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Lady-T
New Member


Date Joined Aug 2008
Total Posts : 8
   Posted 8/6/2008 8:53 AM (GMT -7)   
Hello  everybody,
  I am new to this site and I just wanted to say hello and give you a little bit of info about me. I am a 25 year old wife and mother of two boys. Currently I am preparing to start my last year of nursing school.
 
It's been about a week now since my doctor told me that I have MCTD (mixed connective tissue disease), which she said is in the lupus family. She also told me that I have a bad case of iron deficiency anemia and low vitamin D.
 
For a few years I have  felt that something was off about my health. I have always  had headaches, fatigue, stomach problems etc. But about two weeks ago  I started  getting tingling  in my feet and hands. At  first it would come and go but it started to become constant. I soon began to feel it in my both legs and arms and when it got to my face I decided to go to the doctor. She did her blood test and the only ones that came back abnormal were the following:
             +ANA ( 2+ SPECKLED), +RNP, elevated ESR,   and low white blood cells
 
In recent days I have been experiencing some new symptoms. A couple of days ago I woke up with a pain in my left leg just above my knee. As the day went on my whole leg was week and heavy. I still have the tingling (like when your foot is falling asleep) in my extremities. My docotr does not know why I have this and is suppose to be consulting a neurologists. Yesterday I was fine when I woke up but around 4pm I started to get  flu-like aching in my body that just got worse as the night went on, even my eyelids ached.
 
I don't know how long I have had this condition, but it feels like it is just starting to show it's ugly  head because  I have never felt like this. So, I am a little scared about what may happen but I have faith that God will take care of me.
 
Thank you  for reading my post  nad thanks to all of you who have shared your story. I look forward to future dialogue.

All things work together for good for those who love God and are called according to his purpose.
Romans 8:28
 
 
 


Heartsong
Regular Member


Date Joined Feb 2008
Total Posts : 42
   Posted 8/6/2008 9:44 AM (GMT -7)   

Welcome to the board.

I have MCTD also.  My ANA was speckled and 1:1260.  I have vitamin D deficiency and anemia.  My oncologist just put me on 325 mg of iron three times a day, and I'm so worried it's going to give me stomach and intestinal problems.

The good news is I've been on plaquenil and prednisone since January, and the plaquenil must be working because I've been able to taper down to only 5 mg of prednisone now. 

 

 

 


 
43 year old female
DX:  Mixed Connective Tissue Disease (lupus, RA, polymyocitis, scleroderma) Jan 08
Meds:  Prednisone 9 mg, Plaquenil 400 mg, Wellbutrin XL 300 mg, Calcium/D 1200 mg, 81 mg aspirin, ibuprofen and Darvocet as needed for pain ( I take it maybe 3x/week) 


Lady-T
New Member


Date Joined Aug 2008
Total Posts : 8
   Posted 8/6/2008 9:48 AM (GMT -7)   
My doctor wants to start me on plaquenil. Did you get ant side effects with that medication. I am also taking 325mg of iron 2x a day and I am going to be taking vit. D once a week. How long have you had MCTD? What symptoms did you have? Thanks for responding.
All things work together for good for those who love God and are called according to his purpose.
Romans 8:28
 
 
 


hippimom2
Veteran Member


Date Joined Jul 2005
Total Posts : 5403
   Posted 8/6/2008 8:21 PM (GMT -7)   
Hi Lady T and welcome. I'm sorry to hear about your health problems, but it is good that your doc figured out what is wrong so that it can be treated. I've been on plaquenil for about 3 years and it is usually the first med that docs will put people on with these types of illnesses. The only side effect I had was some stomach upset for the first few weeks that I took it, but after a few weeks it went away. It's best to take it with food, but it still might upset your stomach some for a little while. You also need to get your eyes examined every six months because there is a very slight chance it could affect your eyes. It can take several months for plaquenil to get into your system and really start working so don't get frustrated if it doesn't help right away.

We have other people here with MCTD too, so hopefully they will see your post and give you some insight. THis is a great forum with very supportive people. This forum has been a lifeline for me and I know I would have had a lot harder time coping with my illness if I didn't have the great people here. Please ask any questions you have or vent if you are having a bad day.

Take care and I'm glad you joined us.
Diagnosis:  UCTD (lupus) 2006; Raynauds 2006; Sjogren's 2006; lupus symptoms began 2003; UC 2008; CFS 1991; Mono 1985
Meds:  Plaquenil 400mg; Prednisone 5-10mg; Tramadol 100mg 3-4x daily; Doxepin 25-50mg; Prevacid; Evoxac; Steriod Cream and Mouth Rinse for tongue and mouth ulcers; Hydrocodone 5/500 prn for severe pain; Artificial tears

 

Clickable:  LUPUS INFORMATION & LUPUS RESOURCES.

Please allow HealingWell to continue helping others by donating: http://www.healingwell.com/donate/

 

Co-Moderator: Lupus and CFS Forums



MJLD
Veteran Member


Date Joined Jul 2007
Total Posts : 1048
   Posted 8/7/2008 5:35 AM (GMT -7)   
Welcome to the forum Lady T! I know you will find alot of answers here and make alot of supportive friends. Hang in there! God Bless You, Judy
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