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Lynnwood
Forum Moderator


Date Joined May 2005
Total Posts : 7019
   Posted 7/15/2008 8:44 PM (GMT -7)   
Has anyone been told they have bursitis? I think I'm having more random inflammation from my lupus, but my rheumy is telling me I have bursitis. Of course, this is the one who thinks I have fibromyalgia rather than lupus.

I can't see why I'd have yet another issue develop if it isn't associated w/lupus...I think this "bursitis" and recent vertigo are because he's dropping the pred and thus I'm getting more random inflammation.

Anyone getting this kind of treatment? It's like I gained weight from the prednisone and the lupus fatigue, and now I get all the "middle aged overweight woman" answers instead of being treated like an actual person.

Maybe this is just a rant.....

Lynnwood, Co-Moderator: Lupus Forum
SLE(’00), Sjogren's Syndrome, Raynaud's Syndrome, SAD, Depression, Herpes Simplex 1
Piroxicam, Plaquenil, Prednisone(was 15mg, now 8mg), Cellcept, Xanax, Trazodone, Boniva(3mth shot), Wellbrutrin SR, Valtrex
Links: DIAGNOSING LUPUS (4 of 11), LUPUS INFORMATION, LUPUS RESOURCES, Donate to HealingWell, Drug Interactions


AlwaysRosie
Veteran Member


Date Joined Jan 2005
Total Posts : 8616
   Posted 7/15/2008 9:06 PM (GMT -7)   
Sorry Lynnwood,

Where is your "bursitis"? I had it in my shoulder way before any of the doctoring started. But I really think it was bursitis. It was one shoulder and it was a sharp sudden pain when I'd hit the return on an old fashioned type-writer. It was a doozy to get rid of (the pain) but the doctor told me what to do and it worked (ibuprofen 3x daily for each day until pain stopped and then add a month longer . . . plus certain exercises).

I now have pain in my hip which was dx'd as nerve pain . . . but seems like it could also be bursitis. I'm tired of trying to name it. Maybe I'll just call it George !!! LOL

I hope you aren't going to pot there Lyn !! Others have talked about increased pain when they are reducing their pred too.

Nope . . not a rant . . . just the truth!!

Blessings!

In His Grip

AlwaysRosie           "We can't control the waves, but we can learn how to surf!!"

Psalms 139

Co-Moderator - Lupus Forum

UCTD, Inflammatory Arthritis, Diverticulosis, (recent dx - Sjogrens, Crohn’s 4/08)

Clickable Links:  Lupus Resources    Lupous.Org   Lupus Criteria (4 of 11)   Lupus Chapter Locator


joinery
Regular Member


Date Joined Oct 2007
Total Posts : 323
   Posted 7/16/2008 7:30 AM (GMT 0)   
Hi Lynn, I had it in my hip the pain went down my leg it was awfull I thought it was arthritis pain, was so intense and it did take awhile for it to go away. Debbie
Asthma,Lupus,H.B.P.,Dermatomyostis,Gastrparsis,Acid Reflux   
                Panic Attacks,Osteopenia,Thyroid  
  Reglan,Protonix,Synthroid,Plaquenil,Quinacrine,Flexeril,Zetia,Zoloft,Xnanx,Celebrex,Abuterol,  
  Advair,Diovan,Actonel,Prednisone on and off Eye Drops,VitaminD.     
 
 
 
 


Lynnwood
Forum Moderator


Date Joined May 2005
Total Posts : 7019
   Posted 7/16/2008 7:29 AM (GMT -7)   
ankles & knees....

Lynnwood, Co-Moderator: Lupus Forum
SLE(’00), Sjogren's Syndrome, Raynaud's Syndrome, SAD, Depression, Herpes Simplex 1
Piroxicam, Plaquenil, Prednisone(was 15mg, now 8mg), Cellcept, Xanax, Trazodone, Boniva(3mth shot), Wellbrutrin SR, Valtrex
Links: DIAGNOSING LUPUS (4 of 11), LUPUS INFORMATION, LUPUS RESOURCES, Donate to HealingWell, Drug Interactions


AlwaysRosie
Veteran Member


Date Joined Jan 2005
Total Posts : 8616
   Posted 7/16/2008 8:35 AM (GMT -7)   
Sounds painful Lynn . . . I hope your doctor doesn't send you into a full blown flare. Is it any better/worse?

Blessings!

In His Grip

AlwaysRosie           "We can't control the waves, but we can learn how to surf!!"

Psalms 139

Co-Moderator - Lupus Forum

UCTD, Inflammatory Arthritis, Diverticulosis, (recent dx - Sjogrens, Crohn’s 4/08)

Clickable Links:  Lupus Resources    Lupous.Org   Lupus Criteria (4 of 11)   Lupus Chapter Locator


hippimom2
Veteran Member


Date Joined Jul 2005
Total Posts : 5403
   Posted 7/17/2008 11:00 AM (GMT -7)   
I'm also worried that with this doc messing with your meds that it is going to throw you into a flare. I don't know anything about bursitis, but I always think people should trust their instincts about what is goin on with their bodies. I just hope things don't keep getting worse for you. I'm sending some positive thoughts your way. Take care of yourself.
Diagnosis:  UCTD (lupus) 2006; Raynauds 2006; Sjogren's 2006; lupus symptoms began 2003; UC 2008; CFS 1991; Mono 1985
Meds:  Plaquenil 400mg; Prednisone 5-10mg; Tramadol 100mg 3-4x daily; Doxepin 25-50mg; Prevacid; Evoxac; Steriod Cream and Mouth Rinse for tongue and mouth ulcers; Hydrocodone 5/500 prn for severe pain; Artificial tears

 

Clickable:  LUPUS INFORMATION & LUPUS RESOURCES.

Please allow HealingWell to continue helping others by donating: http://www.healingwell.com/donate/

 

Co-Moderator: Lupus and CFS Forums



Butterflake
Forum Moderator


Date Joined Jun 2006
Total Posts : 1551
   Posted 7/17/2008 3:46 PM (GMT -7)   
Hi Lynn. I just really don't know what to think of your new rheumy and I hate that you must stay with him. I hope you're able to get some relief from the joint pain regardless of his diagnosis. Take care Sweetie. Love, Butterflake

Dx: SLE ('05), depression, diabetes, fibromyalgia, gerd, sleep apnea, hypertension, IBS Tx: CellCept, plaquenil, prednisone, lisinopril, actos, lipitor, nexeum, prozac, wellbutrin, seroquel, xanax, ambien, celebrex, neurontin, lyrica, arthritis tylenol, promethazine, actonel, multi vit, C, flaxseed oil, acupuncture
Donna
 


puccini914
Regular Member


Date Joined Jun 2008
Total Posts : 363
   Posted 7/17/2008 4:25 PM (GMT -7)   
Hi Lynn, I'm getting the same treatment from my Rheumy. Last week he pulled me off the plaquenil, imuran and neurontin, 6 days later I've got hives wrapped around my neck, swelling in my hands and pain in hands and feet. He tells me it has nothing to due with stopping the meds. Went to see mu PCP today and he agreed with me, put me back on plaquenil and gave me pred to quiet things down. My rheumy also told me that he thinks I must have fibro because my bloodwork doesn't always reflect lupus.My PCP told me today that specialists like cases to be textbook before giving a definite dx, he said that AI is just something that the medical profession doesn't understand and that most meds are based on trial and error. I wish my rheumy could be as honest and straight forward with me as my PCP. But thank God I have him.

Jennifer

Diagnostic Limbo: Seeing Rheumy since November 07, Taking plaquenil, Imuran, Neurontin, Claritin, Zantac, vitamin D, Darvocet.

 

 


Chaya
Regular Member


Date Joined Mar 2007
Total Posts : 194
   Posted 7/17/2008 5:44 PM (GMT -7)   
Yep! Had it in both hips. I had cortisone shots in my bursa sacks and oh my what a relief!!!!!!

Lynnwood
Forum Moderator


Date Joined May 2005
Total Posts : 7019
   Posted 7/17/2008 6:37 PM (GMT -7)   
yeah, and now the neuropsych is saying that since my current dr doesn't think i have lupus that I must have some symptoms that are created by some sort of emotional disorder.

this sucks. they all suck. sigh.

Lynnwood, Co-Moderator: Lupus Forum
SLE(’00), Sjogren's Syndrome, Raynaud's Syndrome, SAD, Depression, Herpes Simplex 1
Piroxicam, Plaquenil, Prednisone(was 15mg, now 8mg), Cellcept, Xanax, Trazodone, Boniva(3mth shot), Wellbrutrin SR, Valtrex
Links: DIAGNOSING LUPUS (4 of 11), LUPUS INFORMATION, LUPUS RESOURCES, Donate to HealingWell, Drug Interactions


Audrey Ann
Veteran Member


Date Joined Jul 2005
Total Posts : 815
   Posted 7/17/2008 7:43 PM (GMT -7)   
Lynnwood,

Is there anyway to contact your other rhuemy? I can't remember why he left his practice - was it retirement? I wonder if he could be contacted to clear things up with this new guy who seems to be very arrogant as to change diagnosis for patients who have such a history of treatment. Can you go to another rhuemy for another opinion? I can't believe that another rheumy could not be found to give you a better viewpoint. (I am sorry if I don't know all the details of your situation - I am off and on again here and sometimes get the story confused.)
Prayers,
Audrey Ann
 
Lupus, RA, and (Maybe) Fibromyalgia and LOTS of Medications!
 


 


Lynnwood
Forum Moderator


Date Joined May 2005
Total Posts : 7019
   Posted 7/17/2008 8:03 PM (GMT -7)   
Previous doctor is very ill with very rare cancer in his heart. I can talk to him but he can't help a lot as his energy is limited and he can't "practice medicine" due to the terms of *his* disability insurance!

Not sure yet what I can and can't change, need to consult w/my disability insurance attorney -- may have to keep his guy until the insurance appeal is over & they are paying me again...

It's all a tangled mess and I'm not sure I'm even keeping all the details straight! Certainly don't expect you guys to!

Thanks for the support,

Lynnwood, Co-Moderator: Lupus Forum
SLE(’00), Sjogren's Syndrome, Raynaud's Syndrome, SAD, Depression, Herpes Simplex 1
Piroxicam, Plaquenil, Prednisone(was 15mg, now 8mg), Cellcept, Xanax, Trazodone, Boniva(3mth shot), Wellbrutrin SR, Valtrex
Links: DIAGNOSING LUPUS (4 of 11), LUPUS INFORMATION, LUPUS RESOURCES, Donate to HealingWell, Drug Interactions


doodlebee
Regular Member


Date Joined Mar 2008
Total Posts : 60
   Posted 7/18/2008 6:43 AM (GMT -7)   
Lynn, I'm sorry you're having to deal with a new doctor who doesn't recognize your diagnoses. Does he have all your records and test results from your former doctor(s)? And do you have copies of them at home to keep?

That is just infuriating for the neuropsych to say it must be an emotional disorder 'creating' the symptoms. GRRR. I've heard way too many people say the same thing has happened to them - they have to go to a new doctor for whatever reason and end up un-diagnosed because the new doctor either doesn't have or won't consider the past medical history/records.

Good luck, I sure hope this all works out for you. Maybe you won't have to stay with this doc for long and can find a new one that will be much better.
~ Bee

God is the strength of my heart! - Psalm 73:26


jhmom
Veteran Member


Date Joined Oct 2004
Total Posts : 2244
   Posted 7/18/2008 8:22 AM (GMT -7)   
(((( Lynn )))) you are right, this sucks!!!! I am so sorry you are having to deal with this. I don't understand what makes doctors do this. Hang in there, I pray things get worked out soon!
Stacie

Trust in the Lord with all thine heart, and lean not unto thine own understanding ~ Proverbs 3:5 ~

DX: Hashimoto's, Celiac Disease, Raynaud's, Lupus and Sjogrens
RX: Imuran, Plaquenil, Methotrexate, Flexeril, Piroxicam, Levoxyl, Folic Acid, Lortab (as needed) and magic mouthwash (for mouth sores)


hippimom2
Veteran Member


Date Joined Jul 2005
Total Posts : 5403
   Posted 7/18/2008 11:16 AM (GMT -7)   
Uhg, what a mess. I can't imagiane the frustration and worry you must be going through. I wish you knew of a different really good rheumy you could go to. I hope your disability attorney can help. Hang in there.
Diagnosis:  UCTD (lupus) 2006; Raynauds 2006; Sjogren's 2006; lupus symptoms began 2003; UC 2008; CFS 1991; Mono 1985
Meds:  Plaquenil 400mg; Prednisone 5-10mg; Tramadol 100mg 3-4x daily; Doxepin 25-50mg; Prevacid; Evoxac; Steriod Cream and Mouth Rinse for tongue and mouth ulcers; Hydrocodone 5/500 prn for severe pain; Artificial tears

 

Clickable:  LUPUS INFORMATION & LUPUS RESOURCES.

Please allow HealingWell to continue helping others by donating: http://www.healingwell.com/donate/

 

Co-Moderator: Lupus and CFS Forums


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