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okie
Veteran Member


Date Joined Dec 2006
Total Posts : 2818
   Posted 8/21/2008 7:40 AM (GMT -7)   
I've been sick in bed the past couple of days. The rain and fog is killing me. My joints all hurt my breathing is bad. I've barely been able to get out of bed.
Anyway, My brother and his wife are recovering addicts and they are really down on the meds I take. So since I've been in bed or course they  come to the conclusion that it must be because I'm taking a ton of drugs. shakehead
Since Ihave been here I have tried to help them out making meals around the house never letting any one go hungry. So since I didn't get up yesterday they made themself steaks and baked potatoes and who knows what else and didn't even save me a thing. I took all I had in me to  get up and throw in a micro wave meal. Today my brother told me that if he was sick that best thing to do it get up doing stuff and it would make me feel better! I can't take this stupidity any more. I got to get out of here. Even if it means a nursing home.
I'm just so angry!
carol
 
Possible scleroderma.  stage 4 COPD,  Osteoporosis,osteoarthritis
Prednisone,plaquanil400mg,azythromyacin,vicodin 4x5mg,Evista60mg, Effexor 150mg,Xanax 1.0 x3,Singular,nitro spray, spirivia,aciphex,lasix,inderal,pot.chlor.,B12 
I will never leave you nor forsake you!
 
 
 


Ginny
Veteran Member


Date Joined Feb 2003
Total Posts : 5514
   Posted 8/21/2008 2:06 PM (GMT -7)   
Oh Carol,
 
You're not in a good situation, sis.  I'm concerned for you.  I'd be very angry about that kind of treatment and comments too.  This isn't healthy.  Where can you go?  Any other family, or friends nearby?  I wish I could help you. cry
 
Please keep us posted on how you're doing, okay?  I hope the fog and rain lifts and you start feeling better.
 
Lots of love
Ginny
I can do anything through Jesus Christ who strengthens me. I have learned in whatever state I am in,to be content. Phillipians 4:11-13

34 years old. Diagnosed with lupus in 2000. Fibromyalgia, anti-phospholipid syndrome(APS)(stroke),Sjogren's, Raynaud's, seizure disorder-(miraclulously disappeared!), Libman Sach's Endocarditis, vasculitis, sacroiliitis, arthritis (neck) . Prednisone, Imuran, Coumadin, Clobazam, Amitriptyline, didrocal, Cozaar, calcium, Cykolokapron, multi-vitamin, vitamin D, Magnesium, vitamin B6, Acidophilus


PattyLatty
Veteran Member


Date Joined Mar 2006
Total Posts : 2570
   Posted 8/21/2008 3:26 PM (GMT -7)   
Carol, you don't need nor deserve to be around people who are so insensitive. I'm glad you're headed in the right direction and will be moving to Arizona as soon as you can. You're doing all the right things to help yourself Carol and I know that as soon as you get to Arizona you'll start feeling better. The weather will be so much better for your health and I think the atmosphere will be a big help too. Just be happy that you aren't like they are! I am! I don't blame you a bit for being angry and I'll bet you channel that anger into something positive, like getting out of there real soon!

Love ya,

Pat
Lupus, osteoarthritis, fibro, renauds, restless leg, hiatal hernia, double vision, migraines, costocondritis.
cellcept, neurontin, prednisone, plaquenil, synthroid, triamterene, tramadol, actonel, tri-est, imitrex, cymbalta, tricor, acifex, multivitamin, calcium w vit D, fish oil, aspirin


okie
Veteran Member


Date Joined Dec 2006
Total Posts : 2818
   Posted 8/21/2008 4:46 PM (GMT -7)   
Thanks Ginny and Patty, I appreciate the support. I spent an hour on the phone with Barb crying my eyes out.Thanks again Barb!
My case worker came over today and asked me how I was doing so I told her. All she could sugest at this point is to take my meds from my sister in law and have a nurse come once a week to put my meds in a case for me. Just to stop the fighting between us. 100.00 bucks to have some one fill my pills once a week. 400 a month to fill a pill box! I need a job like that. She also told me that she takes care of people who take twice as many pain pills that are only half as bad a shape as I am in so
it's rediculous to be treated like I am. Unfortunately I am stuck here until I can afford to move. I've got one more big bill to pay next month and then the rest is all easy ones. You're right patty. They give me means on wheels every day so other than cokes I'll live on that and pay my bills so I can gt out of here faster.
My case worker is very concerned about my health. I told her I was trying to get off the xanax and she told me not to even think about it.
anyway thanks for listening to my rant. and thanks for your support.
love ya
carol
 
Possible scleroderma.  stage 4 COPD,  Osteoporosis,osteoarthritis
Prednisone,plaquanil400mg,azythromyacin,vicodin 4x5mg,Evista60mg, Effexor 150mg,Xanax 1.0 x3,Singular,nitro spray, spirivia,aciphex,lasix,inderal,pot.chlor.,B12 
I will never leave you nor forsake you!
 
 
 


AlwaysRosie
Veteran Member


Date Joined Jan 2005
Total Posts : 8616
   Posted 8/21/2008 4:58 PM (GMT -7)   
shocked OH NO !!

Yes . . . you really need to get out of there.

So sorry for you Carol !!!

Blessings!

jhmom
Veteran Member


Date Joined Oct 2004
Total Posts : 2244
   Posted 8/21/2008 6:44 PM (GMT -7)   
(((( Carol )))) you do not deserve to be treated like that, I will be praying that you can get out of there soon. Hang in there sis, hugs and love
Stacie

Trust in the Lord with all thine heart, and lean not unto thine own understanding ~ Proverbs 3:5 ~

DX: Hashimoto's, Celiac Disease, Raynaud's, Lupus and Sjogrens
RX: Imuran, Plaquenil, Methotrexate, Flexeril, Piroxicam, Levoxyl, Folic Acid, Folgard OS (B12), Darvocet (as needed) and magic mouthwash (for mouth sores)


firebabe
Regular Member


Date Joined Aug 2007
Total Posts : 206
   Posted 8/21/2008 7:25 PM (GMT -7)   
My heart goes out to you!  I can't imagine living in that situation with them.  I wish there was something I could do to help, but I really don't know you so all I can do is listen.  I really have no ideas either.  My only advice is try to stay positive.  Prayers to you.
~Firebabe~
 
"Challenges make you discover things about yourself you never really knew."
 
SLE and Class II Lupus Nephritis


SSDore9240
Regular Member


Date Joined Aug 2008
Total Posts : 56
   Posted 8/22/2008 7:16 PM (GMT -7)   
I have relitives very similar...I have had to cut them off/no communication!

okie
Veteran Member


Date Joined Dec 2006
Total Posts : 2818
   Posted 8/22/2008 9:01 PM (GMT -7)   
Thanks everyone I appreciate the support.
love ya
carol
 
Possible scleroderma.  stage 4 COPD,  Osteoporosis,osteoarthritis
Prednisone,plaquanil400mg,azythromyacin,vicodin 4x5mg,Evista60mg, Effexor 150mg,Xanax 1.0 x3,Singular,nitro spray, spirivia,aciphex,lasix,inderal,pot.chlor.,B12 
I will never leave you nor forsake you!
 
 
 


Serina
Regular Member


Date Joined Aug 2008
Total Posts : 431
   Posted 8/23/2008 9:29 PM (GMT -7)   

Hey Carol

Family members can be very insensitive.  I will pray that soon you will be able to get out of this situation.  It is definitely not good for you to be there.  It is bad enough that we question ourselves, much less an arm chair doctor advice from your relatives.

Sometimes I wonder if family treats us this way sometimes, because they are in denial.  Denying your illness might be easier for them to deal with.  Maybe others in our family prefer denial rather than admitting you are really sick.

My best to you

hester


okie
Veteran Member


Date Joined Dec 2006
Total Posts : 2818
   Posted 8/23/2008 10:17 PM (GMT -7)   

Hi Serina, thanks hun. yeah I think it's easier to just live in their fantasy world. Here I have home health care 15 hours a week. nursing care, a case worker that stops in, meals on wheels for when I can't cook. She even looked at my computer for what she could delete and said do you want me to delete this lupus group? confused I really do appreciate them praying for me. I beleive in maricles but to be told when I'm sick I should get up and move around do stuff. It will help me get better faster. Oh if that was only true.Oh well I'm trying to get over this, maybe it's the steroids that are really keeping me fired up. I was gonna ask you if you had ever done a sweat lodge?

Thanks again

carol


 
Possible scleroderma.  stage 4 COPD,  Osteoporosis,osteoarthritis
Prednisone,plaquanil400mg,azythromyacin,vicodin 4x5mg,Evista60mg, Effexor 150mg,Xanax 1.0 x3,Singular,nitro spray, spirivia,aciphex,lasix,inderal,pot.chlor.,B12 
I will never leave you nor forsake you!
 
 
 


Serina
Regular Member


Date Joined Aug 2008
Total Posts : 431
   Posted 8/24/2008 10:46 AM (GMT -7)   

Hey Carol,

this woman, your mother-in-law, is overstepping her boundaries and limitations.  But living her house makes it difficult for you to be assertive, and your right to respect of you

The Cherokee, my people, only used a sweat lodge when a person was sick.  The Lakota people do use sweat lodge for spiritual ceremonies and guidance.  I have never used a sweat lodge myself.  I have talked to a couple of my friends who are Lakota, and some interesting things happen during sweats.  Maybe one day I will get to do this myself.

I was thinking of your steroids earlier.  While I lay on the bed trying to recover from the night.  up all night with Diarhea.  do not know how to spell that word.  I used to take prednisone before.  maybe I will ask my doctor for this medicine if it will give me the energy needed to clean my house.

It is terrible what you are going through, and I will continue to send my prayers your way.

Hester

 

 

 

 

Hi Serina, thanks hun. yeah I think it's easier to just live in their fantasy world. Here I have home health care 15 hours a week. nursing care, a case worker that stops in, meals on wheels for when I can't cook. She even looked at my computer for what she could delete and said do you want me to delete this lupus group? confused I really do appreciate them praying for me. I beleive in maricles but to be told when I'm sick I should get up and move around do stuff. It will help me get better faster. Oh if that was only true.Oh well I'm trying to get over this, maybe it's the steroids that are really keeping me fired up. I was gonna ask you if you had ever done a sweat lodge?

 

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