New appreciation for you moms and working gals

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PattyLatty
Veteran Member


Date Joined Mar 2006
Total Posts : 2570
   Posted 7/26/2008 9:30 AM (GMT -7)   
I've always had the luxury of stopping when I felt the need to rest because I don't have an outside job and my kids are all grown. So I've been able to stay out of the sun, stay home when I felt like it (which has been most of the time) turn down invitations when I didn't feel like going somewhere, and having my hubby bring food home if I didn't feel like cooking. I believe in taking care of myself when I'm sick and I think this is why I've finally started feeling much better.

Lately my days have been turned upside down because we finally found a new home, closed a week ago, started remodeling it the following day, and immediately started hiring contractors to do some work to our current home so we could put it on the market. So my days are no longer my own. I'm going a hundred miles an hour every day, my phone never stops ringing, I'm outside more than I should be, and I'm exhausted. And when I say we, I mean I. My DH spends his time at his work and I've taken charge of the house thing. Plus the houses are in different towns and I'm running back and forth between them. Then I run to the yarn store to find some peace and quiet with my friends in the late afternoon. Yesterday I felt so weak that I couldn't stand and look at a wall of yarn and had to sit down. It's as though my legs won't support me anymore. My joints are all on fire, and I'm so weak and tired that I just want to sleep for a week. I know the day will come that I can stop and rest again, (and I won't have any more stairs!!!!!) and we'll probably move in about six weeks, but boy oh boy. How do you guys do it. No wonder some of you never get well.

Intellectually I've wondered how you get up and go to work when you're tired, or how you take care of a family and cook meals for a family, do laundry, clean your houses, all while you feel so bad. Now I know what it's like for so many of you. This just sucks. And it's putting me into a flare. And on top of everything else, I have a husband and daughter to understand and support me, and help me, and I know so many of you don't.

There's always a silver lining, I suppose, and in my case it's that I've been losing weight. It's so darn hot and humid here, as Carol can attest, and the heat plus my fatigue has taken away my appetite. And the running around on top of that, has helped me lose a few pounds. And that feels wonderful.

So to all of you friends out there, my hat's off to you. I hope everyone has as good a weekend as possible and that you get some refreshing rest! I love you guys.

Hugs,

Pat
Lupus, Sjogren's, osteoarthritis, fibro, renauds, restless leg, hiatal hernia, double vision, migraines, costocondritis.
cellcept, neurontin, prednisone, plaquenil, synthroid, triamterene, tramadol, actonel, tri-est, imitrex, cymbalta, lunesta, multivitamin, calcium w vit D, fish oil, aspirin


jhmom
Veteran Member


Date Joined Oct 2004
Total Posts : 2244
   Posted 7/26/2008 3:12 PM (GMT -7)   
((((( Pat ))))) it sounds like it's an exciting time for you as well as exhausting. Just pace yourself as best as you can and get plenty of rest. Stay hydrated and try to eat as often as you can even if it's a little fruit, nuts, etc. Not eating is hard on the body especially on us.

I work 4 days (32 hours) a week and lately getting up in the morning has been extremely hard for me. about half way through the day I am ready for a nap. On my off day I try to run errands and usually end up coming home and resting for a couple of hours, just going shopping takes it's toll on me. Thankfully my hubby helps out a lot around the house with laundry and cooking.

Take care Pat, love ya!!
Stacie

Trust in the Lord with all thine heart, and lean not unto thine own understanding ~ Proverbs 3:5 ~

DX: Hashimoto's, Celiac Disease, Raynaud's, Lupus and Sjogrens
RX: Imuran, Plaquenil, Methotrexate, Flexeril, Piroxicam, Levoxyl, Folic Acid, Folgard OS (B12), Davocet (as needed) and magic mouthwash (for mouth sores)


hippimom2
Veteran Member


Date Joined Jul 2005
Total Posts : 5403
   Posted 7/26/2008 3:14 PM (GMT -7)   
(((((Pat))))) I can't imagine how exhausted you must be with the move and all that goes into that and trying to get your house ready to sell. I think that's one reason I keep putting off trying to get our house ready to sell - it exhausts me just to think about it.

Thanks for your post - yes, it can be hard to keep going as a mom when lupus has sucked all of your energy and filled your joints with pain and all you want to do is crawl into bed. I've had a pretty good summer up until now. I was able to do a lot with my kids and I was doing okay, but I think it has all caught up to me now and I am suffering. Unfortunately I can't stop right now. My daughter is doing a bunch of community dance performances this week and next week, and my husband is having to put extra hours in at work this week and next week, so I am on my own. I have to say that my kids have been great about helping this summer and my son has even helped with some of the meals.

You are right that it is so hard to catch up on rest and feel better when you have no choice but to keep going despite feeling rotten. I think that's where I'm at right now. I hope things settle down for you soon and I hope you have lots of help unpacking. I imagine it will be nice once you have gotten all moved. Keep us posted on how things are going. Lots of hugs
Diagnosis:  UCTD (lupus) 2006; Raynauds 2006; Sjogren's 2006; lupus symptoms began 2003; UC 2008; CFS 1991; Mono 1985
Meds:  Plaquenil 400mg; Prednisone 5-10mg; Tramadol 100mg 3-4x daily; Doxepin 25-50mg; Prevacid; Evoxac; Steriod Cream and Mouth Rinse for tongue and mouth ulcers; Hydrocodone 5/500 prn for severe pain; Artificial tears

 

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sjkly
Veteran Member


Date Joined Dec 2007
Total Posts : 2113
   Posted 7/26/2008 3:34 PM (GMT -7)   
I don't have kids so I admire the mothers too. I do however have an outside job and since I am single and have to support myself and self employed so no sick days I have to get up and go to work everyday no matter how I feel. A story my sister tells about my mother when we were children helps keep me motivated.

My mother was a single mom with three young children 6, 5, and 3. She worked as a waitress and things were always tight financially. One day she had all three of us in the car and she ran out of gas about a mile from the gas station. She got out of the car picked up the gas can out of the trunk and started walking. Later someone asked her why she did not just stay in the car and wait for help. She said "I learned a long time ago that the calvary is not coming."

For many of us their is no back up plan we do it or it doesn't get done. When you depend on yourself like I do that is one thing but when you have little children who depend on you that is another order of magnitude.
My mother is my hero. She is also the example I try to follow.

Ginny
Veteran Member


Date Joined Feb 2003
Total Posts : 5514
   Posted 7/26/2008 4:19 PM (GMT -7)   
Hi Pat!
 
Wow, you have a lot going on right now don't you.  I hope all of your house plans work out really well for you and your hubby!
 
Yeah, it's not easy. When you have to work to pay the bills and keep food on the table, you just get up and do it.  No other choice really.  I work on average about a 50 hour week during my busy wedding season.  So that's about half the year.  The other 6 months, I can slack off a bit and get some rest.  I also have the grocery shopping, house cleaning, doctor's appointments, etc, etc, to take care of.  I dont' have kids.  Thank goodness!!  I'd be dead if I did.  LOL.  I don't get the extra help around the house that I really need. My husband is wonderful, but not good at just "doing it".  He's better now that we have a house with a big yard.  It's his job to cut the grass.  There was no negotiating on that one, LOL!
 
I was doing fine with this amount of demand on me until this year.  Now I'm having to scale my photography business way back for next year.  Instead of shooting 25 weddings, I'm only doing 6, and then taking on a part time photography job as a realestate photographer.  Big, dramatic change.  My lupus has decided to come out of hiding.  I've had 3 flares since the end of April.  So things aren't very good right now. 
 
I think it's the same with everyone.  We just don't have a choice.  Like SJ said, there is no back up plan and if we don't do it, it doesn't get done, or the bills don't get paid.  We have to get up, go to work, and put stress into our lives. That's the way it goes!
 
Take it easy okay!  Don't let your lupus take control!
Ginny
I can do anything through Jesus Christ who strengthens me. I have learned in whatever state I am in,to be content. Phillipians 4:11-13

34 years old. Diagnosed with lupus in 2000. Fibromyalgia, anti-phospholipid syndrome(APS)(stroke),Sjogren's, Raynaud's, seizure disorder-(miraclulously disappeared!), Libman Sach's Endocarditis, vasculitis, sacroiliitis, arthritis (neck) . Prednisone, Imuran, Coumadin, Clobazam, Amitriptyline, didrocal, Cozaar, calcium, Cykolokapron, multi-vitamin, vitamin D, Magnesium, vitamin B6, Acidophilus


puccini914
Regular Member


Date Joined Jun 2008
Total Posts : 363
   Posted 7/27/2008 5:43 PM (GMT -7)   
Hi Ya'll, I'm in the process of moving as well. It's hard to pack wit a one year old and a five year old under foot. Meanwhile, my poor Hubby, who hadn't worked the past 3 weeks is now slammed with three jobs all at once. He can't take time to pack because we really need the money after such a long slow period. He's a painter. I don't know how we're going to do it with less then a week before we have to be in the new place. Please pray for me that I don't go into major flare. I really appreciate it. Love to all!!!!!!!!!!!!!!!!

Jennifer

Diagnostic Limbo: Seeing Rheumy since November 07, Taking plaquenil, Cymbalta, Flexeril,Claritin, Zantac,Ambien, vitamin D, Darvocet.

 

 


PattyLatty
Veteran Member


Date Joined Mar 2006
Total Posts : 2570
   Posted 7/27/2008 6:09 PM (GMT -7)   
Jennifer, I'll be thinking of you as I clean out closets and fill boxes. I hope your children don't remove things out of the boxes as you put them in! Pace yourself as best you can. Easy to say but hard to do isn't it.
Lupus, Sjogren's, osteoarthritis, fibro, renauds, restless leg, hiatal hernia, double vision, migraines, costocondritis.
cellcept, neurontin, prednisone, plaquenil, synthroid, triamterene, tramadol, actonel, tri-est, imitrex, cymbalta, lunesta, multivitamin, calcium w vit D, fish oil, aspirin


puccini914
Regular Member


Date Joined Jun 2008
Total Posts : 363
   Posted 7/27/2008 6:27 PM (GMT -7)   
Sure is Patty. I've got two big boxes to go to the thrift store and my 5 yr old boy keeps taking stuff out. The baby wants to be held all the time and wants to get into everything. Luckily he has one of those saucer bouncers. He'll sit in that thing and play and eat cheerios. Right now it's just so hard to see an end to all this, but I know this too will pass and we're moving to a house that's twice as big. So everthing is for the best once we get there.

Jennifer

Diagnostic Limbo: Seeing Rheumy since November 07, Taking plaquenil, Cymbalta, Flexeril,Claritin, Zantac,Ambien, vitamin D, Darvocet.

 

 


PattyLatty
Veteran Member


Date Joined Mar 2006
Total Posts : 2570
   Posted 7/27/2008 9:57 PM (GMT -7)   
At least you won't have to be in such a rush to unpack. The time crunch is what is killing me and it sounds like you're feeling the same pressure. This too will pass.
Lupus, Sjogren's, osteoarthritis, fibro, renauds, restless leg, hiatal hernia, double vision, migraines, costocondritis.
cellcept, neurontin, prednisone, plaquenil, synthroid, triamterene, tramadol, actonel, tri-est, imitrex, cymbalta, lunesta, multivitamin, calcium w vit D, fish oil, aspirin


TiBoBi
Regular Member


Date Joined Mar 2008
Total Posts : 89
   Posted 7/30/2008 3:28 PM (GMT -7)   

I hope you are feeling a bit better now and have had a chance to rest some.. I don't know how I do it sometimes. I work full-time and have two kids under the age of 10. There are days where I am just completely wiped-out. I am getting better at slowing down. I can tell now what is going to put me over the top, so I try to slow down before I hit my wall. Doesn't always work though. You mentioned your moving and construction stuff and I was taken back to last year, when we moved into our new house. I swear! That was the worst flare EVER! I was so tired but I really had no choice. Kids needed to be settled, stuff needed to be put away in between work, etc. Hubby helped with the big stuff but it still triggered a flare.

I got tired just typing that! Take care.. hope you feel better now.


Diagnosed with Lupus in January 2008.
Currently taking Hydroxychloroquine (Plaquinel), Lisinopril and Hydrochlorothiazide.
 
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