Post Traumatic Stress Disorder

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Regular Member

Date Joined Aug 2008
Total Posts : 431
   Posted 8/24/2008 8:42 PM (GMT -6)   
the reason that I was asking about the PTSD I was wondering if ptsd is yet another ailment that is associated with many other Lupus people. 
If it is found among many Lupus people I would think that maybe PTSD can be experienced due to other reasons than just trauma.  Is it trauma based every time, or is there some other causes?  And is there a certain amount of trauma needed to be diagnosed with ptsd?
Hope your day will be good to you

Veteran Member

Date Joined Feb 2003
Total Posts : 5514
   Posted 8/24/2008 8:54 PM (GMT -6)   
Hester, this is a great topic to start.  I think we all have degrees of PTSD with this disease.  I've had some councelling very recently actually in regards to this.  I wasn't diagnosed with PTSD, but my feelings and emotions were validated and the councellor really thought that my emotions were totally normal for someone who has gone through so much turmoil in one decade. He thought I was quite healthy in the brain actually, LOL!  Surprise, surprise!!
I have flashbacks and episodes of complete meltdown bawling some days.  It all stems from a near death experience with a seizure medication last summer. To be honest, I don't think I'm dealing with the past very well.  Which made me believe I had PTSD. 
I think PTSD could very well be more than a trauma.  Could it be the lupus causing our brains to "malfunction"?  I don't know.  It will be interesting to hear what others think about this.
I hope your day is good to you too!
I can do anything through Jesus Christ who strengthens me. I have learned in whatever state I am in,to be content. Phillipians 4:11-13

34 years old. Diagnosed with lupus in 2000. Fibromyalgia, anti-phospholipid syndrome(APS)(stroke),Sjogren's, Raynaud's, seizure disorder-(miraclulously disappeared!), Libman Sach's Endocarditis, vasculitis, sacroiliitis, arthritis (neck) . Prednisone, Imuran, Coumadin, Clobazam, Amitriptyline, didrocal, Cozaar, calcium, Cykolokapron, multi-vitamin, vitamin D, Magnesium, vitamin B6, Acidophilus

Veteran Member

Date Joined Jul 2007
Total Posts : 1048
   Posted 8/24/2008 8:55 PM (GMT -6)   
I'm no expert, but I wouldn't think PTSD would necessarily be associated with Lupus. I know some people with Lupus have experienced because of the traumas related to their lupus. I do think "trauma" is definitely a criteria for PTSD. Judy

Regular Member

Date Joined Aug 2008
Total Posts : 431
   Posted 8/24/2008 9:09 PM (GMT -6)   
I think PTSD could very well be more than a trauma.
I think so too Judy.
I know that PTSD is supposed to be an action of reliving the trauma that caused ptsd in the past..  But I just do not know. 
I was in therapy for 22 years believe it or not, and this is one of the diagnoses that they made.
And it makes sense, but there just seems to be more.
I have flashbacks too.  At first I thiought they were crazy my therapists, because I didn't do those things they described.  But after I understood ptsd better, I agreed with them.
the therapy worked because I do not have hardly any flashbacks anymore.
thank you for your response

Regular Member

Date Joined Aug 2008
Total Posts : 431
   Posted 8/24/2008 9:12 PM (GMT -6)   
Sorry Ginny, I think I called you Judy in my other post.  Please accept my apologies. 
Going to take myself to bed.  Hope the day has been good to all of you.

Veteran Member

Date Joined Dec 2006
Total Posts : 2818
   Posted 8/25/2008 4:14 AM (GMT -6)   
Yes I have PTSD. from my husband who was 100% disabled with it from vietnam. he passed away in 2000. the v.a. calls it secondary ptsd you get it from living with someone who suffers with it. tip toing around walking on egg shells stuff like that. I have gotten worse since I got sick. My startle reflexes are really bad. the slightest unexpected noise and I jump through the roof. My ability to handle stress is much worse. somtimes I want to hide in a hole and pull the dirt over the top of me. That way no one can ask me anything. I use to be the in charge go to person. Now I just want to be left alone or let somone else handle it. It stinks it takes away from who I am. I havn't seen a doctor for it. I not sure I could handle that right now.
anyway I'm interested in what the others have to say about all this. Also my grandma was iraquois on my mom's side and choctaw on my dad's go figure! We grew up during a time when that was frowned on and my mom tried to ignore it. All though if you saw me it's kind of hard to ignore lol. That's why I asked you about the sweat lodge. I'm not sure if it would help or hurt.
Possible scleroderma.  stage 4 COPD,  Osteoporosis,osteoarthritis
Prednisone,plaquanil400mg,azythromyacin,vicodin 4x5mg,Evista60mg, Effexor 150mg,Xanax 1.0 x3,Singular,nitro spray, spirivia,aciphex,lasix,inderal,pot.chlor.,B12 
I will never leave you nor forsake you!

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