Sorry for the mystery. My email address is available by clicking my member name or by clicking the blue envelope under my name (over to the left of my posts.
Sorry that wasn't clear about
a dx in our records. The dx code for your blood work etc. can mean that they are trying to rule out that item or treat for that item . . . not that you are dx'd with those diseases. It can be scary when you see all that.
I *think* some meds can only be billed to certain insurance companies with a firm dx. So some people with lupus, cancer, etc. have a firm dx for a particular reason. But *I think* that the doctors avoid it when possible. I have noticed on the Lupus forum, Lymes forum, Crohn's forum . . . . a lot of members get a dx and then the same doc or another doc will un-dx them. Its happened to me a couple of times. At first it was very frustrating and unsettling. I thought they were saying I wasn't sick. . . . but when I noticed that all the treatment remained in place, I realized that there was some good reason they do that.
When I was first dx'd with lupus, I was at a University hospital and the doctor had a group of students come in and ask questions and make notes and try to make a dx. He he he . . . when the doctor stepped out . . . I gave them some good questions to add to their notes. When the doc came back, they discussed the dx, she said "Lupus" and one of the students asked "what shall we wright in the patient records . . .and the doc said "UCTD".
That same doctor wrote to two of my other doctors and stated "Lupus" in writing. I've had them go back and forth ever since. . . but when I suggest going off certain meds, its a very firm "NO!"
One of the mysteries of medicine. I just like to let new members know about
this little game so they don't spend a lot of emotional energy trying to get the doctor to say the magic words.
I may be misinterpreting why they do it . . but it is certainly a frequent conundrum across major diseases.
In His Grip
AlwaysRosie "We can't control the waves, but we can learn how to surf!!"
Co-Moderator - Lupus Forum
UCTD, Inflammatory Arthritis, Diverticulosis, (recent dx - Sjogrens, Crohn’s 4/08)
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