I'm back, but sick

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hippimom2
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Date Joined Jul 2005
Total Posts : 5403
   Posted 8/25/2008 5:45 PM (GMT -7)   
I just wanted to let everyone know that I am home from vacation.  I love the mountains so much, but I didn't tollerate the trip very well this year.  Almost every afternoon I had a flare up of symptoms and felt very sick.  We did do a lot of fun things though but I was kind of bummed out that I didn't feel well.
 
I've really crashed since getting home and am feeling really overwhelmed.  We got home and unpacked and then the kids started school today and my daughter had dance right after school.  My sons arthritis is also flaring, so I need to figure out when I can take him to the doctor and I have an appointment with my rheumy tomorrow (2hr round trip) and then after dance class tonight, my daughter said that her heels have been hurting her.  Ugh!!!  I'm stressed and exhausted!!!
 
I really want to catch up with all of you.  I really did miss all of you while I was gone.  Hopefully in the next few days I can catch up a little.
Diagnosis:  UCTD (lupus) 2006; Raynauds 2006; Sjogren's 2006; lupus symptoms began 2003; UC 2008; CFS 1991; Mono 1985
Meds:  Plaquenil 400mg; Prednisone 5-10mg; Tramadol 100mg 3-4x daily; Doxepin 25-50mg; Prevacid; Evoxac; Steriod Cream and Mouth Rinse for tongue and mouth ulcers; Hydrocodone 5/500 prn for severe pain; Artificial tears

 

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PattyLatty
Veteran Member


Date Joined Mar 2006
Total Posts : 2570
   Posted 8/25/2008 6:47 PM (GMT -7)   
Hippi,

We have really missed you while you've been gone and I've often wondered how you've been doing on your vacation. I'm so sorry that you've had to pay for taking a vacation with your family, but darn it, it seems that the least little thing you do sends you into a flare. Once again, Hippi, I commend you for being such a dedicated and devoted mom, and I sometimes I just don't know how you keep doing it. Take it easy for a while! Sleep while the kids are at school. Those dirty clothes won't go anywhere, and so what if you feed the kids pbj's for a couple of days. Take a break and get over your flare. I hate to see you feel so bad.

We need to come up with a motto.

"Don't tell me I'm losing my hair, I know it, I'm having a flare!"


Now someone come up with something better than that!

In fact maybe we should write a poem.


Take care of yourself Hippi!

Glad you're home,

Pat
Lupus, osteoarthritis, fibro, renauds, restless leg, hiatal hernia, double vision, migraines, costocondritis.
cellcept, neurontin, prednisone, plaquenil, synthroid, triamterene, tramadol, actonel, tri-est, imitrex, cymbalta, tricor, acifex, multivitamin, calcium w vit D, fish oil, aspirin

Post Edited (PattyLatty) : 8/26/2008 9:42:46 PM (GMT-6)


lucysgd
Veteran Member


Date Joined Jun 2008
Total Posts : 669
   Posted 8/25/2008 7:00 PM (GMT -7)   

Glad you're back safe and sound - just sorry about the flaring.  We are leaving for vacation in a few days - also a driving one - headed to visit our kids.  I love getting away, but don't travel well and am worried about the flaring part myself.   My kids are adults though, so it's comopletely different than being the mom of youngsters.  I don't know how you do it - but I applaud you.  Now take care of yourself and like Patty said - let the laundry wait......if only it would grow legs and walk away! yeah

Blessings,

Lucy


diagnoses:  mono 1972; postviral CFS 1997; fibro 1998; CEBV 2005; UCTD (dx limbo) 2007
meds:  occasional low dose xanax for sleep, artificial tears w/ ointment at night, ibuprophin (none of which manages the problems very well!)
 
We cannot avoid the birds of sadness flying over our heads, but we need not let them make nests in our hair. 
       ~~ Chinese saying as quoted by Helen Nearing


Butterflake
Forum Moderator


Date Joined Jun 2006
Total Posts : 1551
   Posted 8/26/2008 5:05 AM (GMT -7)   
Oh Hippi! I'm so sorry you were sick while on vacation and now even worse! It's no wonder you're stressed and exhausted. You really are a great Mom! Please try to mother yourself some for the next few days too. I hope your rheumy can help. I'm sending you lots of positive energy. (((Hugs))) Love, Butterflake

Dx: SLE ('05), depression, diabetes, fibromyalgia, gerd, sleep apnea, hypertension, IBS Tx: CellCept, plaquenil, prednisone, lisinopril, actos, lipitor, nexeum, prozac, seroquel, celebrex, actonel
prn: arthritis tylenol, neurontin, promethazine, ambien.  multi vit, C, flaxseed oil, acupuncture
Donna
 


okie
Veteran Member


Date Joined Dec 2006
Total Posts : 2818
   Posted 8/26/2008 7:23 AM (GMT -7)   

Hey Hippi, welcome home. It sounds like this vacation kind of took a lot out of everyone. Hopfully your son won't have a lot of problems with his flare. Maybe the dancing is what is happening with your daughter. Hopfully it's no more than normal stuff. You are probably at the doctors by now. It's good that you got an appt. Good timing!

Let us know how it went and try to rest when ever you get a little time to yourself.

love ya

carol


 
Possible scleroderma.  stage 4 COPD,  Osteoporosis,osteoarthritis
Prednisone,plaquanil400mg,azythromyacin,vicodin 4x5mg,Evista60mg, Effexor 150mg,Xanax 1.0 x3,Singular,nitro spray, spirivia,aciphex,lasix,inderal,pot.chlor.,B12 
I will never leave you nor forsake you!
 
 
 


jhmom
Veteran Member


Date Joined Oct 2004
Total Posts : 2244
   Posted 8/26/2008 6:23 PM (GMT -7)   
(((( Hippi )))) I am glad you are back but sorry you are flaring. I agree with Pat you are a great mom, now it's time to take it easy and eat sandwiches for a couple of nights. Take it easy and I pray you feel better soon!
Stacie

Trust in the Lord with all thine heart, and lean not unto thine own understanding ~ Proverbs 3:5 ~

DX: Hashimoto's, Celiac Disease, Raynaud's, Lupus and Sjogrens
RX: Imuran, Plaquenil, Methotrexate, Flexeril, Piroxicam, Levoxyl, Folic Acid, Folgard OS (B12), Darvocet (as needed) and magic mouthwash (for mouth sores)


AlwaysRosie
Veteran Member


Date Joined Jan 2005
Total Posts : 8616
   Posted 8/26/2008 6:32 PM (GMT -7)   
((((((((( Hippi )))))))))

Blessings!

In His Grip

AlwaysRosie           "We can't control the waves, but we can learn how to surf!!"

Psalms 139

Co-Moderator - Lupus Forum

UCTD, Inflammatory Arthritis, Diverticulosis, (recent dx - Sjogrens, Crohn’s 4/08)

Clickable Links:  Lupus Resources    Lupous.Org   Lupus Criteria (4 of 11)   Lupus Chapter Locator


Ginny
Veteran Member


Date Joined Feb 2003
Total Posts : 5514
   Posted 8/26/2008 7:07 PM (GMT -7)   
Hi Hippi,
 
So glad you enjoyed the mountains, but sorry you're not feeling well sad .  Trips can really take it out of us can't they....
 
I'll keep you in my thoughts and prayers. 
 
Love
Ginny
 
 
I can do anything through Jesus Christ who strengthens me. I have learned in whatever state I am in,to be content. Phillipians 4:11-13

34 years old. Diagnosed with lupus in 2000. Fibromyalgia, anti-phospholipid syndrome(APS)(stroke),Sjogren's, Raynaud's, seizure disorder-(miraclulously disappeared!), Libman Sach's Endocarditis, vasculitis, sacroiliitis, arthritis (neck) . Prednisone, Imuran, Coumadin, Clobazam, Amitriptyline, didrocal, Cozaar, calcium, Cykolokapron, multi-vitamin, vitamin D, Magnesium, vitamin B6, Acidophilus


cured4real?
Veteran Member


Date Joined Dec 2005
Total Posts : 1944
   Posted 8/26/2008 10:58 PM (GMT -7)   
Hippi, had pc problems, bad pc karma, anyway, glad you are back. My bf has family in the mountains and I always get sick. Lack of oxygen I think. I don't know. I get sort of sick, heights and all.

I hope you didn't get too much sun. It has been so so bad for me. I'm really developing some crazy kind of severe photosensitivity, worse than some of the other parts of my illness. I didnt think it could be so bad. I wonder why. Doc just says because of autoimmune illness, but then, with another breath, well I'm not that sick according to labs. What's up with that?

I hope you had fun and feel better soon.
Love, Marji
--Sometimes I think the surest sign that intelligent life exists elsewhere in the universe is that none of it has tried to contact us. Bill Watterson (1958-) cartoonist "Calvin and Hobbes"
Ills--Sjogrens-Lupus-like AI Disease, Hashis, Vitiligo, spinal stenosis/fusion with plate, salivary/lymphectomies, Diabetes, NAFLD, COPD, RLS, neuropathy, trigonitis, hystero, diffuse brain atrophy, GI nightmare
Meds--Plaquenil, Evoxac, Metformin, Synthroid, HCTZ, Estradiol patch, Prosed, Detrol, Klonopin, Ultram, Vicodin, Restasis, Albuterol, steroid injections and pred prn


PattyLatty
Veteran Member


Date Joined Mar 2006
Total Posts : 2570
   Posted 8/27/2008 6:03 PM (GMT -7)   
Hippi, I'm glad we haven't heard from you in a couple of days because I'm hoping that means that you're really taking it easy. Hope you'll start feeling better throughout the next few days or weeks.

Love,

Pat
Lupus, osteoarthritis, fibro, renauds, restless leg, hiatal hernia, double vision, migraines, costocondritis.
cellcept, neurontin, prednisone, plaquenil, synthroid, triamterene, tramadol, actonel, tri-est, imitrex, cymbalta, tricor, acifex, multivitamin, calcium w vit D, fish oil, aspirin


hippimom2
Veteran Member


Date Joined Jul 2005
Total Posts : 5403
   Posted 8/27/2008 6:14 PM (GMT -7)   
Thanks for all of the very kind replies and all the support. Pat, I wish the reason I haven't been here is because I've been resting, but it's not - I still haven't had a chance to rest. Yesterday I had my rheumy appointment which is a 2 and 1/2 hr round trip. My appointment went well and we talked about my prednisone dose more and talked about making sure I feel good for a while before trying to taper more.

Then today I took both my kids to their pediatrician for my daughter's heel pain and my son's arthritis flare. Again, it was over a 2 and 1/2 hr round trip. My daughter has something called Severs Disease which is basically just means her heel plates are growing and are inflamed, so she has to take anti inflammatories and use a special heel insert. Hopefully it will go away after a few weeks and if it doesn't we have to take her to an ortho doc. For my son, she ran a bunch of labs and she talked about using a short prednisone dose if he keeps getting worse. He has an appointment with a new pediatric rheumy in October.

I have read a lot of the recent posts here, but haven't had a lot of time to respond. I'll probably head off to bed with my kids in a few minutes.

Thanks again for being there for me. Hopefully I can post more tomorrow.
Diagnosis:  UCTD (lupus) 2006; Raynauds 2006; Sjogren's 2006; lupus symptoms began 2003; UC 2008; CFS 1991; Mono 1985
Meds:  Plaquenil 400mg; Prednisone 5-10mg; Tramadol 100mg 3-4x daily; Doxepin 25-50mg; Prevacid; Evoxac; Steriod Cream and Mouth Rinse for tongue and mouth ulcers; Hydrocodone 5/500 prn for severe pain; Artificial tears

 

Clickable:  LUPUS INFORMATION & LUPUS RESOURCES.

Please allow HealingWell to continue helping others by donating: http://www.healingwell.com/donate/

 

Co-Moderator: Lupus and CFS Forums


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