Cause of Lupus

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New Member

Date Joined Aug 2008
Total Posts : 10
   Posted 8/14/2008 1:21 PM (GMT -6)   
If the cause of the Lupus were found by an individual who has Lupus not a world renowned scientist, would people actually listen. When we are sick we intrust doctors to heal us. They are the ones who have gone to school and now make the big bucks in keeping us alive. And that is what we do, we entrust them with our lives. What if we had a situation that what doctors were learning was not the truth. What if the science behind autoimmunity understanding is not correct. All I keep hearing about when I read about autoimmune diseases is that the immune system is screwing up, this simply cannot be true. Just look at yourself in the mirror and wonder at how sophisticated our body structures are. Given this complexity, how could the immune system lose it's way. What if medical science were leaning in the direction of our genetic profiles as causes for disease when in reality disease is making our genetic profile. I do not believe genetics cause disease, I believe genetics dictate our behaviour at the most intimate of levels. That level is cellular. In order for any behaviours of our genetic code to become activated it needs a cause, a catalyst. When I exhibit symptoms of disease it is because a causative factor as activated a piece of my genetic profile. There has to be a cause for every disease, to believe otherwise is foolish. Is anyone listening so far.

SLE 2002, pulmonary sarcoidosis, deep vein thrombosis, raynaud's
When you have eliminated the impossible, all that remains, however improbable, is the truth. 

Post Edited (ojibway) : 8/14/2008 1:23:09 PM (GMT-6)

Veteran Member

Date Joined Jan 2005
Total Posts : 8616
   Posted 8/14/2008 6:14 PM (GMT -6)   
Hi David,

Welcome to the forum.

I'm not sure if your post is a question or a statement . . . but lots of us have wondered if we had some some trigger at some point that sent things out of wack in our immune system. I know that when I was a kid, I played with some mercury. I've always wondered if that got things started in my case.

I'm sorry you are dealing with so much. Glad you found us !!


In His Grip

AlwaysRosie           "We can't control the waves, but we can learn how to surf!!"

Psalms 139

Co-Moderator - Lupus Forum

UCTD, Inflammatory Arthritis, Diverticulosis, (recent dx - Sjogrens, Crohn’s 4/08)

Clickable Links:  Lupus Resources    Lupous.Org   Lupus Criteria (4 of 11)   Lupus Chapter Locator

Veteran Member

Date Joined Feb 2003
Total Posts : 5514
   Posted 8/14/2008 6:54 PM (GMT -6)   
HI David,
The eternal question...I wish we had an answer too.
If we knew what was the cause or trigger, we'd have a cure.  I think the immune system is so complex that even the researchers are overwhelmed with the task of trying to figure it out.  So many diseases are immune related.  Once they can find the triggers or causes, we'll have a cure for all AI diseases.  In the meantime, we try to find ways to cope, live, and find joy.
I spent the first 3 years of my life on a farm where grandpa used pestisides on the crops. I was around all kinds of chemical crap. That could be one trigger.  I also had from being a baby, constant strep throat infections. Didn't get the old tonsils out until I was 8.  That could be another trigger.  So many possibilities. 
Welcome to the forum!
I can do anything through Jesus Christ who strengthens me. I have learned in whatever state I am in,to be content. Phillipians 4:11-13

34 years old. Diagnosed with lupus in 2000. Fibromyalgia, anti-phospholipid syndrome(APS)(stroke),Sjogren's, Raynaud's, seizure disorder-(miraclulously disappeared!), Libman Sach's Endocarditis, vasculitis, sacroiliitis, arthritis (neck) . Prednisone, Imuran, Coumadin, Clobazam, Amitriptyline, didrocal, Cozaar, calcium, Cykolokapron, multi-vitamin, vitamin D, Magnesium, vitamin B6, Acidophilus

Veteran Member

Date Joined Jul 2007
Total Posts : 1048
   Posted 8/14/2008 7:04 PM (GMT -6)   
The paternal side of my family has many, many AI diseases. Crohns, Lupus, Rheumatoid being the main 3. I do believe genetics play a role. I do believe something triggers the immune system to over react. I also believe that science has made some great strides in the area of AI diseases, although I know we're a long way from a cure. Just my 2 cents worth! :)

Veteran Member

Date Joined Oct 2004
Total Posts : 2244
   Posted 8/14/2008 8:53 PM (GMT -6)   
I also believe Stress is a trigger. My health problems did not start until I was under a lot of stress at work and with some family members.

Trust in the Lord with all thine heart, and lean not unto thine own understanding ~ Proverbs 3:5 ~

DX: Hashimoto's, Celiac Disease, Raynaud's, Lupus and Sjogrens
RX: Imuran, Plaquenil, Methotrexate, Flexeril, Piroxicam, Levoxyl, Folic Acid, Folgard OS (B12), Davocet (as needed) and magic mouthwash (for mouth sores)

Veteran Member

Date Joined Dec 2007
Total Posts : 2113
   Posted 8/14/2008 9:16 PM (GMT -6)   
Research from the medical community agrees with you that AI diseases probably are triggered by a virus or other infection in someone with genetic suseptibility

Veteran Member

Date Joined Apr 2006
Total Posts : 1296
   Posted 8/14/2008 10:48 PM (GMT -6)   
Not sure if you are asking a question or just venting your frustration. 
Current incomplete science indicates that most auto immune patients have a set of genes that make their immune systems susceptible to some kind of a trigger.  Studies have shown that AI diseases tend to run in families but not necessarily the same ones.  Maybe they have the same genes but different triggers.  I have never read any theories about genetic mutations but I suppose that could happen...just seems unlikely in such an evolved species. 
Studies have also shown that all AI diseases except RA are rapidly increasing and it could be due to what we breathe and eat.  No one really knows for sure.  Either there are a lot of mutants out there or there is a growing problem with what we eat and breathe...and maybe the stress of modern life. 
There are hereditary AI diseases like inclusion body myositis.  IBM is a very rare disease and the hereditary form is even rarer but I know one family with 4 cases in 2 generations.
Doctors struggle with these diseases even those who specialize in them.  I got to know a world famous clinical researcher and he was very honest with me about what is known and what is not.  In the next 10-20 years much more will be known and there will be direct treatments and even cures but not now.  They are still trying to understand the diseases.
Mixed connective tissue disease (systemic lupus, scleroderma, polymyositis), Raynauds phenomena, Hypertension, Barrett's esophagus.
Meds: prednisone 5mg, 50mg imuran, Lotrel 40/5mg, maxide 37.5/25mg, folic acid, potassium, aciphex 20mg, multi vitamins.
Maintain your optimism and you can beat the odds.
"Although the world is full of suffering, it is also full of the overcoming of it."  Helen Keller

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