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okie
Veteran Member


Date Joined Dec 2006
Total Posts : 2818
   Posted 8/14/2008 10:57 AM (GMT -7)   
Hi rere, welcome to the group. I noticed that you responded to a couple of posts and didn't want you to get lost in the mix. My name is carol aka okie. I'm glad you found us. This a a great support system. It sounds like you have been at this for awhile. I look forward to gettig to know ya.
hugs
carol
 
Possible scleroderma.  stage 4 COPD,  Osteoporosis,osteoarthritis
Prednisone,plaquanil400mg,azythromyacin,vicodin 4x5mg,Evista60mg, Effexor 150mg,Xanax 1.0 x3,Singular,nitro spray, spirivia,aciphex,lasix,inderal,pot.chlor.,B12 
I will never leave you nor forsake you!
 
 
 


Lynnwood
Forum Moderator


Date Joined May 2005
Total Posts : 7018
   Posted 8/14/2008 11:35 AM (GMT -7)   
Welcome new members! I second everything okie just posted! :-)

Lynnwood, Co-Moderator: Lupus Forum
SLE(’00), Sjogren's Syndrome, Raynaud's Syndrome, SAD, Depression, Herpes Simplex 1
Piroxicam, Plaquenil, Prednisone(was 15mg, now 8mg), Cellcept, Xanax, Trazodone, Boniva(3mth shot), Wellbrutrin SR, Valtrex
Links: DIAGNOSING LUPUS (4 of 11), LUPUS INFORMATION, LUPUS RESOURCES, Donate to HealingWell, Drug Interactions


rere7896
New Member


Date Joined Jun 2008
Total Posts : 14
   Posted 8/14/2008 12:36 PM (GMT -7)   

Thank you for the nice welcome. I guess I should share my history as it seems everyone else did. Yes, I guess you can say I've been at this for a little while. I've always been a "sick" person if you will since birth really. I battled upper respiratory infections, bronchitis, and pneumonia on a monthly basis. I was very active throught-out school and after I graduated high school I guess is when things went downhill. I had endometrosis and early stage cervical cancer at 18 almost 19 and then started having heart problems. I have SVT and MVP and have been under meds for that and pretty much under control ever since. Then I got really sick at 21 and after 4 doctors found out I had Scarlett Fever (not common anymore hense the late diagnosis). I think that is when I really started having problems and just didn't get diagnosed until 24. I had started with left arm swelling and turning purple and then really bad chest pains until I was hospitalized. I was seeing a Rheumy but every week I had a different disease and a different test done on my body. I tried to see the other Rhuemy in my city that was really well known but I was put on the waiting list for 4 months. Well, since I ended up in the hospital I got my consult on the 4th day at 10:30 PM. He looked at me and my labs and said, "you have Lupus." How easy it seemed for him to tell me that and how odd the other doctor missed it (strange enough - they use to be partners). I'm 30 now and have been under his care since that visit. I've been through the ringer with meds -- and now I guess to other people's standards -- am pretty sick. I don't let it stop me and I still work my usual 40 hours a week and take care of the house, my boyfriend, and his kids. I have disease pretty much everywhere but the latest is my spinal cord. I have bouts of paralysis but seem to be ok now. I have disease in my frontal lobe (brain), lungs, heart, muscles, joints, skin, spinal cord, eyes, kidneys, female organs, -- pretty much it I think. I can't take plaquenil anymore b/c I have plaquenil toxicity and benign tumors behind my eyes......

I'm currently taking atenolol, verapamil, ovcon (no cycle since 2000), prednisone, neurontin, cytoxan, folbic, diludad, loratab, demerol,(depending on severity of pain), promethazine, singulair, lasix, amitriptyline, baby aspirin, patanol --- I think that's it...

I have SLE, SVT, MVP, Sjogrens, Fibromyalgia, Neuropathy, migraines, Pleurisy, asthma, endometrosis, Reynauds -- think that's it as well....

Sorry if I bored everyone but I figured I should be fair and tell my story since everyone else was kind enough to share theirs......



Good luck to everyone and may God Bless you everyday.....

I'm currently taking atenolol, verapamil, ovcon (no cycle since 2000), prednisone, neurontin, cytoxan, folbic, diludad, loratab, demerol,(depending on severity of pain), promethazine, singulair, lasix, amitriptyline, baby aspirin, patanol --- I think that's it...

I have SLE, SVT, MVP, Sjogrens, Fibromyalgia, Neuropathy, migraines, Pleurisy, asthma, endometrosis, Reynauds -- think that's it as well....

Post Edited (rere7896) : 8/14/2008 2:06:28 PM (GMT-6)


AlwaysRosie
Veteran Member


Date Joined Jan 2005
Total Posts : 8616
   Posted 8/14/2008 12:47 PM (GMT -7)   
Hi there!!

Thanks for sharing your story. Welcome to the forum!!

Blessings!

In His Grip

AlwaysRosie           "We can't control the waves, but we can learn how to surf!!"

Psalms 139

Co-Moderator - Lupus Forum

UCTD, Inflammatory Arthritis, Diverticulosis, (recent dx - Sjogrens, Crohn’s 4/08)

Clickable Links:  Lupus Resources    Lupous.Org   Lupus Criteria (4 of 11)   Lupus Chapter Locator


jhmom
Veteran Member


Date Joined Oct 2004
Total Posts : 2244
   Posted 8/14/2008 2:54 PM (GMT -7)   
Hi Rere, bless your heart, you have had a lot going on for years. It sounds like you have a great doctor that has you on a good treatment plan. This is a great place filled with wonderful people who are here to support and encourage one another. So please vent, ask questions or just hang out with us, from what you have been through I am sure you will be able to help many people here. Take care
Stacie

Trust in the Lord with all thine heart, and lean not unto thine own understanding ~ Proverbs 3:5 ~

DX: Hashimoto's, Celiac Disease, Raynaud's, Lupus and Sjogrens
RX: Imuran, Plaquenil, Methotrexate, Flexeril, Piroxicam, Levoxyl, Folic Acid, Folgard OS (B12), Davocet (as needed) and magic mouthwash (for mouth sores)

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