I have it. It started the year before my other autoimmune problems cropped up. My GYN has since told me that studies are out now proving that endo is autoimmune, and actually was my first autoimmune disease.
The cramping you describe could be endo, ovarian cysts or fibroids. It's hard to tell with just that symptom. I had that as well as nonstop AF for over 3 months and severe pain with bowel movements. I was also so bloated that I looked pregnant. After several tests and u/s, my doc and I decided to do the laprascopy and immediately after I felt better. I've been on birth control pills ever since to reduce the chances of it coming back.
Hopefully they can get to the bottom of it quickly for you.
I am new to the list. I am very thankful to all of you for the courage you have in voicing to all of us, the symptoms that you have.
I was diagnosed with Lupus in 1998, and my doctor died later, and the new doctor did not believe i had lupus, because the blood tests revealed only a mild case of lupus was possible. Went into a major flare a few months ago, and asked my doctor for plaquinil. He prescribed it, but also ordered Lupus blood tests. these tests were very very positive and I was sent to a rheumatologist. the Rheumy as you call them ordere other tests done because of symptoms. He found that I had Sjogren's Syndrome, and I had no idea what it was. He said it was a variation of Lupus.
So I started looking on the internet and found this forum, which I feel is lucky for me. So many of you reflect my symptoms back to me, and it comforting that I am not alone. Many others out there who go through the same thing that I am facing on a daily basis. I am taking 400 mg of plaquinil now, and hope that it will help. I also have my own little drug store in my kitchen cabinet. Host of things I am being treated for. Most recently a heart attack.
Thank you, all of yoiu again for your listing of things. It really helps.
I do have endometrosis as well as Lupus, Fibromyalgia, Sjogrens, along with a few more things. I've been on continuous hormones since May 2000 (No periods since) and it has helped tremendously. You just have to find the right one for your body and make sure your Rhuemy knows as well. Good luck!!!!