges of pain. I really have to remember to mention this to my rheumy and let her know she can NEVER try to change my meds again. Every time she does I have some new pain some where in my body! The last time it was chest pains when I came off plaquenil.

Thank you again everyone, you all are so wonderful and supportive... I don't know what I would do without you. (((hugs))))
Stacie

Trust in the Lord with all thine heart, and lean not unto thine own understanding ~ Proverbs 3:5 ~

DX: Hashimoto's, Celiac Disease, Raynaud's, Lupus and Sjogrens
RX: Imuran, Plaquenil, Methotrexate, Flexeril, Piroxicam, Levoxyl, Folic Acid, Lortab (as needed) and magic mouthwash (for mouth sores)

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