in total agony, muscle cramps to the max

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meeks
Regular Member


Date Joined Dec 2007
Total Posts : 27
   Posted 8/24/2008 9:35 PM (GMT -7)   
does anyone else get these to the extent of having to take a scalding hot shower and slather yourself w/ icy hot, just so you can walk again?  shocked  
I am sooooo angry, annoyed,PO'd....whatever.
 
this is the second time in 2 mos i've experienced this. it only happens right as I'm going to bed. I will get the WORST, i mean the absoluted devil of muscle cramps in my feet and legs. my toes curl upward i have to turn my feet inward to walk...or waddle
I'm sure my neighbor is thinking I'm having a wild night or I'm getting killed....I could not stop sobbing.
Please help
what can i do to never get these again?
Diagnosis :Lupus (SLE)- Feb.2005.
Meds: (Since 7/2008)
 Prednisone - 40mg taper from 60mg
Tramadol 50mg
Furosemide 40 mg/Klor-con10(potassium?)
Benadryl 25mg(as needed)
Albuterol Inhaler (prescribed after Pnuemonia, might have Pluerisy)
Vitamins: Calcium 500mgs, Vitamin C, E and "Hair, skin & nails" vitamins.

Outlook: keep everything in prespective, take the day as it comes. God won't give you more than you can handle

 


 


okie
Veteran Member


Date Joined Dec 2006
Total Posts : 2818
   Posted 8/25/2008 1:25 AM (GMT -7)   
Hi Meeks, as a matter of fact I get them often. I don't do anything but let them pass but I agree they hurt like heck! I get them in my hands where my fingers will bend in some strange contortion (sp). I can push them back the way they should be and than let go and they go right back to looking deformed again.
It happens to my toes too. I can't say with absolute certainty but for me it seems like it happens more when I have to either take extra predisone or when I back off the predisone. It's been happening off and on for years and it always seems to center around the steroids.
I'm sorry you are hurting I hope you were able to get some rest.
hugs
carol
 
Possible scleroderma.  stage 4 COPD,  Osteoporosis,osteoarthritis
Prednisone,plaquanil400mg,azythromyacin,vicodin 4x5mg,Evista60mg, Effexor 150mg,Xanax 1.0 x3,Singular,nitro spray, spirivia,aciphex,lasix,inderal,pot.chlor.,B12 
I will never leave you nor forsake you!
 
 
 


jhmom
Veteran Member


Date Joined Oct 2004
Total Posts : 2244
   Posted 8/25/2008 8:24 AM (GMT -7)   
I've experienced this same pain several times. The last time was Thursday night and I was on the verge of tears. I wanted so bad to take a Lortab but knew if I did it would make me itch so I toughed it out and finally fell asleep. I don't know what's causing it, at one time I was looking into RLS.. I don't know, I plan on mentioning it to my rheumy in Oct, if not before.

Take care of yourself (((((hugs))))) and let us know how you are doing.


Stacie

Trust in the Lord with all thine heart, and lean not unto thine own understanding ~ Proverbs 3:5 ~

DX: Hashimoto's, Celiac Disease, Raynaud's, Lupus and Sjogrens
RX: Imuran, Plaquenil, Methotrexate, Flexeril, Piroxicam, Levoxyl, Folic Acid, Folgard OS (B12), Darvocet (as needed) and magic mouthwash (for mouth sores)


AlwaysRosie
Veteran Member


Date Joined Jan 2005
Total Posts : 8616
   Posted 8/25/2008 4:55 PM (GMT -7)   
((((((( Meeks ))))))))

I hope others have some better ideas . . . .

The little I know about cramps is:

dehydration (drink more water / gatorade / bananas)
potassium (you'll have to let your doc know so he can test to see if you are deficient)

I'm so sorry . . . that sounds brutal. Lots of elderly get this . . . but it really could be from meds too.

Blessings!

In His Grip

AlwaysRosie           "We can't control the waves, but we can learn how to surf!!"

Psalms 139

Co-Moderator - Lupus Forum

UCTD, Inflammatory Arthritis, Diverticulosis, (recent dx - Sjogrens, Crohn’s 4/08)

Clickable Links:  Lupus Resources    Lupous.Org   Lupus Criteria (4 of 11)   Lupus Chapter Locator


SSDore9240
Regular Member


Date Joined Aug 2008
Total Posts : 56
   Posted 8/25/2008 5:52 PM (GMT -7)   
Yep, sorry to hear you have em too...I was hoping I was the only one!  Yeah, they are crazy!  Ive had em so bad that they were all over and I couldnt lay still and had to be transported to the er.  My rheumy said it was a dual flair of SLE and FM at the same time...everything outta wack.  They knocked me out for awhile and rx rest.  Seems to have helped!
 
Sorry you have to go through it too, rest my frien!
Stephanie
31 year old mom of 1: SLE, UCTD, FM, Arthritis, Reynalds(?), Migraines, Alopecia, Neuropothy(L:Hand & Foot), Int. Bells Palsey, a bunch of other stuff I don't remember right now and even more labwork I dont understand!
 
Plaquinil, Trazodone, Lidoderm, Percocet for now...I hate taking the meds!  Refusing any more Prednisone!


meeks
Regular Member


Date Joined Dec 2007
Total Posts : 27
   Posted 8/25/2008 7:24 PM (GMT -7)   
okie said...
Hi Meeks, as a matter of fact I get them often. I don't do anything but let them pass but I agree they hurt like heck! I get them in my hands where my fingers will bend in some strange contortion (sp). I can push them back the way they should be and than let go and they go right back to looking deformed again.
It happens to my toes too. I can't say with absolute certainty but for me it seems like it happens more when I have to either take extra predisone or when I back off the predisone. It's been happening off and on for years and it always seems to center around the steroids.
I'm sorry you are hurting I hope you were able to get some rest.
hugs
carol


  shocked no way, that's is exactly how the cramps started...in my hands.   then moved to my legs and feet.   

my fingers cramped so bad they coiled by themselves after I pulled them back straight.


Diagnosis :Lupus (SLE)- Feb.2005.
Meds: (Since 7/2008)
 Prednisone - 40mg taper from 60mg
Tramadol 50mg
Furosemide 40 mg/Klor-con10(potassium?)
Benadryl 25mg(as needed)
Albuterol Inhaler (prescribed after Pnuemonia, might have Pluerisy)
Vitamins: Calcium 500mgs, Vitamin C, E and "Hair, skin & nails" vitamins.

Outlook: keep everything in prespective, take the day as it comes. God won't give you more than you can handle

 


 


Serina
Regular Member


Date Joined Aug 2008
Total Posts : 431
   Posted 8/31/2008 7:49 AM (GMT -7)   
I have the cramps too but mostly in my feet, and my toes curl up as you said.  I haven't had this happen as much since I started taking a high potency multi-vitamin.
 
Hester

Ginny
Veteran Member


Date Joined Feb 2003
Total Posts : 5514
   Posted 8/31/2008 2:50 PM (GMT -7)   
Do you have Fibromyalgia?  Muscle cramping can be caused by that too.  I'm learning so much about my own Fibromyalgia right now because it's in a horrible flare up.  Learning things I had no idea happens with Fibro......  The cramping can be really bad in my toes...
I can do anything through Jesus Christ who strengthens me. I have learned in whatever state I am in,to be content. Phillipians 4:11-13

34 years old. Diagnosed with lupus in 2000. Fibromyalgia, anti-phospholipid syndrome(APS)(stroke),Sjogren's, Raynaud's, seizure disorder-(miraclulously disappeared!), Libman Sach's Endocarditis, vasculitis, sacroiliitis, arthritis (neck) . Prednisone, Imuran, Coumadin, Clobazam, Amitriptyline, didrocal, Cozaar, Tramacet, calcium, Cykolokapron, multi-vitamin, vitamin D, Magnesium, vitamin B6, Acidophilus


Serina
Regular Member


Date Joined Aug 2008
Total Posts : 431
   Posted 9/1/2008 6:46 AM (GMT -7)   

Hey Ginny,

Thank  you for the response.  I have not been diagnosed officially with fibromyalgia.  Maybe I need to read the posts in this subject.  What happens when you are in a fibromyalgia flare?  I assumed the cramping was just another part of getting older.  Or that my potassium was low.  Never associated it with fibromyalgia.  my old doctor did diagnose me with fibromyalgia.  He did this tenderness check thing, by pushing on certain parts of my body.  But he died, and most of my medical records lost.  and the doctor who took his patients seem not to trust his diagnoses.  Could mention it to my rheumatolotist.  I am kind of intimidated by doctors too, and can't remember what to say.

I will look at these other posts in this subject. 

thanks again

Hester


Serina
Regular Member


Date Joined Aug 2008
Total Posts : 431
   Posted 9/1/2008 7:52 AM (GMT -7)   
Hey Again Ginny,
I went to the fibromyalgia forum and I have 21 of the symptoms located there and more symptoms of another post.  I have written them down, and will show them to my rheumatologist.  I am thinking of taking them today and asking the nurse to put them in my record, so I don't forget.  The forgetting of words in the middle of a sentence or conversation, or sentence, hit home.  this has bothered me a lot.  I am 62 years old, and I was afraid this was signs of alzheimers.  and following alzheimers is often placement in a nursing home.  Losing power over my own life, is a worse threat to me than having the fibromyalgia or lupus or sjogren's.
 
I have been trying to hide some of these symptoms for so long, afraid of what the alternative is.
 
thank you so much for your response, for this forum, and for the people so willing to share. 
 
Hester
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