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domanique
Regular Member


Date Joined May 2008
Total Posts : 156
   Posted 8/23/2008 7:46 PM (GMT -7)   
WHEN I AM IN PAIN I HAVE TRYED DIFFERENT MEDS.  MOTRIN, TYLENOL, SKELAXIN, DARVACET, FLEXERALL, AND VICODEN.  THIS IS OVER A 16 YR PERIOD, NONE OF THESE WORKED EXCEPT THE VICODEN AND FLEXERALL.  THE THING IS I AM VERY CAUTIOUS about TAKING ANYTHING, I ONLY DO WHEN I'M IN EXTREME PAIN.  I'M ALMOST OUT OF MY VICODEN, I HAD BEEN GIVEN THEM FOR A ORAL SURGERY A YEAR AGO.  NOW I DON'T KNOW HOW TO GO about ASKING A DR FOR THESE WITHOUT THEM THINKING I'M AN ADDICT.   THEY WEREN'T PRESCRIBED TO ME FOR THE PAIN I HAVE ALL THE TIME.  WHAT DO YOU DO IN A CASE LIKE THIS?

okie
Veteran Member


Date Joined Dec 2006
Total Posts : 2818
   Posted 8/23/2008 8:22 PM (GMT -7)   

Hi Domanique, I'm sorry you are having so much pain. I know it can be scarey to ask the doctor for pain medication but you need to just be honest with him/her. I seriously doubt if you tell them that you have been taking the same percription of pain meds you have had for the past year that they will think you have a problem with drugs. Yes we all have to be careful about what we take. Having a chronic illness means long periods of time on meds. After awhile they don't work as well. Having said that You deserve to be as comfortable as possible. You didn't ask to get sick and if your doctor doesn't help you out with somthing for pain you should switch doctors. IMO. I am perscribed 120/ 5 mg. vicodin every month. Some people here take more pain meds than that and some take less. Everyone is different. Just go in beleiving you have a right to ask for help. That's why they make the stuff. I wish I could take flexoril. My lungs are bad and it makes them worse for some reason. if it wern't for that it works really well for my pain.

Let us know what happen

hugs

carol


 
Possible scleroderma.  stage 4 COPD,  Osteoporosis,osteoarthritis
Prednisone,plaquanil400mg,azythromyacin,vicodin 4x5mg,Evista60mg, Effexor 150mg,Xanax 1.0 x3,Singular,nitro spray, spirivia,aciphex,lasix,inderal,pot.chlor.,B12 
I will never leave you nor forsake you!
 
 
 


redrose77
Veteran Member


Date Joined Sep 2005
Total Posts : 2573
   Posted 8/23/2008 11:40 PM (GMT -7)   
I suggest asking about tramadol for the chronic pain with a small script of vicodin for really nasty days. I have darvocet on hand for really nasty pain. I try to keep my pain meds to a minimum and the least dose/strength med when dealing in narcotic pain meds. That said I get tramadol (the strongest non-narcotic pain med out there) every month- 180 of them I can take 2 every 6 hours if I need to but I tend to use them 2-3 times a day. My signature should give you some indication of the pain I am managing with the tramadol combined with skelaxin. I will double check and make sure it is up to date. During my pregnancy I was given darvocet and when needed vicodin for pain and took it every single day at least once without becoming addicted. Pain caused high blood pressure and depression. A good doctor knows this and tries to manage pain.

I walked away from several doctors since my dx who tried to say I was seeking pills. Turns out the pain I was trying to get help for is caused by irreversable nerve damage. I see a pain specialist who does nerve blocks for it.

If you have inflammation that is chronic you need long term anti-inflammatory treatment to help control the pain.

I spent 15 years suffering with only occassional help for the pain and then only because the doctor wanted me to go away. I can say that if your doctor doesn't want to treat chronic pain you need to figure out if it is because they are uncomfortable prescribing pain meds or if they thing you are seeking pills. If they are uncomfortable ask for a referral to a pain specialist. Truthfully, I think anyone with chronic pain should at least consult with a pain specialist because some kinds of pain can be managed amazingly well with nerve blocks and other narcotic free methods. Since we will need these meds for pain for the rest of our lives we need to minimize their use whenever possible because if we develop too high a tolerance level the day will come when there is nothing they can do. That fact is only one of the reasons a pain specialist is a good idea but in my mind it is the absolute biggest reason. I suffered my gallbladder shutting down without pain meds, wisdom teeth removal (with a large amount of jaw bone as well) with advil and tylonol- no real pain meds, and compression fractures in my spine without any medical help at all because doctors felt my complaints of pain were drug seeking- the wisdom tooth removal doctor said my regular doctor had noted I was always wanting pain meds on my file. I had actually been asking for prescription strength anti-inflammatories but the doctor I was seeing then viewed asking for somethings stronger than advil for inflammation in my joints was drug seeking.
Dx:fibromyalgia 2002, systematic lupus 2005- definate CNS involvement dxed late 2005, psoriasis 2006, rheumatoid arthritis 2006, PTSD 2007, multiple allergies 2005, migraine, compression fractures T11 & T12, Sj√∂gren's, damaged periphrial nerves 2007,
Tx: plaquenil, Enbrel, Tramadol, Singulair, Skelaxin, Baby Asprin, Imuran, Prilosec, lasix, Evoxac, Celebrex, Darvocet when things get too bad, prednisone when absolutely necessary, various vitamin/mineral supplements


PattyLatty
Veteran Member


Date Joined Mar 2006
Total Posts : 2570
   Posted 8/24/2008 9:51 AM (GMT -7)   
Domanique, I agree with Redrose about Tramadol. It may not kill your pain but it will certainly take off the edge. I'm having a lousy flare and more pain than usual and went to my PCP asking for something stronger. She called in a script for Celebrex (which I should but won't take because I have serious reflux and a hiatal hernia) and Ultram. Ultram is a slow release version of Tramadol. It especially helps in the morning when I wake up because it's already working and that's when my pain is the worst. And I don't have to try to remember when I last took it, nor do I have to take it with me during the day. It's not like popping Lortabs, but who wants to get hooked on those. I take one at bedtime and it works until the next evening.

I believe that our doctors see much more addiction to pain killers than we do and figure that we're better off dealing with pain than dealing with addiction. They are probably right. (she says as she feebly walks away like a 95 year old crippled old woman.....)

I hope you find some relief for your pain.
Lupus, osteoarthritis, fibro, renauds, restless leg, hiatal hernia, double vision, migraines, costocondritis.
cellcept, neurontin, prednisone, plaquenil, synthroid, triamterene, tramadol, actonel, tri-est, imitrex, cymbalta, tricor, acifex, multivitamin, calcium w vit D, fish oil, aspirin


SSDore9240
Regular Member


Date Joined Aug 2008
Total Posts : 56
   Posted 8/24/2008 6:20 PM (GMT -7)   
I have found all of your entries very helpful, thank you.

I am going to check into the pain mgmt dr asap. I had a very bad week and rushed in to see my primary (rhmy 2 hrs away) for severe pain...note in 10 yrs he has prescribed Percocet 1 x...no other pain meds! He actually told me..."I'm not licensed to treat pain" I nearly hit the roof! There is NO reason for him to think Im a popper or addict! He wrote me a script for 4 Percocet. Took one and was sooo ill from it. I finally got to feeling a bit better and will be looking for a pain mgmt dr tomorrow! I hate taking meds and the thought of someone understanding that and still being willing to assist me in controlling the pain would be great!

Good luck!
31 year old mom of 1: SLE, UCTD, FM, Arthritis, Reynalds(?), Migraines, Alopecia, Neuropothy(L:Hand & Foot), Int. Bells Palsey, a bunch of other stuff I don't remember right now and even more labwork I dont understand!
 
Plaquinil, Trazodone, Lidoderm, Percocet for now...I hate taking the meds!  Refusing any more Prednisone!


domanique
Regular Member


Date Joined May 2008
Total Posts : 156
   Posted 8/27/2008 7:19 PM (GMT -7)   
Thanks o much for the responses. I am so glad to have your support.
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