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jessierose
Regular Member


Date Joined Jan 2008
Total Posts : 102
   Posted 7/8/2008 6:27 AM (GMT -6)   
Does anyone get cold sores with there lupus. Im in the middle of decreasing my predisone and will be switching from Imuran to cellcept. could this be a flare or a sign that things may get worse. Help!!!
JessieRose
 
 
SLE, APS, Food Allergies, Gerd, Migrains
Prilosec, zoloft, Plaquenil, asprin, predisone, Imuran, noratriplyine.


hippimom2
Veteran Member


Date Joined Jul 2005
Total Posts : 5403
   Posted 7/8/2008 10:24 AM (GMT -6)   
Jessie, it can be hard sometimes to tell whether they are cold sores or mouth ulcers/sores from lupus. Getting sores in your mouth can be a sign of the start of a flare. I usually get them when I'm flaring. It would make sense that this might be happening when you are changing your meds around. Prednisone tapering can be really hard.

I hope you don't end up in a flare. When will you be able to start your cellcept?
Diagnosis:  UCTD (lupus) 2006; Raynauds 2006; Sjogren's 2006; lupus symptoms began 2003; UC 2008; CFS 1991; Mono 1985
Meds:  Plaquenil 400mg; Prednisone 5-10mg; Tramadol 100mg 3-4x daily; Doxepin 25-50mg; Prevacid; Evoxac; Steriod Cream and Mouth Rinse for tongue and mouth ulcers; Hydrocodone 5/500 prn for severe pain; Artificial tears

 

Clickable:  LUPUS INFORMATION & LUPUS RESOURCES.

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jessierose
Regular Member


Date Joined Jan 2008
Total Posts : 102
   Posted 7/8/2008 11:30 AM (GMT -6)   
will prob start cellcept in a couple of weeks, I just had a ultrasound of my lungs and it showed fluid around them so Im going to guess that I will be increasing the pred again. I have never had a cold sore before so this is wierd to me. I usually get them in my nose( I know thats gross). Gosh I just want to get on top of this and feel good starting to get really depressed....
JessieRose
 
 
SLE, APS, Food Allergies, Gerd, Migrains
Prilosec, zoloft, Plaquenil, asprin, predisone, Imuran, noratriplyine.


hippimom2
Veteran Member


Date Joined Jul 2005
Total Posts : 5403
   Posted 7/8/2008 6:35 PM (GMT -6)   
It really stinks to feel like you can't get on top of your health and get to a place where you are feeling better for a while. The rollercoaster ride we so often are on with this disease can be so hard. I'm sorry you are going through so much. Hang in there.
Diagnosis:  UCTD (lupus) 2006; Raynauds 2006; Sjogren's 2006; lupus symptoms began 2003; UC 2008; CFS 1991; Mono 1985
Meds:  Plaquenil 400mg; Prednisone 5-10mg; Tramadol 100mg 3-4x daily; Doxepin 25-50mg; Prevacid; Evoxac; Steriod Cream and Mouth Rinse for tongue and mouth ulcers; Hydrocodone 5/500 prn for severe pain; Artificial tears

 

Clickable:  LUPUS INFORMATION & LUPUS RESOURCES.

Please allow HealingWell to continue helping others by donating: http://www.healingwell.com/donate/

 

Co-Moderator: Lupus and CFS Forums



jhmom
Veteran Member


Date Joined Oct 2004
Total Posts : 2244
   Posted 7/9/2008 6:35 PM (GMT -6)   
((( Jessie )))) I usually get mouth sores when I am in a flare or if I skip some of my doses of folic acid, I take 3 mg a day. Be sure to mention them to your doctor, he/she can prescribe a "magic mouthwash" and dental paste to help with the pain. Hang in there
Stacie

Trust in the Lord with all thine heart, and lean not unto thine own understanding ~ Proverbs 3:5 ~

DX: Hashimoto's, Celiac Disease, Raynaud's, Lupus and Sjogrens
RX: Imuran, Plaquenil, Methotrexate, Flexeril, Piroxicam, Levoxyl, Folic Acid, Lortab (as needed) and magic mouthwash (for mouth sores)

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