Lab results, Im confused..

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

prayingtogetbetter
New Member


Date Joined Jul 2008
Total Posts : 11
   Posted 7/12/2008 1:58 PM (GMT -7)   
Ok, here's my lab work. Now, my doc is kind of wacko...I posted before about how she is taking her sweet time to get me into a specialist, ''thinks'' I've got lupus, and is pushing the anti malarias on me WITHOUT confirmation of diagnosis.
Anyway, I don't think she took enough testing to give any sort of diagnosis, to me...these results could be what they are due to Hashi's, which I do have says my most recent saliva testing...
 
OK..
 
ANA Positive (thats all it says)
Anti Nuclear Titer   160 dils    (what's this mean? dils...does it stand for something im not catching..thats all it says, I thought they were written differently.)
Anti DNA(DS) Negative
RA screen Negative
C Reactive Protein   0.032mg/dl ( with no reference range)
 
These are the worst results I've ever tried to make sense of...Normally I get reference ranges with them, these have none.
Also, my potassium came back slightly low and she blows it off.
I've noticed low magnesium through a doc whom checked it RBC, low calcium once through an ER visit for arm pains and now twice slightly low potassium through ER results.
Is it possible to have all these levels low? I thought with low mag, you had high calcium, and so forth? SHould I supplement them all at once, or start slow with magnesium, adding potassium, then calcium once the magnesium starts absorbing to avoid my heart going nuts?
Deficiencies!!! This is what docs should look for, ya know? Can't low mag, calc, and potassium cause MANY lupus symptoms..namely the muscle pains..
 
THanks a ton, fill me in, I appreciate it.
If it werent for these kind of forums, patients would never take their health into their own hands, and many would go undiagnosed for years, or improperly cared for.
 
Katie

AlwaysRosie
Veteran Member


Date Joined Jan 2005
Total Posts : 8616
   Posted 7/12/2008 2:44 PM (GMT -7)   
Katie,

How does saliva testing tell about Hashi? There are a couple of blood tests that test Thyroglobulin (and there are other words I don't remember) . . . but I've not heard of saliva for this.

The ANA shows positive and the Anti Nuclear Antibodies (ANA) Titer is 160 (that is your number). There are a couple of ways to report the antibody titer, but I really don't know in that type of report what is a low positive and what is a high positive.

This blood work is a "snap shot" at one particular moment. Often the doctor will watch for a pattern over a period of time when there is a mildly elevated or lower number.

She actually did offer you the one thing that any Rheumy would start with IF they did suspect a connective tissue disease like Lupus . . . the plaquenil.

You may opt to refrain from meds until you see the rheumy . . . it depends on how severe your symptoms are.

Take a deep breath and don't panic about this. OK?

Yes . . . an undertreated thyroid could cause a lot of your symptoms. Is the TSH any better? A doctor needs to combine the TSH readings with some others (like C3 and C4) and this should be monitored by a doctor who has experience with the thryoid (endocrinologist).

Keep pushing for specific answers to specific questions and keep an ongoing list of symptoms which will be presented to each doctor at each visit.

Did you get the referral yet?? Do you have a husband, mother, father, brother who might attend dr. appointments with you to help facilitate some progress??

*sighhhhh* I'm sorry I don't have more help to offer you?

Did we ask you in the other string if you've had any bloodwork for myositis???

Blessings!

In His Grip

AlwaysRosie           "We can't control the waves, but we can learn how to surf!!"

Psalms 139

Co-Moderator - Lupus Forum

UCTD, Inflammatory Arthritis, Diverticulosis, (recent dx - Sjogrens, Crohn’s 4/08)

Clickable Links:  Lupus Resources    Lupous.Org   Lupus Criteria (4 of 11)   Lupus Chapter Locator


honeygirl
New Member


Date Joined Jul 2008
Total Posts : 4
   Posted 7/12/2008 3:45 PM (GMT -7)   
yeah  This is what I think about your tests. Your Dr. did not give you a reason on why she thinks this is Lupus. I have a high ANA of 640 and a high ESR rate of 50. ANA is usually 1-40 then 1-80 then 1-160 then 1-320 then 1-640 and so on. BUT>>>> I don't have Lupus. I have no fevers no swollen joints I love the sun. I don't get sores in the mouth and none of my other test for lupus or rumitoid (can't spell) arthritis. I have been tested for the last 7 years. I go 1x year and get it checked. All of the Dr.s I have been to say the same thing. I don't have Lupus or any other autoamunine problem. But the question is why do I have a high ESR and a High ANA? They all say it's just me What do you think? -Honeycomb      

jhmom
Veteran Member


Date Joined Oct 2004
Total Posts : 2244
   Posted 7/12/2008 4:30 PM (GMT -7)   

Hi Katie, welcome to the board.  I am sorry to hear you are having such problems.  The dx process can be very exhausting, unfortunaltey there is not one test to dx it so the doctor has to put the puzzle together one piece at a time.  Plaquenil is not used with just lupus, do you have joint pain, etc?  If so your doctor may suspect some sort of UCTD and that is how it's treated.  What other kind of lupus symptoms do you have and for how long? 

I was dx with lupus with a positive ANA, SED, SSA, low C3 & a ton of symptoms but it took a couple of years and a couple of rheumy's.  I am not sure if lupus makes your potassium, etc low but I do know it can affect your WBC, RBC, etc. 

I also have Hashi's and have never heard of the saliva testing.  I was dx with the thyroid antibody test Rosie mentioned with a normal TSH, T3 & T4.

I sure hope you get some answers soon!  Take care

 


Stacie

Trust in the Lord with all thine heart, and lean not unto thine own understanding ~ Proverbs 3:5 ~

DX: Hashimoto's, Celiac Disease, Raynaud's, Lupus and Sjogrens
RX: Imuran, Plaquenil, Methotrexate, Flexeril, Piroxicam, Levoxyl, Folic Acid, Lortab (as needed) and magic mouthwash (for mouth sores)


jhmom
Veteran Member


Date Joined Oct 2004
Total Posts : 2244
   Posted 7/12/2008 4:35 PM (GMT -7)   
Honeycomb, aside from your positive lab results what kind of symptoms do you suffer with?

Healthy people can have a positive ANA, that is why doctors usually run several blood tests when looking for or trying to rule out lupus. Hang in there & take care
Stacie

Trust in the Lord with all thine heart, and lean not unto thine own understanding ~ Proverbs 3:5 ~

DX: Hashimoto's, Celiac Disease, Raynaud's, Lupus and Sjogrens
RX: Imuran, Plaquenil, Methotrexate, Flexeril, Piroxicam, Levoxyl, Folic Acid, Lortab (as needed) and magic mouthwash (for mouth sores)


honeygirl
New Member


Date Joined Jul 2008
Total Posts : 4
   Posted 7/12/2008 4:48 PM (GMT -7)   
I don't have many symptoms. I am just wondering how I can have such a high ANA and High ESR rate and have no symptoms and have no positive blood tests. I have been tested for almost everything. -Honeycomb

hippimom2
Veteran Member


Date Joined Jul 2005
Total Posts : 5403
   Posted 7/12/2008 6:38 PM (GMT -7)   
Katie, Stacie and Rosie both gave you excellent information and I really don't have much to add. Hopefully seeing a rheumatologist will help to begin the clear things up, but unfortunately it can take a while to get a definite diagnosis. Like Rosie said, the plaquenil is the first line of med used for diseases like lupus and I was on it for over 2 years before I got a diagnosis. It does take a while to build up in your system (months). It can also make your stomach upset for a few weeks until you adjust to it, so taking it with food is a good idea.

I know it can all be very overwhelming, so please ask any questions you have. Also, like Rosie said, take your list of questions to the doctor too, especially your questions about your blood tests.
Diagnosis:  UCTD (lupus) 2006; Raynauds 2006; Sjogren's 2006; lupus symptoms began 2003; UC 2008; CFS 1991; Mono 1985
Meds:  Plaquenil 400mg; Prednisone 5-10mg; Tramadol 100mg 3-4x daily; Doxepin 25-50mg; Prevacid; Evoxac; Steriod Cream and Mouth Rinse for tongue and mouth ulcers; Hydrocodone 5/500 prn for severe pain; Artificial tears

 

Clickable:  LUPUS INFORMATION & LUPUS RESOURCES.

Please allow HealingWell to continue helping others by donating: http://www.healingwell.com/donate/

 

Co-Moderator: Lupus and CFS Forums



prayingtogetbetter
New Member


Date Joined Jul 2008
Total Posts : 11
   Posted 7/12/2008 7:08 PM (GMT -7)   
Thank you. Ye, I have a fianze whom attends appointments with me, but he doesnt understand how i can feel so yucky and look normal. Often times, I get called lazy, he just doesnt realize that I simply cannot do it.
I found out about the hashi's through ZRT labs, they offer the saliva test, but it was a blood spot test specifically. Sorry to confuse you.
The probelm for me has been finding a doctor whom doesnt blow me off. I've been to an endo...the one whom did the RAI for me in the past for my ''graves"', and he told me the ONLY labs that matter were the TSH and T4...Right then I knew what kind of a jerk he really was.

Whats the C3 and C4? I've never heard of this?

And now, with this primary whom has diagnosed me with this lupus, I went back to her for the 2nd follow up, mentioned the no appointment yet for the rheumy...she said she'd get right on it, and now its been another 3 days and still no appointment. Keep in mind, it had been 4 weeks imbetween appointments. So now approaching 5-6 weeks with now referral appointment I'm getting FED up. Aside from that when I was in there, she refused to do blood work again because I hadn't started the plaquilnol. I mentioned some other symptoms, like that of hypoglycemia, and she blew them off saying thhat was just me. Im thinking that because she ''thinks'' I have lupus, its not going to be easy to get her to look into anything else. I mentioned how I've got the antibodies for hashi's, got saliva testing done and it showed low cortisol as well as hormonal imbalances...and she suggested putting me on birth control and a baby asprin!! I need something to striaghten out my hormones...it shows an estrogen dominance with extremely low DHEA, testosterone, and lower progesterone because of the estrogen dominance.

I just don't know what to do or where to look for doctors, it seems like they all blow me off. I think she's putting me on the back burner until I get to the Rhuemy, and im trying to wait it out, but if I don't get the appointment set , here next week I will go into her office and NOT leave until they set the appointment. Something rash!
I've been through this for 3 years already.
My symptoms are similar to that of thyroid, especially hashi's, and its frustrating because not a lot of docs treat hashi's or even believe that its real.
Im on the T4 and I think I've got conversion problems because I've got really high reverse t3.
If anyone knows a doc in MI who handles autoimmunity well...please send it my way.
Thanks all.
Katie

AlwaysRosie
Veteran Member


Date Joined Jan 2005
Total Posts : 8616
   Posted 7/12/2008 8:36 PM (GMT -7)   
Sorry Katie . . . I meant T3 and T4.

Actually . . . I understood that those were the tests that mattered too (TSH T3 and T4 ) The positive anti-body only tells WHY you are having problems. I thought it was common with overactive thyroid to blast it, knock it down and if its too low, then treat with synthroid. But I haven't research much about the Graves . . . so I might be wrong. By my docs said same as yours, its the TSH T3 and T4 that matter.

You really have to handle the docs with sensitivity. If you go in there with a chip on your shoulder it makes them defensive and less able to partner with you. If your fiance' doesn't understand, then you need to bring someone will be an advocate for you. . . or go alone.

I do a lot of communicating with my docs via typed notes. List style notes. Easy to read.

Current Rx meds
Current OTC meds
Current Supplements
Allergies
current symptoms

Questions for the doc

What I want Doc to do for me today


I lose my flow of thinking when I finally get my long awaited doctor visits and the notes are in duplicate so I can hand one to the doc and I hold one. Taaaaaa Daaaaaa !!!! No one interrupts me. Not all docs read it all every time . . . but I've found that when I come back for next visit, they've usually gone over it.

Keep it relative and concise . . . but complete.

I'm so sorry you are having so much trouble.

I hope things go better for you soon.

Blessings!

In His Grip

AlwaysRosie           "We can't control the waves, but we can learn how to surf!!"

Psalms 139

Co-Moderator - Lupus Forum

UCTD, Inflammatory Arthritis, Diverticulosis, (recent dx - Sjogrens, Crohn’s 4/08)

Clickable Links:  Lupus Resources    Lupous.Org   Lupus Criteria (4 of 11)   Lupus Chapter Locator


Audrey Ann
Veteran Member


Date Joined Jul 2005
Total Posts : 815
   Posted 7/13/2008 2:12 PM (GMT -7)   
Greetings, Katie! Rosie gives some great advice. Doctors are only human and do not know everything. If you do have anything autoimmune, the plaquenil will be helpful. It does take the plaquenil about 6-8 months to completely get into your system.

This is a good time to start the plaquenil since it can take 3-5 months to get in to a good rhuemy for an appointment. The rhuemy will, most likely, do the additional blood work and will probably order x-rays and take a urine sample. Do you have a low-grade fever, a red rash across your nose and cheeks, extreme fatigue? These are signals to your doctor that it could be auoimmune.

Your fiance is nice to go with you but, like Rosie said, you need to have someone with you who is 100% behind you. Lupus is very hard to diagnose and a feature of it is that the patient looks healthy but feels awful. My own diagnosis took over three years for confirmation and it was exhausting.

Can you make your own rhuemy appointment or does the doctor need to refer you for your insurance? Please feel free to email me if you want the name of a good rhuemy in the Jackson, Michigan area.

My prayers are with you!
Prayers,
Audrey Ann
 
Lupus, RA, and (Maybe) Fibromyalgia and LOTS of Medications!
 


 


CrichtonFan
New Member


Date Joined Mar 2008
Total Posts : 7
   Posted 7/13/2008 3:04 PM (GMT -7)   
 
In all the research I've done to learn more about what my daughter goes through, I found this site that has some of the most thorough information I've seen:
 
 
Tests and help with intepreting the numbers:
 
Hope it helps!
 
Nancy

 
Daughter dx Feb/08, on CellCept, stopped CellCept for now to take Cytoxan-IV for 6 rounds with Mesna + 1,000mg of Solumedrol each round, Plaquenil, Prednisone, Lisinopril, baby aspirin


prayingtogetbetter
New Member


Date Joined Jul 2008
Total Posts : 11
   Posted 7/15/2008 4:30 PM (GMT -7)   
Thank you. I need to get my hands on what ''shape'' the positive ANA was, they gave me a copy of my results, and that wasnt in there, so Im doubting she looked that far into it. She's only a DO. She actually had the nerve to prescribe me brith control when I complained of feeling AWFUL during my period...and birth control is a NO NO for those whom have lupus. At least according to the lupus society brochures it is now because of recent research related to estrogen. Which makes sense that I have it, with my adrenal fatigue, my hormones have been out of wack for 3 years now, its a no wonder my body ended up this bad.

AlwaysRosie
Veteran Member


Date Joined Jan 2005
Total Posts : 8616
   Posted 7/15/2008 5:46 PM (GMT -7)   
Yes Katie . . . you want to know the "pattern" of the ANA. There is a post about it in "Lupus Resources" . . . link in my signature. But remember . . . this is just one bit of information. A Lupus dx does not require +ANA or a specific pattern. It is just one more clue.

Blessings!

In His Grip

AlwaysRosie           "We can't control the waves, but we can learn how to surf!!"

Psalms 139

Co-Moderator - Lupus Forum

UCTD, Inflammatory Arthritis, Diverticulosis, (recent dx - Sjogrens, Crohn’s 4/08)

Clickable Links:  Lupus Resources    Lupous.Org   Lupus Criteria (4 of 11)   Lupus Chapter Locator

New Topic Post Reply Printable Version
Forum Information
Currently it is Sunday, December 04, 2016 1:31 PM (GMT -7)
There are a total of 2,732,659 posts in 301,041 threads.
View Active Threads


Who's Online
This forum has 151200 registered members. Please welcome our newest member, MartiG.
292 Guest(s), 10 Registered Member(s) are currently online.  Details
George_, BnotAfraid, dacarte3, Teamchris, MartiG, LG13, Mad Martha, lymedriven, trumpet123, Myself 09


Follow HealingWell.com on Facebook  Follow HealingWell.com on Twitter  Follow HealingWell.com on Pinterest
Advertisement
Advertisement

©1996-2016 HealingWell.com LLC  All rights reserved.

Advertise | Privacy Policy & Disclaimer