is there a specific test to dx you with lupus?

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domanique
Regular Member


Date Joined May 2008
Total Posts : 156
   Posted 8/27/2008 12:41 PM (GMT -7)   
I'm wondering if its hard to dx lupus?  I've heard its hard to dx fibro and they have to rule out other things first, is this true with lupus?  I've been jerked around by drs so long I'm afraid of another run around.  Is there an actual test for lupus, how do they determine this is what you have?

AlwaysRosie
Veteran Member


Date Joined Jan 2005
Total Posts : 8616
   Posted 8/27/2008 1:31 PM (GMT -7)   
See the last line in my signature for a link "Lupus Criteria 4 of 11". It will best answer your question.

. . . . and Lupus can take years to dx. It is not typically as simple as running some blood tests.

Blessings!

In His Grip

AlwaysRosie           "We can't control the waves, but we can learn how to surf!!"

Psalms 139

Co-Moderator - Lupus Forum

UCTD, Inflammatory Arthritis, Diverticulosis, (recent dx - Sjogrens, Crohn’s 4/08)

Clickable Links:  Lupus Resources    Lupous.Org   Lupus Criteria (4 of 11)   Lupus Chapter Locator


AlwaysRosie
Veteran Member


Date Joined Jan 2005
Total Posts : 8616
   Posted 8/27/2008 1:34 PM (GMT -7)   
BTW Dominique,

You have started several topics and received some detailed info from several members . . . . you probably should think about going back to those topics and acknowledging the replies. I'm not sure if you see people's answers. It takes a fair amount of time to respond and its nice to know that the responses have been read.

Blessings!

In His Grip

AlwaysRosie           "We can't control the waves, but we can learn how to surf!!"

Psalms 139

Co-Moderator - Lupus Forum

UCTD, Inflammatory Arthritis, Diverticulosis, (recent dx - Sjogrens, Crohn’s 4/08)

Clickable Links:  Lupus Resources    Lupous.Org   Lupus Criteria (4 of 11)   Lupus Chapter Locator


domanique
Regular Member


Date Joined May 2008
Total Posts : 156
   Posted 8/27/2008 7:14 PM (GMT -7)   
I know I have started a lot of new topics, I thought that was what this was for.  I have read all of them but didn't know I was supposed to respond to them.  I'm trying to educate myself and find support at a time  really needed it.  I have 3 young kids and don't get much time on the computer as it is.  Its a little here and there.  Most of the time I read the responss and then turn around and have to get off for one reson or another.  I have appreciated every word of encouragement and advice.  Sorry if you think I didin't do a good enough job of letting everyone know, that was not my intentions.

PattyLatty
Veteran Member


Date Joined Mar 2006
Total Posts : 2570
   Posted 8/27/2008 7:43 PM (GMT -7)   
Domanique, I'm sure Rosie's comment wasn't meant as a criticism, but just an explanation of how the forum works. I do hope you're getting some helpful information and support from this group of people and please keep coming here and taking part in the forum with us. You really do have your hands full with your illness plus three young kids and I'm sure we all understand. I'm sure what Rosie wants is more give and take between all of us. I hope you have a good day tomororw.

Pat
Lupus, osteoarthritis, fibro, renauds, restless leg, hiatal hernia, double vision, migraines, costocondritis.
cellcept, neurontin, prednisone, plaquenil, synthroid, triamterene, tramadol, actonel, tri-est, imitrex, cymbalta, tricor, acifex, multivitamin, calcium w vit D, fish oil, aspirin


okie
Veteran Member


Date Joined Dec 2006
Total Posts : 2818
   Posted 8/27/2008 7:43 PM (GMT -7)   
3 young kids huh? wow. Hopfully you can get a little time to yourself. It can be overwhelming at first. So many questions not knowing what to do. It's diffinently a hard illness to get a handle on. Hang in there It will get easier. Maybe not less confusing but at least not quite so overwhelming. I don't know a lot of stuff but you are welcome to send me a private email any tie you might want to talk one on one. Just click on my name and it shows my email addy.
hugs
carol


 
Possible scleroderma.  stage 4 COPD,  Osteoporosis,osteoarthritis
Prednisone,plaquanil400mg,azythromyacin,vicodin 4x5mg,Evista60mg, Effexor 150mg,Xanax 1.0 x3,Singular,nitro spray, spirivia,aciphex,lasix,inderal,pot.chlor.,B12 
I will never leave you nor forsake you!
 
 
 


AlwaysRosie
Veteran Member


Date Joined Jan 2005
Total Posts : 8616
   Posted 8/28/2008 7:41 AM (GMT -7)   
(((((((( domanique ))))))))))

Your welcome. I hope you continue to receive great support here. I'm including a brand new group photo with all the new members and you included!!

Glad you found us! Yup! Being a mom can be a daunting task and adding this dd to it can really complicate things. There are a few hints for new members in the "Lupus Resources" topic . . . if you haven't had a chance to read the post with tips to new members, it may be worth your time. Link at the end of my signature.

I have four ( 1 girl and 3 boys ) so I truly understand. I used to tape record their favorite books and ring a bell for the que to turn pages. Then, I'd stack up the books and haul them into bed with me me. Haa haaa !!! I'd speed up the tape for the "one minute" version and I'd slow it down to do a drawn out "man voice". It was really fun for the kids and it gave me a bit of a rest when it was sorely needed. We used the recording so much I was afraid the tape would wear out!! I even had a sofa in the basement with a TV so we could hang out down there and do the laundry without running up and down. You'll figure out lots of ways to make things work.

Here's the group photo!!

blush confused cool cry devil eyes mad cool redface rolleyes sad scool shakehead shocked smhair :-) smilewinkgrin smurf tongue wink blush cool confused cool cry devil eyes mad redface rolleyes sad scool shakehead shocked smhair :-) smilewinkgrin smurf tongue wink blush confused cool cry devil eyes mad redface rolleyes sad scool shakehead shocked smhair :-) smilewinkgrin smurf tongue wink blush confused cool cry devil eyes mad redface rolleyes sad scool shakehead shocked smhair :-) smilewinkgrin smurf tongue wink blush confused cool cry devil eyes mad redface rolleyes sad scool shakehead shocked smhair :-) smilewinkgrin smurf tongue wink blush confused cool cry devil eyes mad redface rolleyes sad scool shakehead shocked smhair :-) smilewinkgrin smurf tongue wink blush confused cool cry devil eyes mad redface rolleyes sad scool shakehead shocked smhair :-) smilewinkgrin smurf tongue wink blush confused cool cry devil eyes mad redface rolleyes sad scool shakehead shocked smhair :-) smilewinkgrin smurf tongue wink

In His Grip

AlwaysRosie           "We can't control the waves, but we can learn how to surf!!"

Psalms 139

Co-Moderator - Lupus Forum

UCTD, Inflammatory Arthritis, Diverticulosis, (recent dx - Sjogrens, Crohn’s 4/08)

Clickable Links:  Lupus Resources    Lupous.Org   Lupus Criteria (4 of 11)   Lupus Chapter Locator


cured4real?
Veteran Member


Date Joined Dec 2005
Total Posts : 1944
   Posted 8/28/2008 11:25 PM (GMT -7)   
Domanique, I can't decide if I'm the smurf, the hair raising guy or the devil in the photo above. I can be many. Anyway, no there isn't one test. Even tests for antibodies ds-dna arent definitied because several diseases and medicines cause the development of ds-dna autoantibodies and many people with lupus don't have them or they go up and down. New research is focusing on all autoimmune diseases, scleroderma, vitiligo sjogrens, lupus and more as being manifestations of a single condition "autoimmunity", and there has been positive research showing a variety of causes. A high ANA or CRP or other inflammatory markers show autoimmunity, my ANA is always high, but can also be a sign of immune problems due to chronic illness of another sort, like a festering infection, in my case TB. TB also can cause the formation of anti ds-dna to the central nervous system ( usually dx as CNS lupus) and TB has been found active in the core of sarcoid lesions. I would make sure your docs make sure you don't have any kind of other illness or disease before they label you with an autoimmune conditions, simply because they may fail to treat a treatable condition that could get worse with steroids and immunosuppressants. If they've tested you for all the likely suspects and treated any active conditions and you still show problems then they may feel better about labeling you as having an autoimmune disease. Family history also plays a role. Even so, people with lupus get sick too, and its important they take care of any other problems as well. That's why it takes so long. If you've had any problems with infections or diseases in the past, its important to mention them to your rheumie. Lots of diseases can cause autoimmune symptoms and problems that can go away with the treating of the disease. Take care.
Love, Marji
--Sometimes I think the surest sign that intelligent life exists elsewhere in the universe is that none of it has tried to contact us. Bill Watterson (1958-) cartoonist "Calvin and Hobbes"
Ills--Sjogrens-Lupus-like AI Disease, Hashis, Vitiligo, spinal stenosis/fusion with plate, salivary/lymphectomies, Diabetes, NAFLD, COPD, RLS, neuropathy, trigonitis, hystero, diffuse brain atrophy, GI nightmare
Meds--Plaquenil, Evoxac, Metformin, Synthroid, HCTZ, Estradiol patch, Prosed, Detrol, Klonopin, Ultram, Vicodin, Restasis, Albuterol, steroid injections and pred prn


Serina
Regular Member


Date Joined Aug 2008
Total Posts : 431
   Posted 8/31/2008 7:16 AM (GMT -7)   

I was thinking as I sit in the school parking lot waiting for my grandchildren to get out, that I do not know how in the world people do it who have young children.  I did it before myself, but was not as sun sensitive as I am now.  After the school pickups, I drug myself back home, could not wait to get inside to lay down.  If I had small children to care for, I do not know what I would do or could do.  So I admire all of you who have small children and find a way to manage this disease, and others, and still take care of thier children.

Hope that soon things will be better for you

hester

 

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