Tonsillectomy and Lupus

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Regular Member

Date Joined Mar 2008
Total Posts : 89
   Posted 7/11/2008 3:37 PM (GMT -6)   
I am having trouble with my tonsills and am considering having them removed. Has anyone done this with Lupus? Did it cause any unforeseen problems?

Veteran Member

Date Joined Jan 2005
Total Posts : 8616
   Posted 7/11/2008 3:52 PM (GMT -6)   
Hi Ti,

I don't have answers for you except that you should probably list your meds in your post.

People on prednisone sometimes (with Dr.'s instruction) will up their dose for some period before/during or after the surgery. There is a post about this in Lupus Resources (by Lynnwood: Flare Care). [Link in my signature]

Anyway . . . posting your meds will help you get more info on this.

Sorry you have to have surgery sis!


In His Grip

AlwaysRosie           "We can't control the waves, but we can learn how to surf!!"

Psalms 139

Co-Moderator - Lupus Forum

UCTD, Inflammatory Arthritis, Diverticulosis, (recent dx - Sjogrens, Crohn’s 4/08)

Clickable Links:  Lupus Resources    Lupous.Org   Lupus Criteria (4 of 11)   Lupus Chapter Locator

Regular Member

Date Joined Mar 2008
Total Posts : 89
   Posted 7/11/2008 5:02 PM (GMT -6)   
Oh..I am on plaq, hydrochlorothiazide and that's it! I finished my pred taper. I have not discussed this with my rheumy yet as my normal appt was just cancelled.


Veteran Member

Date Joined Dec 2004
Total Posts : 8198
   Posted 7/12/2008 7:30 PM (GMT -6)   
  Tonsil problems was one of my first symptoms from lupus. I had chronic strep throat or tonsilitis for a year. I begged my doctor to take mine out but he wouldn't. Anyway after that year I had no more problems with them and still haven't.
   I hope this gets better for you soon or if you have the surgery I wish you the best. Please take care and keep us updated. You will be in my thoughts and prayers.
Dx: Lupus,RLS,RA,Asthma,Fibro,Sjogren's,Raynaud's,Divertic, Stroke,Atherosclerosis,Seizures,Neuropathy,CAD
JOB 5:18 For he wounds, but he also binds up; he injures, but his hands also heal.

Barbara Lee
Veteran Member

Date Joined Sep 2003
Total Posts : 2889
   Posted 7/12/2008 10:39 PM (GMT -6)   
Hi Ti:

I had my tonsils removed in 1996, I was 34 yeas old when they were removed. I had serious problems with strep throat and tonsillitis. I didn't have a firm DX of lupus then, I didn't get my offical DX in 2001. I have to say the pain is pretty intense aafter taking them out. I also had a difficult time eating, even if it was ice cream. My voice sounded different the first few weeks. I think it took me 6 weeks to fully recover, where I could eat anything.

In my case, things may have changed, but I was only allowed to eat cold or room temperature food. I wasn't allowed any hot food, tea, coffee, etc for 3 weeks. I also wasn't allowed red popsicles or red colored beverages. This is done so that you don't mistake it for bleeding.

I was very tired afterwards and it lasted about 4 weeks. I'm certain if I was on steroids at that time and they had given the increased dose before surgical procedures I would have felt better than I did. I'd talk to your Rheumy about the possibility that they may remove your tonsils, he should be able to tell you what you need to do to avoid a flare.

Good luck,
dx fibro, SLE, glaucoma, cateracts, bells palsy, depression, migraine headaches, gastreopaersis, chronic anemia, RA,MDS (Blood Cancer). Tons of meds.

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