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Lynnwood, Co-Moderator: Lupus ForumSLE(’00), Sjogren's Syndrome, Raynaud's Syndrome, SAD, Depression, Herpes Simplex 1Piroxicam, Plaquenil, Prednisone(was 15mg, now 8mg), Cellcept, Xanax, Trazodone, Boniva(3mth shot), Wellbrutrin SR, ValtrexLinks: DIAGNOSING LUPUS (4 of 11), LUPUS INFORMATION, LUPUS RESOURCES, Donate to HealingWell, Drug Interactions
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AlwaysRosie "We can't control the waves, but we can learn how to surf!!"
Co-Moderator - Lupus Forum
UCTD, Inflammatory Arthritis, Diverticulosis, (recent dx - Sjogrens, Crohn’s 4/08)
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The lower you go the slower you go. Once under 10mg it can be difficult for some people. I would not kick it up on your own as that is defeating the taper and adjustment your adrenals have to make. Some people make it smoothly, some don't and some need a maintenance dose indefinitely.
Adrenals produce 7-10mg of cortisol (same as prednisone) naturally and when you take large doses of pred the adrenals shut down their production. Tapering problems can occur at much higher doses but are common below 10 or 15mg. Sometimes adrenal glands can atrophy and will not kick in.
At any rate you should go very, very slowly under the direction of your doctor. Taking prednisone is not like taking aspirin.... Flipping back and forth might make you feel better temporarily but it might be making it harder to eventually taper. You are "flipping your adrenal switch" on and off like a light switch when you do that and that is not good for your body.
My doctors were taking a minimum of 2 months for each 1 mg of taper below 10mg and I had no problems. The only problems I had were reducing from much higher doses but those reactions only lasted a few days. They stopped at 5mg due to a reaction from imuran and did not want to taper prednisone for another year. Hopefully next year.
Hope you can eventually get off pred but don't be in a rush.