Has anyone had an antibody that attacked them and baby during pregnancy?

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

mom2four
Regular Member


Date Joined Jul 2008
Total Posts : 45
   Posted 7/25/2008 7:48 PM (GMT -7)   
I have not been diagnosed with Lupus, but finally with some autoimmune disorder. It seems to be extremely hormone activated. I was very sick with all sorts of things when I first started my period; I was so extremely sick with pregnancies that I had to be on IV's, contracted pancreatitus, etc. With the first two babies, this went on treated by IV's and anti-nausea; both were a little preterm. During the third, they detected an antibody that they thought signaled Lupus, but didn't really follow up. I had some pancreatic problems with this one, but my thyroid went completely bonkers (Hashimoto) which led to a host of other problems. These eventuall cleared up after about three years (except the thyroid). With this last baby (now 2); I had a more severe reaction, and a lot of Pancreas problems, unexplained bleeding, sooner onset of nausea (1 week after conception I was at the doctor); constant severe pain;the baby was larger that expected at first, then quit growing; was delivered early, they thought he was stillborn, but reveved him. The antibody had "eaten" all of his blood platelets, though. Thankfully, he is now fine. I am still struggling with this weird antibody which binds my thyroid and does I am not sure what all else. I still have a lot of panceas problems as well, and just feel awful still. Is this anything any of you have dealt with? Will it go away?

puccini914
Regular Member


Date Joined Jun 2008
Total Posts : 363
   Posted 7/26/2008 8:06 AM (GMT -7)   
Hello Mom2four and welcome. I have to tell you that although I'm in dx limbo, I'm pretty convinced it's Lupus. The lord blessed me last year with a very strong, healthy and big baby boy. I know now how much He really took care of my precious bundle. However I must say that since his birth my symptoms have steadily accelerated with every menstral cycle. I dread getting my period. My joint inflammation, fatigue and hives all inccrease and only prednisone seems to help. But thank God something does. I'm discussing possble hormone therapy with my PCP. You will see in some other posts that some people's Lupus is so tied to their hormones that they've even opted for sx. ((((((mom2four))))))). I hope they give you some good meds to help you feel better soon. This is a great place to compare notes with people going through what you are feeling. It's such a blessing not feel so alone and to know that what you're going through is not "just in your head". I'm so glad your baby is doing well, I can't imagine what that must have been like for you and your family. Best wishes and prayers.

Jennifer

Diagnostic Limbo: Seeing Rheumy since November 07, Taking plaquenil, Cymbalta, Flexeril,Claritin, Zantac,Ambien, vitamin D, Darvocet.

 

 


mom2four
Regular Member


Date Joined Jul 2008
Total Posts : 45
   Posted 7/26/2008 8:29 AM (GMT -7)   
Thank you- It seems like drs just sort of procrastinate; and with the first couple, once they procrastinated long enough, it did disappear. You seem to get that "all in your female mind" thing. I am glad that your baby is well. I hope that you find the help that you need soon. It is so frustrating to feel like your missing so much babyhood for feeling so nasty!! God bless!!

AlwaysRosie
Veteran Member


Date Joined Jan 2005
Total Posts : 8616
   Posted 7/26/2008 9:47 AM (GMT -7)   
Hi Mom2four,

I'm sorry I don't know much about your situation.

But I would suggest asking for copies of all the blood work up until now . . . if you can still get it. It might be helpful to a rheumatologist down the road.

Make sure to read the post in "Lupus Resources" regarding tips for new members too. (Link in my signature).

Prepare well for your doctor's appointments and make sure to bring typed notes and questions. More about that in a post in Lupus Resources.

Blessings!

In His Grip

AlwaysRosie           "We can't control the waves, but we can learn how to surf!!"

Psalms 139

Co-Moderator - Lupus Forum

UCTD, Inflammatory Arthritis, Diverticulosis, (recent dx - Sjogrens, Crohn’s 4/08)

Clickable Links:  Lupus Resources    Lupous.Org   Lupus Criteria (4 of 11)   Lupus Chapter Locator


hippimom2
Veteran Member


Date Joined Jul 2005
Total Posts : 5403
   Posted 7/26/2008 3:03 PM (GMT -7)   
mom2four, I hate that feeling that docs give you about it all being in your head. They seem to especially like to do it to us moms by telling us that of course you are tired - you are a mom with young kids and all moms are tired and stressed and maybe depressed.

I agree that lupus seems tied into hormones to some degree. I've read about a lot of women having flares after they have delivered their babies. I didn't have lupus when I had my kids, but I can tell that my lupus flares up prior to my menstrual cycle. I also found out a few months ago that my hormone levels were extremely low. I am now on a compounded prescription cream and it has helped some with my symptoms.

I hope you can get some answers soon - I know how frustrating it can be to be in limbo. Rosie has a very good idea about getting all of your past labs together.
Diagnosis:  UCTD (lupus) 2006; Raynauds 2006; Sjogren's 2006; lupus symptoms began 2003; UC 2008; CFS 1991; Mono 1985
Meds:  Plaquenil 400mg; Prednisone 5-10mg; Tramadol 100mg 3-4x daily; Doxepin 25-50mg; Prevacid; Evoxac; Steriod Cream and Mouth Rinse for tongue and mouth ulcers; Hydrocodone 5/500 prn for severe pain; Artificial tears

 

Clickable:  LUPUS INFORMATION & LUPUS RESOURCES.

Please allow HealingWell to continue helping others by donating: http://www.healingwell.com/donate/

 

Co-Moderator: Lupus and CFS Forums



mom2four
Regular Member


Date Joined Jul 2008
Total Posts : 45
   Posted 7/26/2008 5:16 PM (GMT -7)   
Thanks, Ya'll!
New Topic Post Reply Printable Version
Forum Information
Currently it is Monday, December 05, 2016 3:37 AM (GMT -7)
There are a total of 2,732,879 posts in 301,067 threads.
View Active Threads


Who's Online
This forum has 151222 registered members. Please welcome our newest member, TAS-MS/lupy.
231 Guest(s), 2 Registered Member(s) are currently online.  Details
dizzydaisies, Skyy


Follow HealingWell.com on Facebook  Follow HealingWell.com on Twitter  Follow HealingWell.com on Pinterest
Advertisement
Advertisement

©1996-2016 HealingWell.com LLC  All rights reserved.

Advertise | Privacy Policy & Disclaimer