Hi Lis, I'm a newbie here too....also in Lupus limbo. My ANA is the same as yours. I also have fibro (10 yrs)- which I've been blaming symptoms on for that long. In the last few years, I've known there is just something else going on. I just started seeing a rheumie 1 1/2 yrs ago....and it seems she is reluctant to dx lupus as well. Other AI bloodwork doesn't confirm lupus. However, I just had a flare with high fever and elevated liver enzymes and low white cell count. The low white cell count (leukopenia) is one of the 11 criteria, which brings me to 4. It is interesting to hear others say that the rheumies are reluctant to dx due to insurance reasons. I so want an answer sometimes I get really annoyed - but perhaps they are doing us a favor!?
I am also not on any medication - have turned down steroids from my pcp a couple of times -though I have filled the Rx out of desperation, but then it seems if I wait a couple days things turn around on their own. I use Advil and some very low dose Xanax before bed only when sleep patterns get way out of whack. And lots of moist heat for muscle/joint pain, and neuro massage. I do feel I'm on some sort of continuum, however, with things ramping up, and I don't know how much longer I can go without Plaquenil, which the rheumie has suggested, but isn't pushing because of my fluctuating liver enzymes (I think - need to clarify). I don't know where you live - but winter is hard for me (midwest) and summer seems to improve things. I have just started with acupuncture treatment, and so far am finding good results.
At any rate - glad you're here and are keeping up with your little darlin'! I have found, in the short time I've been here on the forum - so much information and support - only wish I had arrived years sooner! Let us know what your rheumie has to say after your visit. Take care!
In His Grip
AlwaysRosie "We can't control the waves, but we can learn how to surf!!"
Co-Moderator - Lupus Forum
UCTD, Inflammatory Arthritis, Diverticulosis, (recent dx - Sjogrens, Crohn’s 4/08)
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