Lynnwood, Co-Moderator: Lupus ForumSLE(’00), Sjogren's Syndrome, Raynaud's Syndrome, SAD, Depression, Herpes Simplex 1Piroxicam, Plaquenil, Prednisone(was 15mg, now 8mg), Cellcept, Xanax, Trazodone, Boniva(3mth shot), Wellbrutrin SR, ValtrexLinks: DIAGNOSING LUPUS (4 of 11), LUPUS INFORMATION, LUPUS RESOURCES, Donate to HealingWell, Drug Interactions
Diagnostic Limbo: Seeing Rheumy since November 07, Taking plaquenil, Imuran, Neurontin, Claritin, Zantac, vitamin D, Darvocet.
Post Edited By Moderator (AlwaysRosie) : 7/18/2008 1:31:32 PM (GMT-6)
I want to say that I fully understand what it is like to be in limbo big time. I have had Lupus symptoms nearly all of my life, but I did not get diagnosed until I was 36 and it nearly killed me. It took the Lupus to attack my heart muscle before I could get anyone to even listen to me and then it was almost to late as I went into a severe heart arythmia that could have killed me instantly. I think doctors need to listen to people more closely. I literally spent thousands of dollars going to doctor after doctor for at least 16 years to continuously be told that I was worrying needlessly. It was really bad. They would act like I was a hypochondriac or med shopping. I had to develope a serious backbone. I finally got to the point where I would tell the doctor right out that if he did not want to listen to me or do any test for Lupus that I would leave right then and there and he would not get paid and I was deadly serious. The doctor listened to me very attentively then and ordered all the tests he could think of for Lupus and had me where a heart monitor for 24 hours. All of the tests came back pos for Lupus and neg for Thyroid. I was immediately sent to the Rheumatologist who told me that I have the most classic case of Systemic Lupus that he had seen in years. I have had at least 10 of the criteria needed to get diagnosed with Lupus at different times during my life. The Rheumatologist said that he believes that the Lupus started showing itself in me at the age of 5 years old. So no it is not funny when the dx gets changed or a person gets ignored. It is sad indeed.
Diagnostic Limbo: Seeing Rheumy since November 07, Taking plaquenil, Cymbalta, Flexeril,Claritin, Zantac,Ambien, vitamin D, Darvocet.
Lynnwood - For your consideration:
"Good Doctor" - oxymoron
"Medical Care" - oxymoron
Just thought I'd add to your collection. I've been using these for a long time now. I'm in a foul mood about this very thing today. My sister is very, very sick and getting nowhere fast. I "pulled rank" today and am taking her to be seen early in the morning. It may be the day I lose my composure altogether. And before anyone tells me how damaging that could be for her doctor/patient "relationship".....I already know that. Not sure it would be any huge loss...except maybe for them to miss the opportunity to actually DO something for her.
Needed to vent. Sorry. And thanks.....