big appointment with rheumy tomorrow - could use some prayers

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Ginny
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Date Joined Feb 2003
Total Posts : 5514
   Posted 8/19/2008 5:37 PM (GMT -7)   
Hi everyone,
 
After waiting a full month to see my rheumy about all this arthritis/lupus/fibro/who knows what the heck this is, I have my appoiintment tomorrow afternoon.  I've never been so relieved and eager to see a doctor in my life.
 
I've been posting a lot on the arthritis forum this past month to 6 weeks. So much of what I'm dealing with is pointing towards arthritis, or even RA.  My toes have started to deform on one foot.  This new symptom showed up last weekend. My joints are red, swollen and very painful.  The foot issue is a continuing nightmare.  The pain hasn't let up for 3 months now.  I'm just exhausted by all this.  My neck and back are really bad too.
 
I could really use some prayers.  Not necessarily for healing, but for answers and a strong progressive course of action to find out what I'm dealing with.
 
I'll keep you posted as to what I learn tomorrow.  Thanks everyone,
 
Ginny
I can do anything through Jesus Christ who strengthens me. I have learned in whatever state I am in,to be content. Phillipians 4:11-13

34 years old. Diagnosed with lupus in 2000. Fibromyalgia, anti-phospholipid syndrome(APS)(stroke),Sjogren's, Raynaud's, seizure disorder-(miraclulously disappeared!), Libman Sach's Endocarditis, vasculitis, sacroiliitis, arthritis (neck) . Prednisone, Imuran, Coumadin, Clobazam, Amitriptyline, didrocal, Cozaar, calcium, Cykolokapron, multi-vitamin, vitamin D, Magnesium, vitamin B6, Acidophilus


AlwaysRosie
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Date Joined Jan 2005
Total Posts : 8616
   Posted 8/19/2008 6:24 PM (GMT -7)   
Hey Ginny,

((((((((( Ginny ))))))))) You got it!! Oh, you sound so miserable. Scary waiting for docs to figure things out, for sure.

What has happened to your busy photo season? Have you had to refer your clients to someone else??

Hang in there Ginny . . . I'll be watching for your updates.

Blessings!

In His Grip

AlwaysRosie           "We can't control the waves, but we can learn how to surf!!"

Psalms 139

Co-Moderator - Lupus Forum

UCTD, Inflammatory Arthritis, Diverticulosis, (recent dx - Sjogrens, Crohn’s 4/08)

Clickable Links:  Lupus Resources    Lupous.Org   Lupus Criteria (4 of 11)   Lupus Chapter Locator


MJLD
Veteran Member


Date Joined Jul 2007
Total Posts : 1048
   Posted 8/19/2008 6:48 PM (GMT -7)   
((((Gin)))))))) I am so thankful your appointment is finally here! I know you'll be so relieved. Prayers are coming your way! Love ya, Judy

Ginny
Veteran Member


Date Joined Feb 2003
Total Posts : 5514
   Posted 8/19/2008 7:22 PM (GMT -7)   
Thank you Rosie and Judy (((hugs)))
 
Rosie, I'm still working.... Yeah.  It's REALLY difficult.  I do have an assistant to carry all my extra gear, but let me tell ya, photographing my style of weddings is extremely demanding on the body.  I'm a candid/journalistic photographer.  So lots of fast moving, crowching down, running ahead of people, in the heat... It was 95 degrees last Saturday.  No wonder my feet and back and neck are so bad.  I have 8 more to do this season.  All of them are 12 hour days except for 2.  I honestly don't know how I'm going to do it.  I do have a friend who can take 4 of my weddings if I'm desperate.  Thankfully, she isn't booked.  BUT, that means I lose in upwards of $12,000 of income.  I can't afford to lose them.  So I'm going to "buck up" and get them done.
 
2009 is totally different.  I"m only shooting one or two weddings each month instead of 4 or 5.  I have to.  I can't do this anymore!  At least I'll have a life during the summer then!  I can go on a vacation if I want!  WOO HOO!!  I've been doing this for a decade now. It's time for a break...
 
Love you guys!
Ginny
 
 
 
 
I can do anything through Jesus Christ who strengthens me. I have learned in whatever state I am in,to be content. Phillipians 4:11-13

34 years old. Diagnosed with lupus in 2000. Fibromyalgia, anti-phospholipid syndrome(APS)(stroke),Sjogren's, Raynaud's, seizure disorder-(miraclulously disappeared!), Libman Sach's Endocarditis, vasculitis, sacroiliitis, arthritis (neck) . Prednisone, Imuran, Coumadin, Clobazam, Amitriptyline, didrocal, Cozaar, calcium, Cykolokapron, multi-vitamin, vitamin D, Magnesium, vitamin B6, Acidophilus


Lynnwood
Forum Moderator


Date Joined May 2005
Total Posts : 7023
   Posted 8/19/2008 8:52 PM (GMT -7)   
Hope the appointment goes well and that they are able to find some answers (and solutions) for you.

Lynnwood, Co-Moderator: Lupus Forum
SLE(’00), Sjogren's Syndrome, Raynaud's Syndrome, SAD, Depression, Herpes Simplex 1
Piroxicam, Plaquenil, Prednisone(was 15mg, now 8mg), Cellcept, Xanax, Trazodone, Boniva(3mth shot), Wellbrutrin SR, Valtrex
Links: DIAGNOSING LUPUS (4 of 11), LUPUS INFORMATION, LUPUS RESOURCES, Donate to HealingWell, Drug Interactions


MJLD
Veteran Member


Date Joined Jul 2007
Total Posts : 1048
   Posted 8/20/2008 7:13 AM (GMT -7)   
Ginny,
My sister has shot some weddings and it really is hard work. People don't realize how physical it really is. Take care of yourself girl! Judy

AlwaysRosie
Veteran Member


Date Joined Jan 2005
Total Posts : 8616
   Posted 8/20/2008 6:41 PM (GMT -7)   
Ginny ???? Watching for an update . . . thinking of you sis!!

Ginny
Veteran Member


Date Joined Feb 2003
Total Posts : 5514
   Posted 8/21/2008 6:49 AM (GMT -7)   
Hi Rosie,
 
I started a new thread for the update. It's about halfway down the page. Thanks for thinking of me!!
 
Ginny
I can do anything through Jesus Christ who strengthens me. I have learned in whatever state I am in,to be content. Phillipians 4:11-13

34 years old. Diagnosed with lupus in 2000. Fibromyalgia, anti-phospholipid syndrome(APS)(stroke),Sjogren's, Raynaud's, seizure disorder-(miraclulously disappeared!), Libman Sach's Endocarditis, vasculitis, sacroiliitis, arthritis (neck) . Prednisone, Imuran, Coumadin, Clobazam, Amitriptyline, didrocal, Cozaar, calcium, Cykolokapron, multi-vitamin, vitamin D, Magnesium, vitamin B6, Acidophilus

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