Yes, I am following with a rheumy and my neurolgist. I have numbness that comes and goes, vertigo, painful joints, fatigue, low grade fevers, weakness and overall achyness, chronic hives. My dx has gone from seronegative lupus, to fibromyalgia, to MS, to vasculitis, to some type of autoimmune, possibly lupus. My docs are working together and doing some tests I haven't had in the 20 years I've been ill.
The inflammation I spoke of is the crp. I expected the sed rate to be elevated with that, but it isn't and we are stumped.
My bloodwork is like yours. Crp through the roof - sed rate normal. Positive ANA - but otherwise negative on the other markers for autoimmune, except for recent leukopenia with the last flare w/ fever. Already have a fibro dx, w/ chronic fatigue and probable chronic epstein barr. Rheumie and pcp are trying to put the puzzle pieces together to see if Lupus is a part of the picture as well. An answer would be helpful - especially since I'm not being treated right now and can barely remember what it's like to feel well! Hang in there - it's so helpful to know others understand the frustration of the diagnosis limbo, and have been through it too!