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Date Joined Jan 2007
Total Posts : 2446
   Posted 8/28/2008 12:52 PM (GMT -6)   
hi Gang, long time to see :-)
Hope you're all well.

I just wanted to know if anyone found that their PMS, perimenopause and or menopause was intensified because of their lupus.
My dx is unclear still because of my lyme dx, but my rheum is still treating me as a lupus dx.

Does anyone get the mouth sores just at their period as well.

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Veteran Member

Date Joined Feb 2003
Total Posts : 5514
   Posted 8/28/2008 9:51 PM (GMT -6)   
Hey Jen,
Oh yes, I think we all can say that our lupus is more active during PMS.  Lupus is very much controlled by our hormones.  My doctor gave me a cocktail of vitamins and minerals to help with the PMS.  I take these every day.  250mg - B6, 500mg - magnesium, 2000mg - calcium, 1400mg - vitamin D.  It works. Or at least takes the edge off!  But talk to your doctor first before adding anything to your regime.
I've never gotten mouth sores. 
I can do anything through Jesus Christ who strengthens me. I have learned in whatever state I am in,to be content. Phillipians 4:11-13

34 years old. Diagnosed with lupus in 2000. Fibromyalgia, anti-phospholipid syndrome(APS)(stroke),Sjogren's, Raynaud's, seizure disorder-(miraclulously disappeared!), Libman Sach's Endocarditis, vasculitis, sacroiliitis, arthritis (neck) . Prednisone, Imuran, Coumadin, Clobazam, Amitriptyline, didrocal, Cozaar, calcium, Cykolokapron, multi-vitamin, vitamin D, Magnesium, vitamin B6, Acidophilus

Veteran Member

Date Joined Jan 2005
Total Posts : 8616
   Posted 8/28/2008 9:55 PM (GMT -6)   
Absolutely. Our cycles actually affect any inflammatory condition.

Sorry sis.


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Psalms 139

Co-Moderator - Lupus Forum

UCTD, Inflammatory Arthritis, Diverticulosis, (recent dx - Sjogrens, Crohn’s 4/08)

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Veteran Member

Date Joined Jul 2005
Total Posts : 5403
   Posted 8/29/2008 8:01 PM (GMT -6)   
Jen, I definitely noticed my lupus being affected by my cycle - my symptoms flare up during PMS and my PMS has also gotten worse since getting lupus - irritability, etc. I also found out in March that lupus had depleted some of my hormones and now that I'm on a compounded hormone cream, I've noticed that my fatigue is somewhat better and my PMS symptoms are not as bad either. Both my rheumy and my pcp told me that hormone levels are hard to read on labs, but fortunately my pcp seems to know a lot about it because he's the one who caught it - my rheumy admitted he didn't know enough about it to interpret the lab results that my pcp sent to him.
Diagnosis:  UCTD (lupus) 2006; Raynauds 2006; Sjogren's 2006; lupus symptoms began 2003; UC 2008; CFS 1991; Mono 1985
Meds:  Plaquenil 400mg; Prednisone 5-10mg; Tramadol 100mg 3-4x daily; Doxepin 25-50mg; Prevacid; Evoxac; Steriod Cream and Mouth Rinse for tongue and mouth ulcers; Hydrocodone 5/500 prn for severe pain; Artificial tears



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Regular Member

Date Joined May 2007
Total Posts : 475
   Posted 8/30/2008 5:21 PM (GMT -6)   
Just wanted to second what everyone else said. My cycles definitely cause a worsening of the lupus. I am approaching 50 years old and I also notice it getting worse as I age -undoubtedly menopause rearing it's lovely head.
Hope you are feeling well.
Take care,

Dx: Lupus, sjogren's, celiac, severe allergies.
Daily Meds: Plaquenil, Zyrtec. Prilosec, Nasacort, Prozac, Ambien CR.
Daily Supplements: Multi-vitamin, Calcium, B-100 Complex.
As Needed Meds: Epinephrine, Benadryl, Proventil, Xopenex, Tylenal, Darvocet, Prednisone.

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