Post Edited (ojibway) : 8/18/2008 11:20:46 AM (GMT-6)
You will be missed Ojibwa man. thank you again for sharing all that you have with us.
I have the diarrhea to. not so much the vomiting though. I was so embarrassed one night, because it was the third day of the diarrhea, and I didn't even remember getting up. so exhausted and weak from the diarrhea I guess. I had to scrub the bathroom before anyone else got up the next morning. feces everywhere.
Take care of yourself, and I look forward to hearing from you again.
The following was found on the admin advice to us. I found no way there to thank the person who wrote this............so thought I would do it here. This making a list of my symptoms on a daily basis is the best advice I have recieved in a long time. I have it by my med, and update it as things change. what started out as a sore in my mouth, seems to have followed a path to my neck and shoulder and arm. Not sure I would ever have remembered this had someone not advised me to make this list to take to the doctor. 2 copies. excellent advice. Thank you so much for providing it.
* Keep a log of your symptoms and doctor visits including tests ordered, prescriptions ordered including dosage and doc' responses to your questions and his/her instructions to you* Take a symptom report (list) and questions with you to all dr. visits
In His Grip
AlwaysRosie "We can't control the waves, but we can learn how to surf!!"
Co-Moderator - Lupus Forum
UCTD, Inflammatory Arthritis, Diverticulosis, (recent dx - Sjogrens, Crohn’s 4/08)
Clickable Links: Lupus Resources Lupous.Org Lupus Criteria (4 of 11) Lupus Chapter Locator
Diagnostic Limbo: Seeing Rheumy since November 07, Taking plaquenil, Cymbalta, Flexeril,Claritin, Zantac,Ambien, vitamin D, Darvocet.
Hey David and others,
I did a google search for nematodes and found one website where it says nematodes are not dangerous to humans, and is sold to people to get rid of insect problems in one's lawn.
Another website said that nematodes are dangerous to people, and that we become infected when we swallow dirt, or the debri of dead animals, or raw fish, who were infected with nematodes before they died. this link tended to indicate that hepatitus c is caused by nematodes. but this site did not indicate that we could see them in our blood stream, but rather that they are found in the liver where they can become dangerous.
Here is a link about filariasis from the Center for Disease Control.
These are the worms I am talking about. Particular the subcutaneous nematodes, Loa Loa and Mansonella Streptocerca, these are causing all of our skin problems, as well as eye problems. If you do not have problems with your legs, you probably do not have the lymphatic worms. If you are having abdominal problems such as Chrohn's, Collitis, you may have Mansonella Perstans or Ozzardi. You are right when you say these worms are problems of developing or underdeveloped nations, as such, the nature of the worms is poorly understood. These countries simply do not have the resources to do the necessary research. A very striking fact is that in Africa were these worm are prevalent, autoimmune disease is not. They have the worms, we have autoimmune disease, or do we?
Post Edited (ojibway) : 8/20/2008 4:03:01 PM (GMT-6)
Lynnwood, Co-Moderator: Lupus ForumSLE(’00), Sjogren's Syndrome, Raynaud's Syndrome, SAD, Depression, Herpes Simplex 1Piroxicam, Plaquenil, Prednisone(was 15mg, now 8mg), Cellcept, Xanax, Trazodone, Boniva(3mth shot), Wellbrutrin SR, ValtrexLinks: DIAGNOSING LUPUS (4 of 11), LUPUS INFORMATION, LUPUS RESOURCES, Donate to HealingWell, Drug Interactions
Hey Lynnwood and Jennifer,
thank you for your input. stayed up all night last night because yesterday was such a good day, but I had been out in the Sun three times, and was afraid I would wake up sick today. Plaquinil must be working for me, and I am so glad. One day at a time I am going to try to face the facts of this disease, and do the best I can each day. Today is still a good day. minimal pain, relatively speaking. No weakness, or dizziness, or nausea. Tomorrow is not here yet, so not going to worry about it. Yesteray is a memory, tomorrow is a dream, today is all I have. and if I can keep these thoughts in my head, bad days will be expected and planned for, but I won't have to make my good days bad too, simply by worrying about the bad days yet to come. this is what I did last night. staying up all night to try to second guess Lupus. I let fear overrun my good judgement, and stayed up all night to prolong the good day.
I can't predict Lupus and what it will do to me and when. It is a power greater than I am. So I have decided to do the best that I can with the good days that I have, and to do my best in bad days too. Sometimes the house will not be as clean as I would like for it to be. Some days I will not be able to ride six or seven blocks to my Aunt Loucindy's house to see about her. but some days I will be able to do this. and the days I can't do it, I will lay on the couch or the bed, and watch forever tv.;)
Without support recieved on this list from all of you, I might never have arrived at this conclusion. It helps so much to be with others who have the same problem and symptoms that I have.