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okie
Veteran Member


Date Joined Dec 2006
Total Posts : 2818
   Posted 8/22/2008 8:55 PM (GMT -7)   
Hi welcome to the group. Thanks for responding to my post about the relatives. skull . LOL. Anyway I saw you posted a couple of messages and wanted to just say a personel hello and I look forward to getting to know you.
hugs
carol
 
Possible scleroderma.  stage 4 COPD,  Osteoporosis,osteoarthritis
Prednisone,plaquanil400mg,azythromyacin,vicodin 4x5mg,Evista60mg, Effexor 150mg,Xanax 1.0 x3,Singular,nitro spray, spirivia,aciphex,lasix,inderal,pot.chlor.,B12 
I will never leave you nor forsake you!
 
 
 


SSDore9240
Regular Member


Date Joined Aug 2008
Total Posts : 56
   Posted 8/24/2008 6:33 PM (GMT -7)   
Thanks Carol!  I hope my replies aren't too "Debbie Downer"! I do have good days but the past week has been one of the hardest yet.  I do enjoy reading everyones comments and supportive words.  One day soon I also will have words of encouragement for others! For today, I am starting to feel like I just might fit in and that there just may be people who actually know what Im feeling!  Thanks for being here!
31 year old mom of 1: SLE, UCTD, FM, Arthritis, Reynalds(?), Migraines, Alopecia, Neuropothy(L:Hand & Foot), Int. Bells Palsey, a bunch of other stuff I don't remember right now and even more labwork I dont understand!
 
Plaquinil, Trazodone, Lidoderm, Percocet for now...I hate taking the meds!  Refusing any more Prednisone!


okie
Veteran Member


Date Joined Dec 2006
Total Posts : 2818
   Posted 8/25/2008 1:55 AM (GMT -7)   
Hey hun don't worry about it. We all need each other. It's the reason the group works so well. We all have good days and bad and you are right we do understand. If I couldn't come here and get on my soap box or cry my eyes out or whatever it takes I would be in a looney bend by now. People here are just awesome. There is no other words to decribe them. No one expects you to come here right off the bat and have all these encouraging words for others.
I noticed you are not taking the predisone. Howlong has that been? I know the stuff stinks but I couldn't put a t shirt over my head without it. Of course with it my t shirts don't fit anymore lol.
Anyway I was glad you saw the welcome post wetry to catch the new people when we see them so they don't get lost in the shuffle. We get excited about every single new person that comes through here. It's like an extended family to me.
I just hope you keep talking and let us know how things are going with ya.
It sounds like you got a boat load of stuff going on!
huge hugs
carol
 
Possible scleroderma.  stage 4 COPD,  Osteoporosis,osteoarthritis
Prednisone,plaquanil400mg,azythromyacin,vicodin 4x5mg,Evista60mg, Effexor 150mg,Xanax 1.0 x3,Singular,nitro spray, spirivia,aciphex,lasix,inderal,pot.chlor.,B12 
I will never leave you nor forsake you!
 
 
 


SSDore9240
Regular Member


Date Joined Aug 2008
Total Posts : 56
   Posted 8/25/2008 5:58 PM (GMT -7)   
Thanks carol...I just posted a bit more about myself...but i forgot on which thread....I have had 5 pred. tapers since Feb and 2 iv....rheumy wants me off for now. I am sensitive to any of the seroids and can become very nasty and other body functions shut down. Like collogin production, menstal cycle, metabolism of course, and manic type behavior allong with rage...not pretty!
31 year old mom of 1: SLE, UCTD, FM, Arthritis, Reynalds(?), Migraines, Alopecia, Neuropothy(L:Hand & Foot), Int. Bells Palsey, a bunch of other stuff I don't remember right now and even more labwork I dont understand!
 
Plaquinil, Trazodone, Lidoderm, Percocet for now...I hate taking the meds!  Refusing any more Prednisone!

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