Work/Life Balance?

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Jenny S.
Regular Member

Date Joined Oct 2007
Total Posts : 80
   Posted 8/26/2008 10:54 AM (GMT -6)   

Just wondering how others maintain work/life balance while dealing with Lupus?  I work a full-time job & have a husband.  We have no children.  I was diagnosed with Lupus after we married & now it is getting difficult for us.  I just found out my husband will be out of the country for six of the next twelve months – I have no clue how I’m going to maintain a household alone.  Does anyone have any suggestions on such a dilemma or has dealt with such issues?




I have Lupus ... Lupus doesn't have me. 

Dx: Raynaud's(2000)·Lupus(2001)

Rx: Pletal 100mg·Norvasc 10mg·Prednisone 5mg·Plaquenil 400mg


Veteran Member

Date Joined Apr 2006
Total Posts : 1296
   Posted 8/26/2008 4:46 PM (GMT -6)   
You will have to adjust to a new normal with less energy.  Set aside those things that are not important or necessary to do.  Make sure you get enough rest. 
Life with lupus means less energy and you don't want to work yourself into a flare.  There are always things we do because we want to do them...not that we have to do them.  Those patients with young children and still trying to hold down jobs have a really difficult task.  Just adjust as best you can. 
I have a friend who also has lupus and she finally decided to take a less stressful and more flexible job.  It was a joint decision with her husband and both have benefitted by it. They don't have any children either. 
Hope you can make the adjustment.  Just make sure you talk to your husband about it.  I am sure others who are younger and have kids and still work will chime it.
Mixed connective tissue disease (systemic lupus, scleroderma, polymyositis), Raynauds phenomena, Hypertension, Barrett's esophagus.
Meds: prednisone 5mg, 50mg imuran, Lotrel 40/5mg, maxide 37.5/25mg, folic acid, potassium, aciphex 20mg, multi vitamins.
Maintain your optimism and you can beat the odds.
"Although the world is full of suffering, it is also full of the overcoming of it."  Helen Keller

Veteran Member

Date Joined Jul 2005
Total Posts : 5403
   Posted 8/28/2008 10:28 AM (GMT -6)   
(((((Jenny))))) It sounds like things are going to be pretty rough for you for a while. I also hope that you can make the adjustment to your husband being gone for so long. My guess is that it will be pretty hard at first, but over time you will figure out some things that will work for you.

I don't have a lot of advice about the job thing. I kept cutting back my hours at work until I knew I just couldn't do it anymore. I was using all of my energy at work and had none left for my kids or husband. I spent all my time at home resting so I could have some energy to work. It was a hard decision, but staying home has been the best decision I have made. I don't know what you do for work, but one option is to see if you can cut your hours even a little bit while your husband is gone. Also, do you have any family nearby or close friends that can help if you need it?

Hang in there and know we are always here for you.
Diagnosis:  UCTD (lupus) 2006; Raynauds 2006; Sjogren's 2006; lupus symptoms began 2003; UC 2008; CFS 1991; Mono 1985
Meds:  Plaquenil 400mg; Prednisone 5-10mg; Tramadol 100mg 3-4x daily; Doxepin 25-50mg; Prevacid; Evoxac; Steriod Cream and Mouth Rinse for tongue and mouth ulcers; Hydrocodone 5/500 prn for severe pain; Artificial tears



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