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smokeyswife
Regular Member


Date Joined Oct 2006
Total Posts : 281
   Posted 8/20/2008 4:07 AM (GMT -7)   
I know that Lupus and can cause hair loss, I am just wondering if anyone else here as hair loss all over their body, not just your head? I can go without shaving my legs for almost a month and the same with my underarms. My girls get ticked at me in a funny way because I don't have to shave and they do,lol. I'm just wondering if it is part of Lupus that is causing this?

Connie
 
 
 
 
diagnosed with RSD in March of /03, diagnosed with Lupus in Sept./06.Thyroid Disease ,RA
Taking Methotrexate, Plaquenell, Folic Acid, Synthroid,Prednisone, Pantoloc, Singulair, Tramadol, OxyCodeine and extra Strength tylenol when needed,and Zytram.


Butterflake
Forum Moderator


Date Joined Jun 2006
Total Posts : 1547
   Posted 8/20/2008 5:09 AM (GMT -7)   
Girlfriend, I can't remember the last time I had to shave.  I have a Brazilian wax without the pain (very sexy except for the few gray wisps). There's more hair on my face than on my legs!  Oh well, I try to look at it as an advantage to having Lupus. Love, Butterflake

Dx: SLE ('05), depression, diabetes, fibromyalgia, gerd, sleep apnea, hypertension, IBS Tx: CellCept, plaquenil, prednisone, lisinopril, actos, lipitor, nexeum, prozac, seroquel, celebrex, actonel
prn: arthritis tylenol, neurontin, promethazine, ambien.  multi vit, C, flaxseed oil, acupuncture
Donna
 


mygrljes
Regular Member


Date Joined Mar 2008
Total Posts : 110
   Posted 8/20/2008 5:26 AM (GMT -7)   
smokeyswife,

I see that you have thyroid disease. When my thyroid is out of whack I will go without shaving until it gets back to normal. Maybe your synthroid needs to be adjusted? It is a great thing to not have to shave, isn't it? I still only shave my armpits once a month. The hair on my legs grows back in much slower now, too, so I only shave them twice a week.
dix: lupus sle Jan. '99, hypo-thyroid Mar. '06
rx: pred. 5mg/day, plaquenil 200mg/day, levothyroxine .112mg/day, premarin .45mg/day, methotrexate 7.5mg/week, folic acid 1mg/day
 
 
Also a wife and mother of three.


MJLD
Veteran Member


Date Joined Jul 2007
Total Posts : 1048
   Posted 8/20/2008 7:09 AM (GMT -7)   
I rarely have to shave my legs. I really thought it was because they have about 50 galllons of water each. (give or take a gallon) They stay so swollen and the circulation is terrible. As Butterflake said, There is def. more hair on my chin than my legs! I hate it!!!!! I'd rather shave my legs twice a day than have hair on my face. Oh well! Whatcha gonna do? Judy

lucysgd
Veteran Member


Date Joined Jun 2008
Total Posts : 669
   Posted 8/20/2008 9:50 AM (GMT -7)   
Oh wow.....another thing I never thought had any connection to the lupus thing. I knew about the thinning hair on the head - but never made the connection to the fact that I never have to shave my legs (tho I do catch sight of a few "wild" ones in the sunlight occasionally) and only rarely under my arms. Can this really be a possible thyroid problem as well? I have a subnormal body temp....waking up at 96 or slightly above...and then stay in 97's for the most part. When i approach a nl temp I feel like I have a fever. Some say that is indicative of thyroid and others (usually MDs), pay no attention. I have had typical bloodwork (TSH and T4 - no antibodies, though) and it appears normal. Anyone? Lucy
diagnoses:  mono 1972; postviral CFS 1997; fibro 1998; CEBV 2005; UCTD (dx limbo) 2007
meds:  occasional low dose xanax for sleep, artificial tears w/ ointment at night, ibuprophin (none of which manages the problems very well!)
 
We cannot avoid the birds of sadness flying over our heads, but we need not let them make nests in our hair. 
       ~~ Chinese saying as quoted by Helen Nearing


Lonna
Regular Member


Date Joined Jun 2006
Total Posts : 77
   Posted 8/20/2008 2:46 PM (GMT -7)   
Hi Connie, I have permanent hair loss due to lupus. Mostly on the top of my head but it's thin on the sides and back too. I wear  human hair pieces that look very nice but are a pain to keep up. I don't have much hair on legs or underarms now either but I am 57 and past menopause so that could be the reason. Hope you have a good day! deb

DX: lupus, headaches, hair loss, high blood pressure, allergies, chemical sensitivities, photo sensitivity,  muscle spasms, neuropathy in hands and feet
 
Meds: cellcept,2000 mg/day prednisone 7mg, cozaar, effexor, trazodone, lunesta, vicodin, imitrex nasal for migraines, nasonex and astelin for allergies.


smokeyswife
Regular Member


Date Joined Oct 2006
Total Posts : 281
   Posted 8/20/2008 4:31 PM (GMT -7)   
HI everyone, thanks for the replies. I am glad to know I am not the only one who doesn't have to shave very often. My thryoids had been out of whack for a couple of months but are back on track now. I haven't had to shave for a long long time. But then I have had thyroid disease for almost 18 years so it maybe that as well.
 
I do hate having to shave my top lip more then my legs and arm pits,lol. I am in menopause now because the Lupus has shut my ovaries down according to the specialist so maybe that is part of it too.
 
Hmm, lots of could be's, but whatever the reason, I am not going to complain at all, I'll just enjoy not having to shave.
 
Thanks again everyone,
 
Connie
 
 
 
 
diagnosed with RSD in March of /03, diagnosed with Lupus in Sept./06.Thyroid Disease ,RA
Taking Methotrexate, Plaquenell, Folic Acid, Synthroid,Prednisone, Pantoloc, Singulair, Tramadol, OxyCodeine and extra Strength tylenol when needed,and Zytram.


Lynnwood
Forum Moderator


Date Joined May 2005
Total Posts : 7017
   Posted 8/21/2008 9:11 AM (GMT -7)   
Only a mustache? I have both a mustache and a goatee! Fortunately I am blond, so most folks don't notice, and I'm quick with the tweezers! smhair

smokeyswife
Regular Member


Date Joined Oct 2006
Total Posts : 281
   Posted 8/21/2008 9:49 AM (GMT -7)   

LOL @ the moustache and goatee. I forgot about the darn old dreaded chin hairs,lol.I have dark hair but the hair on my face and arms is white, so I am lucky too,lol.

 

Connie


 
 
 
 
diagnosed with RSD in March of /03, diagnosed with Lupus in Sept./06.Thyroid Disease ,RA
Taking Methotrexate, Plaquenell, Folic Acid, Synthroid,Prednisone, Pantoloc, Singulair, Tramadol, OxyCodeine and extra Strength tylenol when needed,and Zytram.


sunshinesyl
Regular Member


Date Joined Apr 2006
Total Posts : 169
   Posted 8/21/2008 2:30 PM (GMT -7)   
Good topic--kind of funny too...I just turned 40 last week, and gues what I thought I seen today, of all the places to find one, a gray hair just stood out as I looked down, I thought OMG I must be imagening this, so I cut it out and it was very light, I thought I will not let HB see this one, he will probably laugh all night, I will have to do something, dye it, (no), shave it (no), I've never had the waxing down there (not sure of the name). I keep thinking what a terrible 40th B'day present this was for me, aagh, hope fully I don't get anymore.
Hb is 4years young than me and is totally blond, I won't be able to his grays for awhile and I won't tell him of my new grays down there.....lol.
Syl


smokeyswife
Regular Member


Date Joined Oct 2006
Total Posts : 281
   Posted 8/21/2008 6:08 PM (GMT -7)   
Lol, Sly it is funny and kinda embaressing too. What made me ask about this topic is that I am losing my hair down there,lol. I was kinda worried about it but then figured that it must be normal if I am losing it everywhere else.  I have had gray hairs on my head for a lot of years, since I was about 25 and I will be 40 in March.
 
 
 
 
 
 
diagnosed with RSD in March of /03, diagnosed with Lupus in Sept./06.Thyroid Disease ,RA
Taking Methotrexate, Plaquenell, Folic Acid, Synthroid,Prednisone, Pantoloc, Singulair, Tramadol, OxyCodeine and extra Strength tylenol when needed,and Zytram.


sunshinesyl
Regular Member


Date Joined Apr 2006
Total Posts : 169
   Posted 8/21/2008 9:19 PM (GMT -7)   
I was unsure if I should talk about this new B'Day gift I just rec'd, too bad, I can't return it, lol.

Regarding hair loss, this month has been the worst. I find alot of hair on my clothes, everywhere.You know what is so funny....my poor HB has a major hair Phobia, he gets paniky if he see's a hair on him, it gross's him out, especially dog/cat hair. My hair loss has even landed on his food that I have served him, he will just pick it out and continue eating (poor thing), he say's it's yours so it's ok.
I would get grossed out!! Now I must pull all my hair up when I cook.

I too have hardly any hair on legs, only have like a total of 10 long hairs or so that may grow up to the size of a small tree, lol, I only shave legs like once ev. 2mos. My arm pits are a whole other story, they neeeed to be shaved ev. other day, or a small bush may grow there. I do get the upper lip hair and use hair removal, the hair is dark there so I must do it, or else kids may start laughing at me. I will not shave, won't that just make it come out faster??
Syl


smokeyswife
Regular Member


Date Joined Oct 2006
Total Posts : 281
   Posted 8/22/2008 3:23 AM (GMT -7)   
I know, a touchy subject, but I figure we are all pretty much going through the same thing here and it's part of our life. I hope I have offended noone by this topic.
 
It's weird to me why I would have no hair on my legs or armpits to shave because of a disease. I shave my upper lip every couple of weeks with a small shaver made just for women, yes it comes in quicker but I am not brave enough to try waxing. I hurt enough as it is with the RSD and Lupus without inflicting any more pain on myself. Although I guess if I shaved before I went and had the lip waxing done it wouldn't probably hurt as bad as I think it might.
 
Would it?? Lol, till I get brave I'll keep shaving and keep enjoying the time that I can go without shaving my legs and armpits.
 
Connie
 
 
 
 
diagnosed with RSD in March of /03, diagnosed with Lupus in Sept./06.Thyroid Disease ,RA
Taking Methotrexate, Plaquenell, Folic Acid, Synthroid,Prednisone, Pantoloc, Singulair, Tramadol, OxyCodeine and extra Strength tylenol when needed,and Zytram.


MJLD
Veteran Member


Date Joined Jul 2007
Total Posts : 1048
   Posted 8/22/2008 5:21 PM (GMT -7)   
Well, Ms. Blondie Lynnwood! ARen't you the lucky one? I have coal black, Choctaw Indian hair!!! (with a few white highlights) My unsightly hairs stick out like a sore thumb! I guess blondes really do have more fun! :) JUdy

Lynnwood
Forum Moderator


Date Joined May 2005
Total Posts : 7017
   Posted 8/22/2008 8:28 PM (GMT -7)   
Well, my head is not "blond" as in white blond or even yellow blond as when I was younger - it's well into the dishwater blond stage and halfway to grey blond....but all my body hair has always been very light colored -- which has been a really good thing as I had lots of it, but ppl didn't notice. Now it's a bit thinner overall, but with much more on the face....I don't understand how people can't see it, but thats what they all claim -- or is everyone in the world that polite? I find that hard to believe!

Anyway, the changes in hair for all of us can be quite distressing. My head hair thinned out significantly while I was on Cellcept, but fortunately has come back in quite a bit since I'm off that med.

Does the extra facial hair go away if/when you get off prednisone? Or are we all doomed as we age, regardless?

Sigh. I guess overall it's no worse than a man going bald....

Lynnwood, Co-Moderator: Lupus Forum
SLE(’00), Sjogren's Syndrome, Raynaud's Syndrome, SAD, Depression, Herpes Simplex 1
Piroxicam, Plaquenil, Prednisone(was 15mg, now 8mg), Cellcept, Xanax, Trazodone, Boniva(3mth shot), Wellbrutrin SR, Valtrex
Links: DIAGNOSING LUPUS (4 of 11), LUPUS INFORMATION, LUPUS RESOURCES, Donate to HealingWell, Drug Interactions

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