Sun and eyes - ouch

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hippimom2
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Date Joined Jul 2005
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   Posted 7/17/2008 2:25 PM (GMT -7)   
I took my daughter swimming today for a while and it was so hot I decided to get into the pool for just a little bit with her (I really loaded up with sunscreen).  After getting out of the pool, my eyes have been burning really badly.  I didn't go underwater or get any chlorine in them.  The only thing I can think of is the sun's reflection off the water getting in my eyes.  I knew my skin was super sensitive to the sun, but I never thought about my eyes.
 
I haven't had this happen before and don't know if it's a sun sensitivity lupus thing or maybe a sjogrens thing.  I'm not getting any relief yet (2hrs later).  My eyes just keep burning and tearing.  I put my liquigel tears in a few times but they haven't helped.  Anyone have any suggestions?
Diagnosis:  UCTD (lupus) 2006; Raynauds 2006; Sjogren's 2006; lupus symptoms began 2003; UC 2008; CFS 1991; Mono 1985
Meds:  Plaquenil 400mg; Prednisone 5-10mg; Tramadol 100mg 3-4x daily; Doxepin 25-50mg; Prevacid; Evoxac; Steriod Cream and Mouth Rinse for tongue and mouth ulcers; Hydrocodone 5/500 prn for severe pain; Artificial tears

 

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TiBoBi
Regular Member


Date Joined Mar 2008
Total Posts : 89
   Posted 7/17/2008 2:34 PM (GMT -7)   
Did you wash all the sunscreen off? My sunscreen actually melts a bit when on me and I nearly always get some in my eyes. When that happens I experience the burning you mentioned. Other than calling your doc about it.. I'm not sure what else you can do besides flushing them with saline.

hippimom2
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Date Joined Jul 2005
Total Posts : 5403
   Posted 7/17/2008 2:59 PM (GMT -7)   
I don't think it's sunscreen. I've had sunscreen in my eyes and this seems different. I got an ice pack out and wrapped it in a towel and have been putting it over my eyes for a few minutes at a time, but I'm still pretty miserable. One of my best friend's husband is an optometrist so I may end up calling them to see if he has any ideas.
Diagnosis:  UCTD (lupus) 2006; Raynauds 2006; Sjogren's 2006; lupus symptoms began 2003; UC 2008; CFS 1991; Mono 1985
Meds:  Plaquenil 400mg; Prednisone 5-10mg; Tramadol 100mg 3-4x daily; Doxepin 25-50mg; Prevacid; Evoxac; Steriod Cream and Mouth Rinse for tongue and mouth ulcers; Hydrocodone 5/500 prn for severe pain; Artificial tears

 

Clickable:  LUPUS INFORMATION & LUPUS RESOURCES.

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sjkly
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Date Joined Dec 2007
Total Posts : 2113
   Posted 7/17/2008 5:08 PM (GMT -7)   
It may also be a plaq thing-photosensitivity is one of its side effects. The opthamologist who did my preplaq eye exam suggested I buy prescription sunglasses. If rinsing your eyes really well with artificial tears doesn't make them feel better I would definitely see someone.
Sj

firebabe
Regular Member


Date Joined Aug 2007
Total Posts : 206
   Posted 7/17/2008 5:20 PM (GMT -7)   
Can't sun sensitivity to eyes just be a Lupus thing too? I wear my sunglasses all the time when its cloudly and have been accused of "trying to look cool" when actually all I'm trying to do is squint less. The sun really does a number on my eyes and lately my eyes have been so dry that I'm wondering how long I should actually be wearing my contacts everyday. I recently got more breathable ones too.
~Firebabe~
 
"Challenges make you discover things about yourself you never really knew."
 
SLE and Class II Lupus Nephritis


Chaya
Regular Member


Date Joined Mar 2007
Total Posts : 194
   Posted 7/17/2008 6:00 PM (GMT -7)   
What are you using for sunscreen? I am using sun block and even if I get into the pool I suffer miserably! for at least a week afterwards. This time around I had a rash combined with weird itching. What kind of sunscreen am I missing out on?

Heidi55529
Regular Member


Date Joined Mar 2006
Total Posts : 147
   Posted 7/17/2008 6:33 PM (GMT -7)   
I notice my eyes get really red and have a burning sensation if I'm out in the sun too long. The eye drops helps a little bit, but the sensation doesn't go away until I've been indoors and rested them for a bit.
I was diagnosed with Lupus with Antiphospholipid syndrome (APS) in Nov 05.
Current list of medications includes:
Cellcept 250mg/ 4 capsules twice a day, Prilosec 20mg/1 capsule once a day, Plaquenil 200mg/one tablet twice a day, Metoprolol 25mg/half tablet twice a day, Prednisone 6mg/one tablet once a day, Coumadin as directed, Tetracycline 250mg/ two capsules twice a day, Midrin as needed for migraines.
-Avita cream, Clindamycin lotion, triamcinolone ointment daily to control skin rashes.
-Rituxan infusions twice every six months in March and September


mygrljes
Regular Member


Date Joined Mar 2008
Total Posts : 110
   Posted 7/18/2008 5:20 AM (GMT -7)   
hippimom,

My rheumy told me when I first started on plaq. a few years ago that I needed to start wearing sunglasses because the med would make my eyes more senstive to the sun. My eye doctor just reaffirmed that to me in April when I went in for my yearly exam. He actually wanted to prescribe me special sunglasses that are darker than the ones you get in the store, but my insurance didn't cover them. I would guess that you are probably right in thinking it was the sun reflecting off the water that has irritated your eyes. Preservative free natural tear eye drops work really well for soothing sore eyes. I can't live without mine. I use the Bausch & Lomb brand.
dix: lupus sle Jan. '99, hypo-thyroid Mar. '06
rx: pred. 5mg/day, plaquenil 200mg/day, levothyroxine .112mg/day, premarin .45mg/day, methotrexate 7.5mg/week, folic acid 1mg/day
wife, mother of three


doodlebee
Regular Member


Date Joined Mar 2008
Total Posts : 60
   Posted 7/18/2008 5:51 AM (GMT -7)   
My eyes were already sensitive to the sun, but since starting Plaquenil they are even more so. I have to wear sunglasses all the time outside.

Hope your eyes are feeling better today.
~ Bee

God is the strength of my heart! - Psalm 73:26


PattyLatty
Veteran Member


Date Joined Mar 2006
Total Posts : 2570
   Posted 7/18/2008 6:38 AM (GMT -7)   
Hippi, I hope your eyes feel better today. I've never had that happen so don't have any idea what to tell you. It's good that you have sometone to go to if you don't get any relief.

When I get in the pool, in addition to sunscreen, and even though we have shade over the pool, I keep on my big floppy hat. I'm so paranoid of the sun and it's effects that I'll do anything to keep it off of me. I don't wear sunglasses because they drive me crazy but I know they would be a good idea. This reminds me that I'm overdue for my eye exam.

Let me know how your eyes are today.

Pat
Lupus, Sjogren's, osteoarthritis, fibro, renauds, restless leg, hiatal hernia, double vision, migraines, costocondritis.
cellcept, neurontin, prednisone, plaquenil, synthroid, triamterene, tramadol, actonel, tri-est, imitrex, cymbalta, lunesta, multivitamin, calcium w vit D, fish oil, aspirin


hippimom2
Veteran Member


Date Joined Jul 2005
Total Posts : 5403
   Posted 7/18/2008 11:11 AM (GMT -7)   
Thanks for the responses. I didn't think about the plaq, but it makes sense. I was thinking after going through all of that yesterday that I probably need prescription sunglasses because I really think what happened was a reaction to the sun. I ended up with an aweful headache last night because of my eyes and just went ot bed early. I have a really soothing lavender scented eye pillow that I use when I go to bed. Today my eyes are still a little sore, but nothing like yesterday.

Chaya, no matter how much sunscreen I put on, I still have a really bad reaction to the sun. I just wanted to get in the pool with my daughter for a little bit and be like a "normal" person, but I pay for it even if I'm only in the sun for a few minutes. Today I have a bit of a rash and have a lot of fatigue. Do make sure you are using a sunscreen that protects against both UVA and UVB rays. I use my kids' Banana Boat 50 sunscreen with UVA/AVB protection and it works the best of anything i've tried. i think you can also get prescription sunblock too. I usually do what Pat does and stay in the shade and protect myself the best I can.

I also realized that I'm due for an eye exam, so I guess this incident helped to remind me of that.
Diagnosis:  UCTD (lupus) 2006; Raynauds 2006; Sjogren's 2006; lupus symptoms began 2003; UC 2008; CFS 1991; Mono 1985
Meds:  Plaquenil 400mg; Prednisone 5-10mg; Tramadol 100mg 3-4x daily; Doxepin 25-50mg; Prevacid; Evoxac; Steriod Cream and Mouth Rinse for tongue and mouth ulcers; Hydrocodone 5/500 prn for severe pain; Artificial tears

 

Clickable:  LUPUS INFORMATION & LUPUS RESOURCES.

Please allow HealingWell to continue helping others by donating: http://www.healingwell.com/donate/

 

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Ann Ireland
Veteran Member


Date Joined Apr 2006
Total Posts : 511
   Posted 7/18/2008 3:27 PM (GMT -7)   

This topic really interrests me and so do the meds people take.

I really, really do not intend to hurt the person who wrote up their meds and added, wife and mother of three.

 

I laughed hoots, do you take the wife and mother of three, daily or three times daily?

Am I wicked or wha?

No, seriously,

about prescription shades.

I have prescription sunglasses and I think they are the darkest you can get.

I investigated here in London UK and was told about Addidas which are 'wrap around' and you just place the script glass into a rubber slot inside so that when the scrip changes you dont have to change the sunglasses.

But its over 300 sterling and I really cant afford that, espec if I am unsure they'd work.

What are you guys using?

I need advise.

Hey, mother of three, well done.  I never had kids and would have loved to.

I quite understand how a person would want to swim with a daughter, I have to say.

The sun and heat sents me absolutely AWOL.

xAnn


Ann Ireland

Congenital Rubella Syndrome (CRS) Severely Deaf, Pes Cavus, scoliolis, Hiatus hernia, diverticular disease, neuromuscular disorder, movement disorder, recently dxed as drug induced 2008 Crohns Disease 1996,Hypothyroidism 1998, Raynauds 2006, Sjogrens 2008, Lupus 2008, Chronic Muscle Myopaythy 2008, spine in very, very bad way dx 2008
Irish, not an illness!

100mcg tyroxine, 10mg Cipramil, 3mg Entocort, 30mg Tamazipam, mystatin, sudocream, neurontin 600mg, acidopolis, Vitamin B complex, Coenzyme Q10, Vitamin B12 injection, Nexium 40mg, Fortijuice.


cured4real?
Veteran Member


Date Joined Dec 2005
Total Posts : 1944
   Posted 7/18/2008 4:00 PM (GMT -7)   

Hippi--

I think it might be a combination of all of the above. Your eyes being really dry and irritated, the sweat and suncreen combining and getting into the corners of your eyes.  Sometimes makeup holds up better to sweating, I put sunscreen on my face, dust it with foundation powder at home to form a layer, then wear big sunglasses to cover my eyes at all times. I even wear them in the water. I have a problem with computers and my eyes tearing and have had since programming days. I've learned that wearing UV blocking sunglasses while watching TV and using the computer help a lot. The Marshall Protocol site has info on special light filtering sunglasses for people with autoimmune disease they use as part of disease treatment.

I hope you feel better and know about that eye pain. It can get worse and feel like nails driven into your eyes. You might should consider moving up you next plaquenil eye appt if it keeps up or advances. I've had it get really bad.


Love, Marji
--Sometimes I think the surest sign that intelligent life exists elsewhere in the universe is that none of it has tried to contact us. Bill Watterson (1958-) cartoonist "Calvin and Hobbes"
Ills--Sjogrens-Lupus-like AI Disease, Hashis, Vitiligo, spinal stenosis/fusion with plate, salivary/lymphectomies, Diabetes, NAFLD, COPD, RLS, neuropathy, trigonitis, hystero, diffuse brain atrophy, GI nightmare
Meds--Plaquenil, Evoxac, Metformin, Synthroid, HCTZ, Estradiol patch, Prosed, Detrol, Klonopin, Ultram, Vicodin, Restasis, Albuterol, steroid injections and pred prn


firebabe
Regular Member


Date Joined Aug 2007
Total Posts : 206
   Posted 7/18/2008 5:34 PM (GMT -7)   
Ann Ireland
I am also laughing Hoots at what you were talking about. I needed that:)
~Firebabe~
 
"Challenges make you discover things about yourself you never really knew."
 
SLE and Class II Lupus Nephritis


mygrljes
Regular Member


Date Joined Mar 2008
Total Posts : 110
   Posted 7/18/2008 6:59 PM (GMT -7)   
Ann, you are funny! It's a once daily dose with time release so it lasts all day.

Being a wife and having three kids does help ease my lupus woes most days. I don't think I could handle this disease without my family. Some days, though, this family of mine overdoses me and I have to hide in my bed under a blanket and pray they don't kill me with all of their attention! ;)
dix: lupus sle Jan. '99, hypo-thyroid Mar. '06
rx: pred. 5mg/day, plaquenil 200mg/day, levothyroxine .112mg/day, premarin .45mg/day, methotrexate 7.5mg/week, folic acid 1mg/day
wife, mother of three


cured4real?
Veteran Member


Date Joined Dec 2005
Total Posts : 1944
   Posted 7/20/2008 6:43 PM (GMT -7)   
hippi--
I did it today, went out on a boat on the ocean and was out too long and even though I covered up, my eyes were red and bloodshot and sore and dry and I can't stand any light. I'm in sunglasses now in the dark typing this. My eyes hurt so bad. Restasis helped a little since it has an antiinflammatory effect. I feel like I sun burned my eyes. And even though I put strong spf 50 on my lips, they burnt again. I need to talk to the rheumie about that. I'm not sure it isn't more a reaction than a burn.

Well, I should go, they hurt!
Love, Marji
--Sometimes I think the surest sign that intelligent life exists elsewhere in the universe is that none of it has tried to contact us. Bill Watterson (1958-) cartoonist "Calvin and Hobbes"
Ills--Sjogrens-Lupus-like AI Disease, Hashis, Vitiligo, spinal stenosis/fusion with plate, salivary/lymphectomies, Diabetes, NAFLD, COPD, RLS, neuropathy, trigonitis, hystero, diffuse brain atrophy, GI nightmare
Meds--Plaquenil, Evoxac, Metformin, Synthroid, HCTZ, Estradiol patch, Prosed, Detrol, Klonopin, Ultram, Vicodin, Restasis, Albuterol, steroid injections and pred prn


hippimom2
Veteran Member


Date Joined Jul 2005
Total Posts : 5403
   Posted 7/20/2008 7:09 PM (GMT -7)   
Marji, I'm sorry you had to go through that too, Yes, it feels like a sunburn on your eyes. I'm going to call this week for my eye appointment and to check into prescription sunglasses. I hope you get some relief by tomorrow.
Diagnosis:  UCTD (lupus) 2006; Raynauds 2006; Sjogren's 2006; lupus symptoms began 2003; UC 2008; CFS 1991; Mono 1985
Meds:  Plaquenil 400mg; Prednisone 5-10mg; Tramadol 100mg 3-4x daily; Doxepin 25-50mg; Prevacid; Evoxac; Steriod Cream and Mouth Rinse for tongue and mouth ulcers; Hydrocodone 5/500 prn for severe pain; Artificial tears

 

Clickable:  LUPUS INFORMATION & LUPUS RESOURCES.

Please allow HealingWell to continue helping others by donating: http://www.healingwell.com/donate/

 

Co-Moderator: Lupus and CFS Forums



IALupus
Regular Member


Date Joined May 2006
Total Posts : 78
   Posted 7/20/2008 8:15 PM (GMT -7)   
Just a FYI Neutragina (spelling might be off but you get the jist) makes a 85 SPF that works GREAT!!!
SLE 9/99-Autoimmune Hepititis 2006- Asthma- Fibromyalgia   The list is tooo long for me to type!!  Just ask I will tell.
Methotrexate, Immuran, Singular, Protonix, Allegra-D, Combevent, Duo Neb, Lasix, Imeripex, Flexiril, Zoloft, Predisone, Zebata, and pain meds. There is more but not that important.


cured4real?
Veteran Member


Date Joined Dec 2005
Total Posts : 1944
   Posted 7/21/2008 8:48 PM (GMT -7)   
Thanks IALupus, my face got burnt even with the spf 50, I'm so mad. Either that or its the rash, its hard to tell, I think its both, rash on cheeks where I got the sunscreen good and burnt around the edges. Lovely. I look like a horrible alcoholic.
Love, Marji
--Sometimes I think the surest sign that intelligent life exists elsewhere in the universe is that none of it has tried to contact us. Bill Watterson (1958-) cartoonist "Calvin and Hobbes"
Ills--Sjogrens-Lupus-like AI Disease, Hashis, Vitiligo, spinal stenosis/fusion with plate, salivary/lymphectomies, Diabetes, NAFLD, COPD, RLS, neuropathy, trigonitis, hystero, diffuse brain atrophy, GI nightmare
Meds--Plaquenil, Evoxac, Metformin, Synthroid, HCTZ, Estradiol patch, Prosed, Detrol, Klonopin, Ultram, Vicodin, Restasis, Albuterol, steroid injections and pred prn


mom46
Veteran Member


Date Joined Dec 2004
Total Posts : 8198
   Posted 7/23/2008 7:43 PM (GMT -7)   
Hippi,
   I hope your eyes feel a bit better by now. I have to wear the dark wrap arounds over my rx sunglasses all the time outside. My eyes are very sensitive to the light. If I don't wear them outside, my eyes do just like yours. Lack of sleep makes it even worse.
   I know this is a miserable feeling....((Hugs)). I hope it gets alot better for you soon. Keep us updated and take care. You are in my thoughts and prayers.
                                                               Babs
 
Dx: Lupus,RLS,RA,Asthma,Fibro,Sjogren's,Raynaud's,Divertic, Stroke,Atherosclerosis,Seizures,Neuropathy,CAD
Meds:arava,prednisone,plavix,aspirin,protonix,,zanaflex,xanax,
mirapex,advair,foxamax,Vytorin,folicacid,lunesta,Tramadol
 
JOB 5:18 For he wounds, but he also binds up; he injures, but his hands also heal.


AlwaysRosie
Veteran Member


Date Joined Jan 2005
Total Posts : 8616
   Posted 7/24/2008 5:38 AM (GMT -7)   
Hippie,

I just had a thought. Do you have dry eyes? I wonder if the sun started a bit of a dry-eye-flare. If so, maybe the lubricant eye drops would help.

Hoping your eyes are better by now.

Blessings!

In His Grip

AlwaysRosie           "We can't control the waves, but we can learn how to surf!!"

Psalms 139

Co-Moderator - Lupus Forum

UCTD, Inflammatory Arthritis, Diverticulosis, (recent dx - Sjogrens, Crohn’s 4/08)

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