UV Light Bulbs (CFL's) - Lupus Foundation Chat

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AlwaysRosie
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Date Joined Jan 2005
Total Posts : 8616
   Posted 7/11/2008 9:27 AM (GMT -7)   
Hey friends,

I just wanted to let you know that the Lupus Foundation (at least in Cleveland) is really taking these light bulbs seriously.

There was an email the other day asking us to submit personal stories if the new bulbs have affected our disease. There is now legislation that will phase out the incandescent (old style) bulbs, in stages, beginning in 1010. I didn't post a link because we can't post surveys w/o permission . . . but I also couldn't get a link from the message I was sent and I couldn't even Google it to get permission from Peter.

But this is a live Chat on Thursday 7/17 in case you are interested: http://www.lupus.org/webmodules/webarticlesnet/templates/new_communitywebchats.aspx?articleid=517&zoneid=93

Also . . . if you miss it, there is a link on that page to review the transcript later. I usually opt to look at the transcript later . . . its less stressful than following a live chat. LOL . . . that moving screen and multiple people chatting is sometimes too much for me.

Blessings!

joinery
Regular Member


Date Joined Oct 2007
Total Posts : 323
   Posted 7/11/2008 11:08 AM (GMT -7)   
Rosie, That is my lupus Derm. She is a really good I see her next week. DOC. Werth is the who put me on quinacrine.and diagnoise me with ct disorder no other doc. was not sure what was going on with me very good derm. Thanks foe sharing!!!
Debbie
Asthma,Lupus,H.B.P.,Dermatomyostis,Gastrparsis,Acid Reflux   
                Panic Attacks,Osteopenia,Thyroid  
  Reglan,Protonix,Synthroid,Plaquenil,Quinacrine,Flexeril,Zetia,Zoloft,Xnanx,Celebrex,Abuterol,  
  Advair,Diovan,Actonel,Prednisone on and off Eye Drops,VitaminD.     
 
 
 
 


AlwaysRosie
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Date Joined Jan 2005
Total Posts : 8616
   Posted 7/11/2008 11:11 AM (GMT -7)   
Wow Debbie !!!

Small World!! Aren't you blessed!!

In His Grip

AlwaysRosie           "We can't control the waves, but we can learn how to surf!!"

Psalms 139

Co-Moderator - Lupus Forum

UCTD, Inflammatory Arthritis, Diverticulosis, (recent dx - Sjogrens, Crohn’s 4/08)

Clickable Links:  Lupus Resources    Lupous.Org   Lupus Criteria (4 of 11)   Lupus Chapter Locator


Ginny
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Date Joined Feb 2003
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   Posted 7/11/2008 12:32 PM (GMT -7)   
Rosie, thank you for posting this.  It is a very serious problem that we're going to have in the near future with these new lightbulbs.  I'm stockpiling incandescents now.  I will never, ever have a fluorescent or UV bulb in my home. This chat should be interesting.
 
 
I can do anything through Jesus Christ who strengthens me. I have learned in whatever state I am in,to be content. Phillipians 4:11-13

34 years old. Diagnosed with lupus in 2000. Fibromyalgia, anti-phospholipid syndrome(APS)(stroke),Sjogren's, Raynaud's, seizure disorder-(miraclulously disappeared!), Libman Sach's Endocarditis, vasculitis, sacroiliitis, arthritis (neck) . Prednisone, Imuran, Coumadin, Clobazam, Amitriptyline, didrocal, Cozaar, calcium, Cykolokapron, multi-vitamin, vitamin D, Magnesium, vitamin B6, Acidophilus


Ides
Forum Moderator


Date Joined Nov 2003
Total Posts : 7077
   Posted 7/11/2008 9:48 PM (GMT -7)   
I just had the flourescent lights in my kitchen ripped out and replaced because they have been driving me crazy for over 5 years. I haven't had time to look into the subject but am hoping you can tell me if halogen light bulbs cause similiar problems. Sorry to be a slug and unable to do my own research into this!
Moderator Crohn's Disease Forum
CD, Ankylosing Spondylitis, lupus, small fiber peripheral neuropathy, avascular necrosis, peripheral artery disease, degenerative disc disease, and a host of other medical problems.
 


AlwaysRosie
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Date Joined Jan 2005
Total Posts : 8616
   Posted 7/12/2008 1:23 AM (GMT -7)   
Ginny . . . I wonder if your experience (being Canadian) could be reported. I'll forward the email from the Lupus Foundation which includes the info regarding the request for stories about how the CFL's affect those of us with Lupus.

In His Grip

AlwaysRosie           "We can't control the waves, but we can learn how to surf!!"

Psalms 139

Co-Moderator - Lupus Forum

UCTD, Inflammatory Arthritis, Diverticulosis, (recent dx - Sjogrens, Crohn’s 4/08)

Clickable Links:  Lupus Resources    Lupous.Org   Lupus Criteria (4 of 11)   Lupus Chapter Locator


AlwaysRosie
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Date Joined Jan 2005
Total Posts : 8616
   Posted 7/12/2008 1:28 AM (GMT -7)   
Ides . . .

The chat is about Compact Fluorescent Bulbs. The new ones that replace regular bulbs. I'm so sorry you are impacted by the fluorescents too. Be careful when you replace bulbs around your house. The new "curly" ones are having affects on some people who are sensitive to fluorescents.

I don't know about halogen . . . but the initial thought is that the LED lights are less likely to cause trouble than the CFL's and are the most energy efficient. The problem is, they haven't found a reasonably cost effective way to manufacture them for most fixtures. They are great in flashlights because they require such a tiny bit of energy. Your battery lasts WAY long.

If I hear anything about the halogen, I'll try to remember to post it.

Blessings!

In His Grip

AlwaysRosie           "We can't control the waves, but we can learn how to surf!!"

Psalms 139

Co-Moderator - Lupus Forum

UCTD, Inflammatory Arthritis, Diverticulosis, (recent dx - Sjogrens, Crohn’s 4/08)

Clickable Links:  Lupus Resources    Lupous.Org   Lupus Criteria (4 of 11)   Lupus Chapter Locator


Ginny
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Date Joined Feb 2003
Total Posts : 5514
   Posted 7/12/2008 7:38 AM (GMT -7)   
It's an issue up here in Canada too Rosie.  The switch over is already happening up here. In 2010, the drive to replace everything is going to be ramped up and accelerated.  I wish I knew who to contact about this.  Even contacting the media might be worthwhile.  Thank you for forwarding the email!
 
My experience with halogens is good.  I don't seem to have any problems with those ones.  I have a few of my lights in the house with those bulbs, and any store I'm in with halogens don't bother me.  It's sad when you have to walk into a store and look up first to evaluate if what is hanging from the rafters.... Hehe... What's everyone else's experience with halogens?
I can do anything through Jesus Christ who strengthens me. I have learned in whatever state I am in,to be content. Phillipians 4:11-13

34 years old. Diagnosed with lupus in 2000. Fibromyalgia, anti-phospholipid syndrome(APS)(stroke),Sjogren's, Raynaud's, seizure disorder-(miraclulously disappeared!), Libman Sach's Endocarditis, vasculitis, sacroiliitis, arthritis (neck) . Prednisone, Imuran, Coumadin, Clobazam, Amitriptyline, didrocal, Cozaar, calcium, Cykolokapron, multi-vitamin, vitamin D, Magnesium, vitamin B6, Acidophilus


AlwaysRosie
Veteran Member


Date Joined Jan 2005
Total Posts : 8616
   Posted 7/12/2008 9:47 AM (GMT -7)   
Ginny . . . I wouldn't recognize a halogen . . . I must say that I don't go out much. I'm rather a home-body . . . working on little projects here and visiting Mom every week. I love the peace and quiet here and don't do well when I'm away too long.
LOL

Yes . . . by 2010 all the 100 watt bulbs are to phased out! then each lower watt bulb the next couple years. You must have a similar policy as here.

Who would have guessed that a light bulb could cause trouble?

Blessings!

In His Grip

AlwaysRosie           "We can't control the waves, but we can learn how to surf!!"

Psalms 139

Co-Moderator - Lupus Forum

UCTD, Inflammatory Arthritis, Diverticulosis, (recent dx - Sjogrens, Crohn’s 4/08)

Clickable Links:  Lupus Resources    Lupous.Org   Lupus Criteria (4 of 11)   Lupus Chapter Locator


mom46
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Date Joined Dec 2004
Total Posts : 8198
   Posted 7/13/2008 6:04 PM (GMT -7)   
 I think this is going to be a serious problem for all of us. Just a few days ago on the news they were talking about the new compact fluorescent bulbs having mercury in them and if you break one you have to go by the CDC guidelines to dispose of it. The packages they come in don't tell you this but the media investigated and let the public know.
  I hope someone has found info on the halogen bulbs and will share. Good luck everyone with this new regulation we don't need.
                                                                          Babs
 
Dx: Lupus,RLS,RA,Asthma,Fibro,Sjogren's,Raynaud's,Divertic, Stroke,Atherosclerosis,Seizures,Neuropathy,CAD
Meds:arava,prednisone,plavix,aspirin,protonix,,zanaflex,xanax,
mirapex,advair,foxamax,Vytorin,folicacid,lunesta,Tramadol
 
JOB 5:18 For he wounds, but he also binds up; he injures, but his hands also heal.


cured4real?
Veteran Member


Date Joined Dec 2005
Total Posts : 1944
   Posted 7/14/2008 8:01 PM (GMT -7)   
I know from raising fish and also from my pigment disorder that there are certain spectrums of UV that are different than others for those with sunsensitivity. An option, if you want to save energy and use fluorescent might be to try some of the aquarium bulbs. They are more pricey but offer just about any spectrum you can imagine, and there are even moonlight bulbs. They last a long time, come in the standard sizes, and are of better quality than home depot bulbs usually. I think flickers are more from the balast than the bulb,which can be replaced. They even have the new screw in bulb shapes, but they are for reptiles. Actually, the reptile specialists in pet stores or salt water specialists often know quite a bit about lighting.

For vitiligo repigmentation, which is considered a type of autoimmune disease by many, if not most, dermatologists, certain UVs are okay. I don't remember, but there is likely a compromise that might be worked to give us something better than incandescent and more ecologically sound. The brightness of the incadescent givesme a headache.

What would be nice would be to have the government take everyone's needs into consideration and come up with a fluorescent std that actually might be beneficial (if it can be) or at least not harmful to any of us. Maybe there will be lower energy incandescents.

I found this from the Marshall Protocol Study Site, it's kind of technical but has lots of good info. If there's a way to ask, I want to find out about spectrums and the pet bulbs.
http://www.marshallprotocol.com/forum2/33.html
Love, Marji
--Sometimes I think the surest sign that intelligent life exists elsewhere in the universe is that none of it has tried to contact us. Bill Watterson (1958-) cartoonist "Calvin and Hobbes"
Ills--Sjogrens-Lupus-like AI Disease, Hashis, Vitiligo, spinal stenosis/fusion with plate, salivary/lymphectomies, Diabetes, NAFLD, COPD, RLS, neuropathy, trigonitis, hystero, diffuse brain atrophy, GI nightmare
Meds--Plaquenil, Evoxac, Metformin, Synthroid, HCTZ, Estradiol patch, Prosed, Detrol, Klonopin, Ultram, Vicodin, Restasis, Albuterol, steroid injections and pred prn


AlwaysRosie
Veteran Member


Date Joined Jan 2005
Total Posts : 8616
   Posted 7/15/2008 8:40 AM (GMT -7)   
Hey Marji,

The LED lights seem to be a great solution . . . but they haven't found a cost-effective way to produce them. They use even less energy than the CFL's.

$$$$$$ to research is a big issue.

Blessings!

In His Grip

AlwaysRosie           "We can't control the waves, but we can learn how to surf!!"

Psalms 139

Co-Moderator - Lupus Forum

UCTD, Inflammatory Arthritis, Diverticulosis, (recent dx - Sjogrens, Crohn’s 4/08)

Clickable Links:  Lupus Resources    Lupous.Org   Lupus Criteria (4 of 11)   Lupus Chapter Locator

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