Pulmonary Embolism

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MJLD
Veteran Member


Date Joined Jul 2007
Total Posts : 1048
   Posted 7/5/2008 4:12 AM (GMT -7)   
Hey y'all!  I'm home from my third admission in a month.  I just spent 7 days in the hospital.  I went into the ER with extreme shortness of breath.  My oxygen sats were low and my heart rate was high.  They admitted me and done a VQ scan on Sunday which showed that I had a Pulmonary Embolism in the right upper lobe of my lung.  I was put on strict bed rest and given heparin for 5 days IV.  I also had to have another 2 units of blood.  It was super scarey.  I will be on coumadin for the rest of my life.  My kidney function is hovering between 16 to 18 percent.  They were unable to put in my access for dialysis at this time due to everything else going on. 
 
On the brighter side of life, my book is finally published!  Yay!  It's been a long process!  I hope you all are doing well.  God Bless, Judy

joinery
Regular Member


Date Joined Oct 2007
Total Posts : 323
   Posted 7/5/2008 4:40 PM (GMT -7)   
MJD, Geez you went through alot this month. I was 18 when I had a embolism 2 days after an opration, I was in so much pain and couldn't breath thank god I was still in the hospital. I spent 1 month in there. I was also on heparin iv, started coumadin after I got out of the hospital, but not for life. Before an opration I have to get a shot of lovenox. You sound good after what you went through. I'm happy to hear about your book, you have being working on that for awhile. Let us know the title of your book. Congradulation!!!!! Debbie
Asthma,Lupus,H.B.P.,Dermatomyostis,Gastrparsis,Acid Reflux   
                Panic Attacks,Osteopenia,Thyroid  
  Reglan,Protonix,Synthroid,Plaquenil,Quinacrine,Flexeril,Zetia,Zoloft,Xnanx,Celebrex,Abuterol,  
  Advair,Diovan,Actonel,Prednisone on and off Eye Drops,VitaminD.     
 
 
 
 


MJLD
Veteran Member


Date Joined Jul 2007
Total Posts : 1048
   Posted 7/5/2008 6:32 PM (GMT -7)   
Joinery,
Thanx so much for your reply. The reason I will be on coumadin for life is because I have a protein (Alpha 1, Beta 2 Immunoglubulin A Glycoprotein) that makes me more prone to clots. And I also have A fib, which also makes you more prone to clots. I would love to share the title of my book, but I don't think I can inside the forum. I believe it's against the rules. You can e-mail me if you like. Thanks, Judy

Ginny
Veteran Member


Date Joined Feb 2003
Total Posts : 5514
   Posted 7/5/2008 8:57 PM (GMT -7)   
Judy, you've been through so much.  I can absolutely relate to how scary that all must have been.  I'm on life long coumadin too. I sure feel better when I'm theraputic!  It makes a big difference to how you actually feel physically, to have your blood at the right consistancy.  If you have any questions about coumadin, just ask me.  I have a lot of experience with it, and hopefully I can be of help to you.
 
Ginny
I can do anything through Jesus Christ who strengthens me. I have learned in whatever state I am in,to be content. Phillipians 4:11-13

34 years old. Diagnosed with lupus in 2000. Fibromyalgia, anti-phospholipid syndrome(APS)(stroke),Sjogren's, Raynaud's, seizure disorder-(miraclulously disappeared!), Libman Sach's Endocarditis, vasculitis, sacroiliitis, arthritis (neck) . Prednisone, Imuran, Coumadin, Clobazam, Amitriptyline, didrocal, Cozaar, calcium, Cykolokapron, multi-vitamin, vitamin D, Magnesium, vitamin B6, Acidophilus


MJLD
Veteran Member


Date Joined Jul 2007
Total Posts : 1048
   Posted 7/5/2008 9:06 PM (GMT -7)   
Ginny,
Thank you so much! As a matter of fact I do have a question. I have to have a PT/INR on Monday. Do I need to have it drawn at a certain time of day? Does it matter what time I take my medicine that day? Thanx, Judy

Ginny
Veteran Member


Date Joined Feb 2003
Total Posts : 5514
   Posted 7/6/2008 8:08 AM (GMT -7)   
HI Judy,
 
It's advised to get your INR done early enough in the day for your doctor to receive the results and call you before their office closes.  Many people ask their doctors for a STAT requisision to take in to the lab every time.  That way, you're guaranteed to get your results back same day.  It doesn't help you one bit to get the results back the next day because you have to take a dose before bed.  You need to know if your dose needs a change or not. 
 
So taking your coumadin with your bedtime meds is the best way to go. 
 
Here in Canada, a stat test can be entered into the computer system so you don't need a piece of paper every time you go in.  If you need a paper every time, just make a wack of copies of the original!
 
Good luck on Monday!  I have to go that day too!
 
Ginny
I can do anything through Jesus Christ who strengthens me. I have learned in whatever state I am in,to be content. Phillipians 4:11-13

34 years old. Diagnosed with lupus in 2000. Fibromyalgia, anti-phospholipid syndrome(APS)(stroke),Sjogren's, Raynaud's, seizure disorder-(miraclulously disappeared!), Libman Sach's Endocarditis, vasculitis, sacroiliitis, arthritis (neck) . Prednisone, Imuran, Coumadin, Clobazam, Amitriptyline, didrocal, Cozaar, calcium, Cykolokapron, multi-vitamin, vitamin D, Magnesium, vitamin B6, Acidophilus


MJLD
Veteran Member


Date Joined Jul 2007
Total Posts : 1048
   Posted 7/6/2008 11:58 AM (GMT -7)   
Thanx Ginny! How are you doing? You have been in my thoughts and prayers! God Bless You, Judy

AlwaysRosie
Veteran Member


Date Joined Jan 2005
Total Posts : 8616
   Posted 7/6/2008 5:43 PM (GMT -7)   
(((((((((((( Judy )))))))))))))

OH . . . I bet you were scared! I'm so glad they figured it out and got your blood thinned.

Sorry you missed your dialysis. I bet its difficult waiting to have this done. Are you feeling whipped? I hope your first dialysis goes well. When are you scheduled??

Congrats on your book!! I think you can name it. You just can't advertise it with a link or a message to email you.

Blessings!

In His Grip

AlwaysRosie           "We can't control the waves, but we can learn how to surf!!"

Psalms 139

Co-Moderator - Lupus Forum

UCTD, Inflammatory Arthritis, Diverticulosis, (recent dx - Sjogrens, Crohn’s 4/08)

Clickable Links:  Lupus Resources    Lupous.Org   Lupus Criteria (4 of 11)   Lupus Chapter Locator


MJLD
Veteran Member


Date Joined Jul 2007
Total Posts : 1048
   Posted 7/6/2008 7:07 PM (GMT -7)   
Thanx Rosie! I am pretty tired. The hospital that I use doesn't have a vascular surgeon at this time, they have a cardio thoracic surgeon. My nephrologist doesn't feel comfortable with that. There is a vascular surgeon coming in August. So, she is hoping I can hold out until then and be fully recovered from the clot. It was one of the scariest things that has ever happened! The name of my books is "The Beauty Of Pain" by Judy L. Dillard.
It is about my lupus experience. There is actually some humor in it also. My prayer is that it will help and encourage someone! God Bless you all, Judy

joinery
Regular Member


Date Joined Oct 2007
Total Posts : 323
   Posted 7/6/2008 8:56 PM (GMT -7)   
MJD, I was trying to find out how to get your e-mail address I'm really not good with computers. So now I know the title of your book I'll be looking for it. Tomorrow I have to go to the hospital for a sleep study test which I think will be a waist. So I will be bringing a book to read, It will relax me a little better since I do like to read when I 'm not flareing and in a fog. Good Luck with your book. Debbie
Asthma,Lupus,H.B.P.,Dermatomyostis,Gastrparsis,Acid Reflux   
                Panic Attacks,Osteopenia,Thyroid  
  Reglan,Protonix,Synthroid,Plaquenil,Quinacrine,Flexeril,Zetia,Zoloft,Xnanx,Celebrex,Abuterol,  
  Advair,Diovan,Actonel,Prednisone on and off Eye Drops,VitaminD.     
 
 
 
 


MJLD
Veteran Member


Date Joined Jul 2007
Total Posts : 1048
   Posted 7/6/2008 10:21 PM (GMT -7)   
Debbie,
Thanx so much! My doctor has ordered for me to have a sleep study. I soooo dread it! Let me know how it goes and good luck to you.
God Bless You, Judy

Wattsnex
Regular Member


Date Joined Nov 2006
Total Posts : 27
   Posted 7/7/2008 6:18 AM (GMT -7)   
MJLD,
Sorry to hear you are having so much pain, I think I know what you are going through. I too have high anticoagulant antibodies and am on Coumadin for the rest of my life. It is scarry the first time (and hopefully the last) you go through the pulmonary embolism. I had one, it will be 2 years this August. Thought I was having a heart attack. I smoked most of my adult life but quit 7 years ago, thank goodness, so I could only think the worst when all this pain and shortness of breath presented itself rather suddenly. The embolism developed into pleurisy, I had an amniocentesis. Then a few months afterwards I had a TIA and that is when I took the Coumadin Therapy very seriously. I have a very good vascular surgeon who pulled me out 2 x's in the last year. I had a stent put in the subclavian artery and had a bypass to the arterial blood supply to the intestine which the time before the surgery I had lost 52#'s and had constant diarhea for 5 months straight, I came close to losing the intestines. Went to 4 Gastro. Drs and not one diagnosed the problem, but the v. surgeon did a doppler and knew right away what was happening. He is doing a Renal Doppler on me at the end of the month. Please keep us informed of your progress. I also have Diabetes which further more adds to the complications.
My best wishes for the success of your new book "The Beauty of Pain"; I am looking forward to reading it.
God Bless
Carol (from NJ)
Wattsnex

MJLD
Veteran Member


Date Joined Jul 2007
Total Posts : 1048
   Posted 7/7/2008 7:19 AM (GMT -7)   
Thanx so much Carol. Wow! You've had quite an experience. I feel blessed that I didn't develop serious complications from the clot. I too am on insulin right now, due to the massive steroids they gave me iv in the hospital. It always does me in! By the way, welcome to the forum! Keep your chin up! You will find lots and support and sound advice and friends on this forum! God Bless You, Judy

AlwaysRosie
Veteran Member


Date Joined Jan 2005
Total Posts : 8616
   Posted 7/7/2008 7:20 AM (GMT -7)   
Judy,

You should email Peter, the Administrator of the forum. His email address is Admin@HealingWell.com

Tell him about your book and ask him if it could be listed at the "Lupus Resource Center". If it were listed there, you could actually include a link in your signature to direct people to it.

It sounds like a winner!

Let us know when they schedule your dialysis sis. You might want to check out Ginny's post on Post Traumatic Stress. It seems you two could be a comfort to each other. Our new member Carol (Wattsnex) would fit that category too. (((((((( Judy, Ginny, Carol ))))))))))

Blessings!

In His Grip

AlwaysRosie           "We can't control the waves, but we can learn how to surf!!"

Psalms 139

Co-Moderator - Lupus Forum

UCTD, Inflammatory Arthritis, Diverticulosis, (recent dx - Sjogrens, Crohn’s 4/08)

Clickable Links:  Lupus Resources    Lupous.Org   Lupus Criteria (4 of 11)   Lupus Chapter Locator

Post Edited (AlwaysRosie) : 7/7/2008 8:24:54 AM (GMT-6)


MJLD
Veteran Member


Date Joined Jul 2007
Total Posts : 1048
   Posted 7/7/2008 11:44 AM (GMT -7)   
Rosie,
You are one of the most compassionate supportive people I have ever had the privilege of meeting! God Bless you for all of your kind words and comfort to each of us in the midst of your own suffering! Thanx for the advice! Judy

Ginny
Veteran Member


Date Joined Feb 2003
Total Posts : 5514
   Posted 7/7/2008 12:10 PM (GMT -7)   
Rosie that's an excellent idea to contact Peter! Good thinking.  I'll be looking for your book too Judy.  Will you be selling it online?
I can do anything through Jesus Christ who strengthens me. I have learned in whatever state I am in,to be content. Phillipians 4:11-13

34 years old. Diagnosed with lupus in 2000. Fibromyalgia, anti-phospholipid syndrome(APS)(stroke),Sjogren's, Raynaud's, seizure disorder-(miraclulously disappeared!), Libman Sach's Endocarditis, vasculitis, sacroiliitis, arthritis (neck) . Prednisone, Imuran, Coumadin, Clobazam, Amitriptyline, didrocal, Cozaar, calcium, Cykolokapron, multi-vitamin, vitamin D, Magnesium, vitamin B6, Acidophilus


AlwaysRosie
Veteran Member


Date Joined Jan 2005
Total Posts : 8616
   Posted 7/7/2008 12:29 PM (GMT -7)   
*blush*

This forum helps ME way more than I help it! Whatever I issues I face on a regular basis are minor when I see the struggles that lots of members here cope with. It makes me appreciate ALL that works correctly in my body . . . . LOL.

Ya gotta love this place. (Remember to click on the ad banners, as it will help Peter to keep this place ticking!! We can also donate a couple bucks here and there . . . but Peter knows that lots of member here just can't afford it.)

Blessings!

In His Grip

AlwaysRosie           "We can't control the waves, but we can learn how to surf!!"

Psalms 139

Co-Moderator - Lupus Forum

UCTD, Inflammatory Arthritis, Diverticulosis, (recent dx - Sjogrens, Crohn’s 4/08)

Clickable Links:  Lupus Resources    Lupous.Org   Lupus Criteria (4 of 11)   Lupus Chapter Locator

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