Julia Hill - Good Energy/Thoughts/Prayers Needed

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Lynnwood
Forum Moderator


Date Joined May 2005
Total Posts : 7019
   Posted 8/14/2008 11:28 AM (GMT -7)   
I just heard our member & friend Julia Hill is having a very bad time of things right now. I don't feel comfortable sharing much, as I don't have her permission, but...

Julia's husband is fighting for life -- Julia's Lupus and her Crohns are both in huge flares. (She usually posts in Crohns.)

Please do what you can within the tenants of your own personal spiritual belief.

Thanks,

Lynnwood, Co-Moderator: Lupus Forum
SLE(’00), Sjogren's Syndrome, Raynaud's Syndrome, SAD, Depression, Herpes Simplex 1
Piroxicam, Plaquenil, Prednisone(was 15mg, now 8mg), Cellcept, Xanax, Trazodone, Boniva(3mth shot), Wellbrutrin SR, Valtrex
Links: DIAGNOSING LUPUS (4 of 11), LUPUS INFORMATION, LUPUS RESOURCES, Donate to HealingWell, Drug Interactions

Post Edited (Lynnwood) : 8/14/2008 1:35:07 PM (GMT-6)


Ginny
Veteran Member


Date Joined Feb 2003
Total Posts : 5514
   Posted 8/14/2008 12:36 PM (GMT -7)   
Prayers are coming Julia.  Thanks for letting us know Lynnwood,
 
Ginny
I can do anything through Jesus Christ who strengthens me. I have learned in whatever state I am in,to be content. Phillipians 4:11-13

34 years old. Diagnosed with lupus in 2000. Fibromyalgia, anti-phospholipid syndrome(APS)(stroke),Sjogren's, Raynaud's, seizure disorder-(miraclulously disappeared!), Libman Sach's Endocarditis, vasculitis, sacroiliitis, arthritis (neck) . Prednisone, Imuran, Coumadin, Clobazam, Amitriptyline, didrocal, Cozaar, calcium, Cykolokapron, multi-vitamin, vitamin D, Magnesium, vitamin B6, Acidophilus


AlwaysRosie
Veteran Member


Date Joined Jan 2005
Total Posts : 8616
   Posted 8/14/2008 12:48 PM (GMT -7)   
((((((((((((( Julia & Hubby ))))))))

Hugs, prayers and . . .

Blessings!

In His Grip

AlwaysRosie           "We can't control the waves, but we can learn how to surf!!"

Psalms 139

Co-Moderator - Lupus Forum

UCTD, Inflammatory Arthritis, Diverticulosis, (recent dx - Sjogrens, Crohn’s 4/08)

Clickable Links:  Lupus Resources    Lupous.Org   Lupus Criteria (4 of 11)   Lupus Chapter Locator


MJLD
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Date Joined Jul 2007
Total Posts : 1048
   Posted 8/14/2008 1:43 PM (GMT -7)   
Will be praying for them. How sad. Judy

jhmom
Veteran Member


Date Joined Oct 2004
Total Posts : 2244
   Posted 8/14/2008 2:44 PM (GMT -7)   
My prayers are with Julia and her husband.
Stacie

Trust in the Lord with all thine heart, and lean not unto thine own understanding ~ Proverbs 3:5 ~

DX: Hashimoto's, Celiac Disease, Raynaud's, Lupus and Sjogrens
RX: Imuran, Plaquenil, Methotrexate, Flexeril, Piroxicam, Levoxyl, Folic Acid, Folgard OS (B12), Davocet (as needed) and magic mouthwash (for mouth sores)


auntkay
Veteran Member


Date Joined Apr 2004
Total Posts : 1199
   Posted 8/14/2008 4:09 PM (GMT -7)   
Julia you hubby and sons are in my prayers.

Audrey Ann
Veteran Member


Date Joined Jul 2005
Total Posts : 815
   Posted 8/14/2008 7:20 PM (GMT -7)   
Thanks for sharing, Lynnwood! Prayers are on the way for Julia, her hubby, and her sons!
Prayers,
Audrey Ann
 
Lupus, RA, and (Maybe) Fibromyalgia and LOTS of Medications!
 


 


okie
Veteran Member


Date Joined Dec 2006
Total Posts : 2818
   Posted 8/15/2008 6:20 AM (GMT -7)   
I hope you have some good news to share with us about Julie and family. Thanks for letting us know so we can send prayers and powerful thoughts their way.
hugs
carol
 
Possible scleroderma.  stage 4 COPD,  Osteoporosis,osteoarthritis
Prednisone,plaquanil400mg,azythromyacin,vicodin 4x5mg,Evista60mg, Effexor 150mg,Xanax 1.0 x3,Singular,nitro spray, spirivia,aciphex,lasix,inderal,pot.chlor.,B12 
I will never leave you nor forsake you!
 
 
 


PattyLatty
Veteran Member


Date Joined Mar 2006
Total Posts : 2570
   Posted 8/15/2008 7:41 AM (GMT -7)   
Lynnwood, I hope our prayers will be answered and that they can find some solace in their spiritual beliefs. My heart goes out to them. Many prayers will go up especially for them.

Pat
Lupus, osteoarthritis, fibro, renauds, restless leg, hiatal hernia, double vision, migraines, costocondritis.
cellcept, neurontin, prednisone, plaquenil, synthroid, triamterene, tramadol, actonel, tri-est, imitrex, cymbalta, tricor, acifex, multivitamin, calcium w vit D, fish oil, aspirin


Barbara Lee
Veteran Member


Date Joined Sep 2003
Total Posts : 2889
   Posted 8/15/2008 9:11 AM (GMT -7)   
Hi Everyone:

I just spoke with Julia on the phone and she gave me permission to tell whats happening. Her husband Steve is a truck driver of an 18 wheeler. On the night of the 7th of August, two boys in a car ran a stop light and plowed into Steve's rig. The boys were killed instantly, Steve was air lifted to the trauma center.

Steve has a broken neck, collapsed lung, pneumonia from the vent, and two brain bleeds. Steve has been in a coma since the 7th. Julia and her two kids, her daughter and son are taking turns at being by Steve's beside. Julia said that Steve has been moving his arms and legs. That they have been tube feeding him and he had a small bowel movement. Yesterday, Steve opened one eye, he did it on his own, and they couldn't get him to open the eye upon command. However, it's still a positive sign that he's opened one eye. Julia did say that he had a tough night though, he's got a gauge in his brain that tells how much pressure he has on the brain. They were having a hard time getting his pressures in the safe zone. The doctors won't give any predictions as to how Steve will do. It's just a matter of waiting and seeing what happens.

Julia is totally worn out. Her lupus and crohns is flaring up and she's not getting to much sleep. She increased the amount of prednisone she's taking and hoping that holds her from having a raging flare. She said that she appreciates all the thoughts, prayers, and energy. I'll be talking to Julia every other day and I'll give updates. So please keep Steve and Julia and the kids in your prayers. They really need them.

Take care and thanks again,
Barbara
dx fibro, SLE, glaucoma, cateracts, bells palsy, depression, migraine headaches, gastreopaersis, chronic anemia, RA,MDS (Blood Cancer). Tons of meds.


rere7896
New Member


Date Joined Jun 2008
Total Posts : 14
   Posted 8/15/2008 9:49 AM (GMT -7)   
Oh my God, I will keep her family in my prayers and light a candle for her. That is so sad but with everyone on this site praying for them and then making a prayer circle -- I'm sure God will get them through this somehow. I can't imagine going through something like that but prayers are amazing and very powerful. Hang in there....... there is so much love on this site that I'm sure a miracle will happen......

Good luck to everyone and may God Bless you everyday.....

I'm currently taking atenolol, verapamil, ovcon (no cycle since 2000), prednisone, neurontin, cytoxan, folbic, diludad, loratab, demerol,(depending on severity of pain), promethazine, singulair, lasix, amitriptyline, baby aspirin, patanol --- I think that's it...

I have SLE, SVT, MVP, Sjogrens, Fibromyalgia, Neuropathy, migraines, Pleurisy, asthma, endometrosis, Reynauds -- think that's it as well....


Lynnwood
Forum Moderator


Date Joined May 2005
Total Posts : 7019
   Posted 8/15/2008 10:15 AM (GMT -7)   
Thanks Barb, glad you got permission to post more details. :-)

Julia, I hope things calm down for you soon -- both with your own illnesses and definitely with your husbands condition.

Hang in there,

Lynnwood, Co-Moderator: Lupus Forum
SLE(’00), Sjogren's Syndrome, Raynaud's Syndrome, SAD, Depression, Herpes Simplex 1
Piroxicam, Plaquenil, Prednisone(was 15mg, now 8mg), Cellcept, Xanax, Trazodone, Boniva(3mth shot), Wellbrutrin SR, Valtrex
Links: DIAGNOSING LUPUS (4 of 11), LUPUS INFORMATION, LUPUS RESOURCES, Donate to HealingWell, Drug Interactions


mom46
Veteran Member


Date Joined Dec 2004
Total Posts : 8198
   Posted 8/15/2008 2:05 PM (GMT -7)   
Tks Lynn and Barb,
   Julia, I'm so sorry to hear of this news....(((Hugs))). My heart goes out to you and your family. You will all be in my thoughts and prayers.
                                                                 Love, Babs
 
Dx: Lupus,RLS,RA,Asthma,Fibro,Sjogren's,Raynaud's,Divertic, Stroke,Atherosclerosis,Seizures,Neuropathy,CAD
Meds:arava,prednisone,plavix,aspirin,protonix,,zanaflex,xanax,
mirapex,advair,foxamax,Vytorin,folicacid,lunesta,Tramadol
 
JOB 5:18 For he wounds, but he also binds up; he injures, but his hands also heal.


Lindaloo
Veteran Member


Date Joined Sep 2006
Total Posts : 1713
   Posted 8/17/2008 9:40 PM (GMT -7)   
I am praying for you and the family and your husband. Don't give up ever. I have seen people bounce back and make a full recovery. God's blessings.

Lindaloo
Moderator Chronic Pain
 
Believe in yourself.  Be kind to fellow humans and animals.  Take time to smell the flowers and the coffee.
And by all means, when you are down, ask me for help.  I will be there.
 
Linda


Lynnwood
Forum Moderator


Date Joined May 2005
Total Posts : 7019
   Posted 8/18/2008 6:38 PM (GMT -7)   
There is also a thread on this in the Crohns forum where Julia has posted an update

www.healingwell.com/community/default.aspx?f=17&m=1213261&p=1

Lynnwood, Co-Moderator: Lupus Forum
SLE(’00), Sjogren's Syndrome, Raynaud's Syndrome, SAD, Depression, Herpes Simplex 1
Piroxicam, Plaquenil, Prednisone(was 15mg, now 8mg), Cellcept, Xanax, Trazodone, Boniva(3mth shot), Wellbrutrin SR, Valtrex
Links: DIAGNOSING LUPUS (4 of 11), LUPUS INFORMATION, LUPUS RESOURCES, Donate to HealingWell, Drug Interactions


Ginny
Veteran Member


Date Joined Feb 2003
Total Posts : 5514
   Posted 8/18/2008 6:45 PM (GMT -7)   
Oh no..... That is tragic.  We're praying for you Julia and for Steve.  I pray that the improvements in Steve continue to come.  Julia, sweetie, take good care of yourself. 
 
Blessings,
Ginny
I can do anything through Jesus Christ who strengthens me. I have learned in whatever state I am in,to be content. Phillipians 4:11-13

34 years old. Diagnosed with lupus in 2000. Fibromyalgia, anti-phospholipid syndrome(APS)(stroke),Sjogren's, Raynaud's, seizure disorder-(miraclulously disappeared!), Libman Sach's Endocarditis, vasculitis, sacroiliitis, arthritis (neck) . Prednisone, Imuran, Coumadin, Clobazam, Amitriptyline, didrocal, Cozaar, calcium, Cykolokapron, multi-vitamin, vitamin D, Magnesium, vitamin B6, Acidophilus


Barbara Lee
Veteran Member


Date Joined Sep 2003
Total Posts : 2889
   Posted 8/18/2008 8:56 PM (GMT -7)   
Evening All:

I just talked with Julia and she said that Steve is holding his own. They've decided to start to try to wake Steve up. He's been pretty sedated and they figure now is a good time to let him awaken. He's still not responding to commands but they said since he's so sedated that could be affecting things. Last night they took out the pressure/drain tube out of his brain. The also removed one of the IV lines that was being used to cool Steve, they are now giving him Tylenol. His chest x-ray looked better, he still has 5 days of antibiotics to take but it looks like the pneumonia is clearing up. Steve is still being tube fed and they had to give him something, but he managed to have another small BM yesterday. A really good sign is that he's making plenty of urine. Overall, the report was good on him. Julia is taking it one day at a time.

Julia sounded very tired, which I'm sure she is. Because of her Crohn's disease it really affects her in the morning so she is kinda tied to the toliet. Once her medications kick in she's able to go to the hospital. Julia and her two kids, have breakfast at home in the morning, and eat dinner at home. Then Julia returns to the hospital for the remainder of the evening. They have shift change between 7pm and 8:30pm and no family members are allowed in the ICU during that time anyway. So they come home and have dinner.

The kids are handling things as well as can be expected. Steve's company is handling the financial paperwork so that Julia will continue to receive money. Julia is having some issues with her prednisone, she upped it to 20mg daily but she's not feeling any better. She was wondering what she should do since her adrenal glands are working so poorly. She wanted me to say that she appreciates and the prayers and concern for her and Steve. She said to tell you she's taking it one day at a time, and she's still has plenty of hope that things will turn out well.

Julia, you're in my prayers and thoughts as always. Keep hanging in there my friend, we all love you here and we are all pulling for you and Steve. Try to get some rest and remember that you need your rest too. If you're all worn out, you won't be much help to Steve when he wakes up. I noticed in the post on the Crohn's forum that someone mentioned that you should let the ICU staff and the doctors caring for Steve, know that you have crohns and lupus. I throughly agree with them, they could keep and extra eye on you too. I'll call you again on Wednesday, get some rest my friend.

Love you,
Barb
dx fibro, SLE, glaucoma, cateracts, bells palsy, depression, migraine headaches, gastreopaersis, chronic anemia, RA,MDS (Blood Cancer). Tons of meds.


Julia Hill
Veteran Member


Date Joined Mar 2008
Total Posts : 543
   Posted 8/22/2008 9:28 PM (GMT -7)   
Hi Everyone,

I want to thank you all for your prayers and good thoughts, I really do appreciate it. It is nice to know that I have such a wonderful support team that truly understands. My husband has started to periodically open his eyes, blink and yawn. He still isn't responding to commands, but he is breathing better on his own with the trec. in his neck on 30% oxygen. We were at 50%, so this is an improvement. They say that when he is breathing on his own they will move him to the Neuro unit even if he isn't awake yet. I find that scary since he still needs suctioning done from the breathing tube. The nurse ratio in the acute care section is 1 to 3 and in the other section it is 1 to 8 patients. I could handle the 1-3 but not the 1-8 at this point. My crohn's is settling down some with the prednisone, I only hope my lupus doesn't flare. I am tired, but I am trying to get more rest. I will update again soon. Take care, and (((hugs))) to you all.

Love Julia

mom46
Veteran Member


Date Joined Dec 2004
Total Posts : 8198
   Posted 8/23/2008 9:38 AM (GMT -7)   
Hi Julia,
   (((Hugs))) to you and your family. I pray Steve continues to improve with each passing day and that you get the relief from the pred you need. Hang in there sweetie and try to rest as much as you can. Your whole family are in my thoughts and prayers.
                                                                     Love, Babs
 
Dx: Lupus,RLS,RA,Asthma,Fibro,Sjogren's,Raynaud's,Divertic, Stroke,Atherosclerosis,Seizures,Neuropathy,CAD
Meds:arava,prednisone,plavix,aspirin,protonix,,zanaflex,xanax,
mirapex,advair,foxamax,Vytorin,folicacid,lunesta,Tramadol
 
JOB 5:18 For he wounds, but he also binds up; he injures, but his hands also heal.


Serina
Regular Member


Date Joined Aug 2008
Total Posts : 431
   Posted 8/23/2008 6:07 PM (GMT -7)   
Hey Julia,
 
I have not been here that long, but wante you to know that my prayers are with you and your family.
 
Hester
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