Judy (MJLD), your book is wonderful!

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Ginny
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Date Joined Feb 2003
Total Posts : 5514
   Posted 7/23/2008 5:12 PM (GMT -7)   
Judy, I just finished your book!  It was the best afternoon I've given myself in ages.  You have a terrific knack at story telling.  I was laughing out loud reading about your hospital admissions.... Especially the story about "Betty" and "Bob".  And your ECG test. Too funny! 
 
I spent the first chapter in tears.  So much of what you said applies to how I feel every day.  So much of it.  I used a highlighter to mark places that really hit me.  I'd say 80% of the first chapter is neon yellow.  I don't feel so alone.  I know my feelings and emotions are the same as other people with lupus.  I felt when I was reading that chapter that it was a biography of me!  So many times I've tried to explain to other people and even myself, what I was feeling and couldn't come up with the words.  But you did. 
 
I'm turning a new leaf today Judy.  I'm trusting God to look after me in his most perfect way.  I'm also not going to try to be such an achiever. I don't need to prove anything to anyone.  I need to look after myself and slow down..... So that I can continue to live and experience the beauty.
 
Thank you Judy. God bless you,
 
Ginny
 
 
I can do anything through Jesus Christ who strengthens me. I have learned in whatever state I am in,to be content. Phillipians 4:11-13

34 years old. Diagnosed with lupus in 2000. Fibromyalgia, anti-phospholipid syndrome(APS)(stroke),Sjogren's, Raynaud's, seizure disorder-(miraclulously disappeared!), Libman Sach's Endocarditis, vasculitis, sacroiliitis, arthritis (neck) . Prednisone, Imuran, Coumadin, Clobazam, Amitriptyline, didrocal, Cozaar, calcium, Cykolokapron, multi-vitamin, vitamin D, Magnesium, vitamin B6, Acidophilus


Ginny
Veteran Member


Date Joined Feb 2003
Total Posts : 5514
   Posted 7/27/2008 10:12 AM (GMT -7)   
Judy, I'm bumping this back up to the top. I don't want you to miss it!!
I can do anything through Jesus Christ who strengthens me. I have learned in whatever state I am in,to be content. Phillipians 4:11-13

34 years old. Diagnosed with lupus in 2000. Fibromyalgia, anti-phospholipid syndrome(APS)(stroke),Sjogren's, Raynaud's, seizure disorder-(miraclulously disappeared!), Libman Sach's Endocarditis, vasculitis, sacroiliitis, arthritis (neck) . Prednisone, Imuran, Coumadin, Clobazam, Amitriptyline, didrocal, Cozaar, calcium, Cykolokapron, multi-vitamin, vitamin D, Magnesium, vitamin B6, Acidophilus


mawmaw66
Regular Member


Date Joined Feb 2007
Total Posts : 102
   Posted 7/27/2008 1:32 PM (GMT -7)   
Judy, I have ordered your book and its on its way, I can't wait to read it.

Linda
Lupus, RA, OA, Raynard diseases, Hypothyroidism and a Breast cancer survivor.
Meds. Plaquenil,Synthroid,Lexapro,Mobic,Hydrocodon5/500 for sever pain.


Ginny
Veteran Member


Date Joined Feb 2003
Total Posts : 5514
   Posted 7/28/2008 8:45 PM (GMT -7)   
Hey Linda!
 
That's great! You'll enjoy Judy's book. It's funny, it'll make you cry too. She's a great author! Bumping this up again Judy.  Where are ya???  Hope you're okay,
 
Ginny
I can do anything through Jesus Christ who strengthens me. I have learned in whatever state I am in,to be content. Phillipians 4:11-13

34 years old. Diagnosed with lupus in 2000. Fibromyalgia, anti-phospholipid syndrome(APS)(stroke),Sjogren's, Raynaud's, seizure disorder-(miraclulously disappeared!), Libman Sach's Endocarditis, vasculitis, sacroiliitis, arthritis (neck) . Prednisone, Imuran, Coumadin, Clobazam, Amitriptyline, didrocal, Cozaar, calcium, Cykolokapron, multi-vitamin, vitamin D, Magnesium, vitamin B6, Acidophilus


DQueen
Regular Member


Date Joined Jun 2008
Total Posts : 90
   Posted 7/29/2008 9:25 AM (GMT -7)   
Hey, just wondering how I can get my hands on Judy's book? I'm very interested to read it!

Lots of Love!
DQueen
 
 
 
Lupus, Rheumatoid Arthritis, High Blood Pressure, Anemia, Congestive Heart Failure, Kidney Failure


Ginny
Veteran Member


Date Joined Feb 2003
Total Posts : 5514
   Posted 7/29/2008 9:58 AM (GMT -7)   
Hi DQueen!
 
 
Once I ordered it from Amazon, it only took about 10 days to get to me, in Canada.  So it won't take long if you're in the US! 
I can do anything through Jesus Christ who strengthens me. I have learned in whatever state I am in,to be content. Phillipians 4:11-13

34 years old. Diagnosed with lupus in 2000. Fibromyalgia, anti-phospholipid syndrome(APS)(stroke),Sjogren's, Raynaud's, seizure disorder-(miraclulously disappeared!), Libman Sach's Endocarditis, vasculitis, sacroiliitis, arthritis (neck) . Prednisone, Imuran, Coumadin, Clobazam, Amitriptyline, didrocal, Cozaar, calcium, Cykolokapron, multi-vitamin, vitamin D, Magnesium, vitamin B6, Acidophilus


MJLD
Veteran Member


Date Joined Jul 2007
Total Posts : 1048
   Posted 7/29/2008 6:51 PM (GMT -7)   
Hey Ginny,
I'm sorry I haven't been around. The lupus actually attacked my eyes and caused severe inflammation and pain. It is under control with several eye drops and the eye doc numbed it. I also found out I have glaucoma related to chronic pred use!

Anyway...thank you so much for your comments about my book! I'm so thankful that you enjoyed it and found yourself in it. I think one of the worst aspects of lupus is the isolation and lack of understanding of people who have never experienced it! God Bless You so much for your comments! Love ya, Judy!

Ginny
Veteran Member


Date Joined Feb 2003
Total Posts : 5514
   Posted 7/29/2008 7:36 PM (GMT -7)   
Oh Judy, your book has already done wonders for my own self confidence and just knowing my feelings are valid. Great writing Judy.  I hope many others will pick it up too!
 
Blessings,
Ginny
 
I'm sorry about your eyes.  I'm going to respond to your other thread.....
I can do anything through Jesus Christ who strengthens me. I have learned in whatever state I am in,to be content. Phillipians 4:11-13

34 years old. Diagnosed with lupus in 2000. Fibromyalgia, anti-phospholipid syndrome(APS)(stroke),Sjogren's, Raynaud's, seizure disorder-(miraclulously disappeared!), Libman Sach's Endocarditis, vasculitis, sacroiliitis, arthritis (neck) . Prednisone, Imuran, Coumadin, Clobazam, Amitriptyline, didrocal, Cozaar, calcium, Cykolokapron, multi-vitamin, vitamin D, Magnesium, vitamin B6, Acidophilus


MJLD
Veteran Member


Date Joined Jul 2007
Total Posts : 1048
   Posted 7/30/2008 11:12 AM (GMT -7)   
Ginny,
You are such a sweetie. I'm so thankful my book helped you. How are you feeling? Bless ya, Judy

Ginny
Veteran Member


Date Joined Feb 2003
Total Posts : 5514
   Posted 7/30/2008 5:30 PM (GMT -7)   
Not feeling so great Judy.  Lots of issues, no answers.  I have an ongoing thread called "new symptoms.  What the heck is going on?"  That'll catch you up on what's going on.
 
Well, I'm just stating the truth about your book and your writing!  It really is wonderful!
 
Blessings to you too Judy,
 
ginny
I can do anything through Jesus Christ who strengthens me. I have learned in whatever state I am in,to be content. Phillipians 4:11-13

34 years old. Diagnosed with lupus in 2000. Fibromyalgia, anti-phospholipid syndrome(APS)(stroke),Sjogren's, Raynaud's, seizure disorder-(miraclulously disappeared!), Libman Sach's Endocarditis, vasculitis, sacroiliitis, arthritis (neck) . Prednisone, Imuran, Coumadin, Clobazam, Amitriptyline, didrocal, Cozaar, calcium, Cykolokapron, multi-vitamin, vitamin D, Magnesium, vitamin B6, Acidophilus


MJLD
Veteran Member


Date Joined Jul 2007
Total Posts : 1048
   Posted 7/31/2008 1:41 PM (GMT -7)   
Hey! I was interviewed by my local paper today regarding my book. The article will run in the Sunday edition. I'm excited. I think you guys will be able to see the article online. I'll get the link. I'm sure everyone isn't as psyched as I am. I'm really humbled to be a small part of raising awareness abouut this disease process! God Bless You all, Judy

Ginny
Veteran Member


Date Joined Feb 2003
Total Posts : 5514
   Posted 7/31/2008 3:06 PM (GMT -7)   
Judy that is so cool!  I think your book is going to be a hit. It is in our house! Hehe...
 
I'll bet you'll be framing that Sunday newspaper!!  I would be :)
I can do anything through Jesus Christ who strengthens me. I have learned in whatever state I am in,to be content. Phillipians 4:11-13

34 years old. Diagnosed with lupus in 2000. Fibromyalgia, anti-phospholipid syndrome(APS)(stroke),Sjogren's, Raynaud's, seizure disorder-(miraclulously disappeared!), Libman Sach's Endocarditis, vasculitis, sacroiliitis, arthritis (neck) . Prednisone, Imuran, Coumadin, Clobazam, Amitriptyline, didrocal, Cozaar, calcium, Cykolokapron, multi-vitamin, vitamin D, Magnesium, vitamin B6, Acidophilus

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