Well . . . I was wondering about
the kidney(s) because of the blood and no sign of trouble in the bladder. But I know so little about
such things that I thought some of the kidney folks would likely see your post over the next week and speak from more knowledge.
With your symptoms, the biopsy would actually buy piece of mind or diagnosis. So, great either way. I mean, I wouldn't want to do a Kidney bx too casually . . . but you've got some real issues.
The expert Lupus doc will likely know some great referrals too. So that will also be a huge benefit.
I know this really scary . . . I hope the JHU doc figures things out. Is that Johns Hopkins??? GREAT!!
Hang on . . . the kidney gals here are really helpful and they know lots about
this stuff. Maybe edit your first post (click on the pencil in the upper right of the post) to change your title to include "Kidney Issue?" And they'll be more likely to read your post.
I hope that helps.
In His Grip
AlwaysRosie "We can't control the waves, but we can learn how to surf!!"
Co-Moderator - Lupus Forum
UCTD, Inflammatory Arthritis, Diverticulosis, (recent dx - Sjogrens, Crohn’s 4/08)
Clickable Links: Lupus Resources Lupous.Org Lupus Criteria (4 of 11) Lupus Chapter Locator